OpenCharities

The Charlie Gard Foundation

Country
Scotland
Charity number
SC054884
Status
Active
Registered
Jan. 15, 2026
Legal form
CIO (Charitable Incorporated Organisation, E&W)

Address

Address
The Charlie Gard Foundation
Centurion House
London Road
Staines
TW18 4AX

Activities

'It makes grants, donations, loans, gifts or pensions to individuals','It carries out activities or services itself'

'the advancement of health','the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage'

Beneficiaries: 'People with disabilities or health problems','Other defined groups'

Objectives: For the public benefit, to promote and protect the physical and mental health of sufferers of mitochondrial disease and their families and carers by all or any of the following means: (1) providing financial support for research into methods of diagnosis, treatment and management for mitochondrial disease and related services, and to help publish and disseminate the findings of such research. (2) raising awareness about all and any issues related to mitochondrial disease among the public, media, legislators and amongst healthcare professionals. (3) providing technical advice to government and others on matters related to mitochondrial disease, and commenting on proposed or existing legislation impacting serious medical treatment cases. and (4) providing families living with mitochondrial disease with information and support, including financial support where possible. For the purposes of this clause 'mitochondrial disease' means any of the group of chronic, genetic disorders caused by dysfunctional mitochondria and 'serious medical treatment case' has the same meaning as given in Practice Direction E, supplementing Part 9 of the Court of Protection Rules, 2007.

Geography

Main operating location
Outwith Scotland
Geographical spread
Scotland and other parts of the UK