OpenCharities

Pitt Hopkins UK

Pitt Hopkins Syndrome UK

Country
England & Wales
Charity number
1167153
Status
Registered
Reporting
Up to date Last filed Oct. 11, 2025. Filing history
Registered
May 17, 2016
Legal form
CIO

Address

Address
4 Forest Oaks
Horsham
West Sussex
RH13 6RX

Activities

Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit

Objects: To Relieve The Needs Of Children And Young People Diagnosed With Pitt Hopkins Syndrome,their Families And Carers By:1.increasing The Profile Of Pitt-Hopkins Syndrome For Public Benefit By Raising Awareness Of Pitt-Hopkins Syndrome. 2.supporting Families Having A Diagnosis Of Pitt-Hopkins Syndrome By Providing Information And Funding To Facilitate Opportunities And Means To Communicate With Each Other And To Exchange Experiences And Advice. 3.promoting Understanding Of Pitt-Hopkins Syndrome By Providing Information To Medical And Social Professionals. 4.supporting Research Into Pitt-Hopkins Syndrome, In Particular Natural History Studies And Breathing Anomalies And The Dissemination Of The Useful Results Of That Research.

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Disability
Who
People With Disabilities, The General Public/mankind

Geography

Country
Ireland, Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2024 Oct. 11, 2025On time £34,473 £5,740
Dec. 31, 2023 Oct. 9, 2024On time £25,155 £2,159
Dec. 31, 2022 Oct. 26, 2023On time £36,088 £8,012
Dec. 31, 2021 Oct. 3, 2022On time £34,383 £10,684
Dec. 31, 2020 Oct. 2, 2021On time £19,005 £69,504

Trustees

Name Appointed
Sue Routledge (Chair) May 16, 2016
Brian Routledge May 16, 2016
Graham John Fiveash Nov. 7, 2022
Leanne Groves May 17, 2016
Mark Lewis Haywood Jan. 15, 2024
Melissa-Jane Stewart July 12, 2021