OpenCharities

The Charlie Gard Foundation

Country
England & Wales
Charity number
1176344
Status
Registered
Registered
Dec. 18, 2017
Legal form
CIO

Address

Address
Charlie Gard Foundation
Centurion House
London Road
STAINES-UPON-THAMES
Middlesex
TW18 4AX

Activities

We support families affected by mitochondrial disease offering services to aid a better quality of life, and fund research into viable treatments for this currently incurable disease. We aim to raise awareness for mitochondrial disease within the general public through a variety of events, and support patients by connecting them to the correct support networks within the mitochondrial community.

Objects: For The Public Benefit, To Promote And Protect The Physical And Mental Health Of Sufferers Of Mitochondrial Disease And Their Families And Carers By All Or Any Of The Following Means:(1) Providing Financial Support For Research Into Methods Of Diagnosis, Treatment And Management For Mitochondrial Disease And Related Services, And To Help Publish And Disseminate The Findings Of Such Research;(2) Raising Awareness About All And Any Issues Related To Mitochondrial Disease Among The Public, Media, Legislators And Amongst Healthcare Professionals;(3) Providing Technical Advice To Government And Others On Matters Related To Mitochondrial Disease, And Commenting On Proposed Or Existing Legislation Impacting Serious Medical Treatment Cases; And(4) Providing Families Living With Mitochondrial Disease With Information And Support, Including Financial Support Where Possible.for The Purposes Of This Clause "Mitochondrial Disease" Means Any Of The Group Of Chronic, Genetic Disorders Caused By Dysfunctional Mitochondria And "Serious Medical Treatment Case" Has The Same Meaning As Given In Practice Direction E, Supplementing Part 9 Of The Court Of Protection Rules, 2007.nothing In This Constitution Shall Authorise An Application Of The Property Of The CIO For The Purposes Which Are Not Charitable In Accordance With Section 7 Of The Charities And Trustee Investment (Scotland) Act 2005 And Section 2 Of The Charities Act (Northern Ireland) 2008.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, Elderly/old People, Other Defined Groups, The General Public/mankind

Areas of operation

Country
Ireland, Italy, Scotland, Spain, United States
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £1,653 £88,284
March 31, 2024 £17,312 £106,701
March 31, 2023 £36,774 £206,010
March 31, 2022 £96,266 £261,828
March 31, 2021 £77,841 £389,264

Trustees

Name Appointed
James Evers Dec. 21, 2022
Jeffrey Mendlesohn Feb. 18, 2019
Nicola Elliott May 16, 2025