OpenCharities

Pitt Hopkins UK

Pitt Hopkins Syndrome UK

Country
England & Wales
Charity number
1167153
Status
Registered
Registered
May 17, 2016
Legal form
CIO

Address

Address
4 Forest Oaks
Horsham
West Sussex
RH13 6RX

Activities

Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit

Objects: To Relieve The Needs Of Children And Young People Diagnosed With Pitt Hopkins Syndrome,their Families And Carers By:1.increasing The Profile Of Pitt-Hopkins Syndrome For Public Benefit By Raising Awareness Of Pitt-Hopkins Syndrome. 2.supporting Families Having A Diagnosis Of Pitt-Hopkins Syndrome By Providing Information And Funding To Facilitate Opportunities And Means To Communicate With Each Other And To Exchange Experiences And Advice. 3.promoting Understanding Of Pitt-Hopkins Syndrome By Providing Information To Medical And Social Professionals. 4.supporting Research Into Pitt-Hopkins Syndrome, In Particular Natural History Studies And Breathing Anomalies And The Dissemination Of The Useful Results Of That Research.

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Disability
Who
People With Disabilities, The General Public/mankind

Areas of operation

Country
Ireland, Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £34,473 £5,740
Dec. 31, 2023 £25,155 £2,159
Dec. 31, 2022 £36,088 £8,012
Dec. 31, 2021 £34,383 £10,684
Dec. 31, 2020 £19,005 £69,504

Trustees

Name Appointed
Sue Routledge (Chair) May 16, 2016
Brian Routledge May 16, 2016
Graham John Fiveash Nov. 7, 2022
Leanne Groves May 17, 2016
Mark Lewis Haywood Jan. 15, 2024
Melissa-Jane Stewart July 12, 2021