# PITT HOPKINS UK

## Details

- **Country:** England & Wales
- **Charity number:** 1167153
- **Other names:** PITT HOPKINS SYNDROME UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 17, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1167153


## Contact

- **Address:** 4 Forest Oaks, Horsham, West Sussex
- **Postcode:** RH13 6RX
- **Phone:** 02032392123
- **Email:** sue@pitthopkins.org.uk
- **Website:** www.pitthopkins.org.uk



## Activities

**Activities:** Pitt Hopkins UK  aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Disability
- **Who:** People With Disabilities, The General Public/mankind



## Areas of operation

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £34473 | £5740 | — | — |
| Dec. 31, 2023 | £25155 | £2159 | — | — |
| Dec. 31, 2022 | £36088 | £8012 | — | — |
| Dec. 31, 2021 | £34383 | £10684 | — | — |
| Dec. 31, 2020 | £19005 | £69504 | — | — |



## Trustees

- **SUE ROUTLEDGE** (Chair) — appointed May 16, 2016
- BRIAN ROUTLEDGE — appointed May 16, 2016
- Graham John Fiveash — appointed Nov. 7, 2022
- LEANNE GROVES — appointed May 17, 2016
- Mark Lewis Haywood — appointed Jan. 15, 2024
- Melissa-Jane Stewart — appointed July 12, 2021