# THE CHARLIE GARD FOUNDATION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1176344
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Dec. 18, 2017
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1176344


## Contact

- **Address:** Charlie Gard Foundation, Centurion House, London Road, STAINES-UPON-THAMES, Middlesex
- **Postcode:** TW18 4AX
- **Phone:** 07958 077771
- **Email:** info@thecharliegardfoundation.org
- **Website:** www.thecharliegardfoundation.org



## Activities

**Objects:** FOR THE PUBLIC BENEFIT, TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF MITOCHONDRIAL DISEASE AND THEIR FAMILIES AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:(1) PROVIDING FINANCIAL SUPPORT FOR RESEARCH INTO METHODS OF DIAGNOSIS, TREATMENT AND MANAGEMENT FOR MITOCHONDRIAL DISEASE AND RELATED SERVICES, AND TO HELP PUBLISH AND DISSEMINATE THE FINDINGS OF SUCH RESEARCH;(2) RAISING AWARENESS ABOUT ALL AND ANY ISSUES RELATED TO MITOCHONDRIAL DISEASE AMONG THE PUBLIC, MEDIA, LEGISLATORS AND AMONGST HEALTHCARE PROFESSIONALS;(3) PROVIDING TECHNICAL ADVICE TO GOVERNMENT AND OTHERS ON MATTERS RELATED TO MITOCHONDRIAL DISEASE, AND COMMENTING ON PROPOSED OR EXISTING LEGISLATION IMPACTING SERIOUS MEDICAL TREATMENT CASES; AND(4) PROVIDING FAMILIES LIVING WITH MITOCHONDRIAL DISEASE WITH INFORMATION AND SUPPORT, INCLUDING FINANCIAL SUPPORT WHERE POSSIBLE.FOR THE PURPOSES OF THIS CLAUSE &quot;MITOCHONDRIAL DISEASE&quot; MEANS ANY OF THE GROUP OF CHRONIC, GENETIC DISORDERS CAUSED BY DYSFUNCTIONAL MITOCHONDRIA AND &quot;SERIOUS MEDICAL TREATMENT CASE&quot; HAS THE SAME MEANING AS GIVEN IN PRACTICE DIRECTION E, SUPPLEMENTING PART 9 OF THE COURT OF PROTECTION RULES, 2007.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

**Activities:** We support families affected by mitochondrial disease offering services to aid a better quality of life, and fund research into viable treatments for this currently incurable disease. We aim to raise awareness for mitochondrial disease within the general public through a variety of events, and support patients by connecting them to the correct support networks within the mitochondrial community.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, Other Defined Groups, The General Public/mankind



## Geography

- Ireland
- Italy
- Scotland
- Spain
- United States
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| James Evers |  | Dec. 21, 2022 |
| Jeffrey Mendlesohn |  | Feb. 18, 2019 |
| Nicola Elliott |  | May 16, 2025 |




