OpenCharities

Childhood Tumour Trust

Ctt

Country
England & Wales
Charity number
1165777
Status
Registered
Registered
Feb. 26, 2016
Legal form
CIO

Address

Address
7 The Close
Fairlight
HASTINGS
East Sussex
TN35 4AQ

Activities

We support children and young people up to the age of 30 and their families affected by Neurofibromatosis Type 1 (NF1). We organise residential camps for children and days out for families. We are passionate about mental health and wellbeing. We work closely with health visitors to raise awareness and early diagnosis of NF1.

Objects: The Objects Of The CIO Are To Relieve The Needs Of Young People Up To The Age Of 24 With Neurofibromatosis (Nf1) And Their Families In Particular But Not Exclusively By:- Funding And Organising Social Events And Activities For Their Benefit/that Relieve Their Needs And By Providing Opportunities To Meet Up With Others With Nf1;- Raising Money For, Help Fund And Organise Holiday Camps For Young People With Nf1;- Signposting And Linking People To The Best Information/resources Available For Nf1;- Raising Awareness Of Nf1 Through Campaigning, Working Alongside Other Organisations, The NHS And Researchers To Improve Both Diagnosis And Better Care Of For People With Nf1;- Funding Peer-Reviewed Research Into Nf1 Where The Useful Results Of Which Are Made Available For The Public Benefit.

Classification

How
Other Charitable Activities
What
Other Charitable Purposes
Who
Children/young People, People With Disabilities

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £186,241 £171,320
March 31, 2024 £198,961 £167,012
March 31, 2023 £108,694 £184,607
March 31, 2022 £149,667 £95,934
March 31, 2021 £70,455 £54,414

Trustees

Name Appointed
Daniel Coleman June 9, 2022
Kirsten Samuel-Hubert March 9, 2023
Martin Luke Pomfret Feb. 26, 2016
Melanie Jarra Nov. 20, 2023
Shaylyn D'Arcy June 14, 2025