# ACRODYSOSTOSIS SUPPORT &amp; RESEARCH

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1182818
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** April 5, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1182818


## Contact

- **Address:** Bath House, Cudworth Lane, Newdigate, Dorking, Dorking
- **Postcode:** Surrey
- **Phone:** 07949883817
- **Email:** info@acrodysostosis.com
- **Website:** www.acrodysostosis.com



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY ACRODYSOSTOSIS DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:-(1) PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF ACRODYSOSTOSIS DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC;(2) RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH ACRODYSOSTOSIS DISEASE.

**Activities:** The activities of the CIO are to relieve the needs of those affected by Acrodysostosis by promoting greater understanding of the causes, symptoms and treatment of Acrodysostosis in all its forms including by the promotion of research and sharing and disseminating of results of such research for the benefit of the general public; raising public awareness of the symptoms




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training
- **Who:** People With Disabilities, The General Public/mankind



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Nina Samantha Knight** | Chair | Oct. 1, 2019 |
| Jan Sara Hine |  | Oct. 1, 2019 |
| Sarah Louise Denney |  | Oct. 1, 2019 |



