# PITT HOPKINS UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1167153
- **Other names:** PITT HOPKINS SYNDROME UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** May 17, 2016
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1167153


## Contact

- **Address:** 4 Forest Oaks, Horsham, West Sussex
- **Postcode:** RH13 6RX
- **Phone:** 020 3239 2123
- **Email:** sue@pitthopkins.org.uk
- **Website:** www.pitthopkins.org.uk



## Activities

**Objects:** TO RELIEVE THE NEEDS OF CHILDREN AND YOUNG PEOPLE DIAGNOSED WITH PITT HOPKINS SYNDROME,THEIR FAMILIES AND CARERS BY:1.INCREASING THE PROFILE OF PITT-HOPKINS SYNDROME FOR PUBLIC BENEFIT BY RAISING AWARENESS OF PITT-HOPKINS SYNDROME. 2.SUPPORTING FAMILIES HAVING A DIAGNOSIS OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION AND FUNDING TO FACILITATE OPPORTUNITIES AND MEANS TO COMMUNICATE WITH EACH OTHER AND TO EXCHANGE EXPERIENCES AND ADVICE. 3.PROMOTING UNDERSTANDING OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION TO MEDICAL AND SOCIAL PROFESSIONALS. 4.SUPPORTING RESEARCH INTO PITT-HOPKINS SYNDROME, IN PARTICULAR NATURAL HISTORY STUDIES AND BREATHING ANOMALIES AND THE DISSEMINATION OF THE USEFUL RESULTS OF THAT RESEARCH.

**Activities:** Pitt Hopkins UK  aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Disability
- **Who:** People With Disabilities, The General Public/mankind



## Geography

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **SUE ROUTLEDGE** | Chair | May 16, 2016 |
| BRIAN ROUTLEDGE |  | May 16, 2016 |
| Graham John Fiveash |  | Nov. 7, 2022 |
| LEANNE GROVES |  | May 17, 2016 |
| Mark Lewis Haywood |  | Jan. 15, 2024 |
| Melissa-Jane Stewart |  | July 12, 2021 |




