Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
CHILDHOOD TUMOUR TRUST
Registered Charity Number 1165777
Trustees’ Report and Financial Statements
For the year ended 31[st] March 2024
CONTENTS
Organisatonal Informaton Trustee Annual Report Independent Examiner’s Report Receipts and Payments Account Statement of Assets and Liabilites
Notes to the Accounts
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
1
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES
The Commitee of Childhood Tumour Trust presents its annual report and fnancial statements for the year ended 31[st] March 2024.
ORGANISATIONAL INFORMATION
Name of Charity: Childhood Tumour Trust Registered Charity Number: 1165777 Legal Form: Charitable Incorporated Organisaton (CIO) Governing Document: Consttuton Adopted 26[th] February 2016 Trustee Commitee Members: Kirsten Samuel Vanessa Martin Martin Pomphret Joanne Tully Daniel Coleman Elizabeth Brooks Mel Jarra Kay Ashton Jodie Hodgson Sunil Singh Bankers: The Co-Operative Bank Independent Examiner: Brenda Peers-Ross
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
2
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
Structure, Governance and Management
Childhood Tumour Trust has a committee of Trustees governed by a constitution. It became a registered charity on the 26[th of] February 2016. Day to Day management of the Association is vested in the Trustees, who are elected and co-opted under the terms of the constitution.
Board of Trustees
There are currently 10 Trustees of Childhood Tumour Trust. The Board of Trustees shall be administered by no less than three and no more than 12 members. The names of the Trustees are listed above.
The Trustees meet once a year in addition to monthly and informal meetings.
Objectves
To support children, young people and their families affected by Neurofibromatosis Type 1 and to raise awareness of NF1 with medical professionals.
Raise awareness of NF1 through campaigning, working alongside other organisations such as Institute of Health Visiting and NHS England to improve both diagnosis and better care of people with NF1.
Link people to the best information resources for NF1.
Fundraise and organise social events and activities for families and children affected by NF1.
Neurofibromatosis Type 1 (NF1) is an incurable medical condition which very few people have heard of.
CTT (Childhood Tumour Trust) supports children and their families in a variety of ways.
The Past Year
Over the past year, Childhood Tumour Trust has continued its vital work supporting children, young people, and families affected by Neurofibromatosis Type 1 (NF1). The charity has expanded its services and strengthened its community outreach to ensure that those impacted by this condition receive the support, understanding, and opportunities they need. This report outlines our key activities, achievements, and the progress we've made over the last 12 months.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
3
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
1. Support and Services
a. Camps and Actvity Days
Our annual activity camp was held at JCA in Shrewsbury. It continues to be an integral part of our offering and becomes increasingly well attended each year.
- Day Trips : Highlights included family days to Alton Towers, Chessington.
In response to continued demand for accessible, virtual activities, we have maintained our popular Zoom sessions:
-
Sign Language Classes : Helping to improve communication skills in a supportive environment.
-
Arts and Crafs : Creative sessions encouraging self-expression.
-
Cookery Classes : Offering a fun, interactive way for families to bond and learn new skills together.
-
Partes: On top of these regular zoom activities, we have had Christmas, Easter and Halloween parties, and ceramics.
c. Counselling and Emotonal Support
We continued to offer mental health support through our partnership with Rare Minds. This service has been crucial in helping individuals and families cope with the emotional and psychological challenges of NF1.
- Counselling Support : We have supported counselling sessions for adults addressing concerns such as anxiety, low self-esteem, and the stress associated with NF1.
d .
Online Support Group
Our online support group for parents and carers of children with NF1 offers essential emotional support, practical advice, and a sense of community. It connects families facing similar challenges, providing a space to share experiences, access resources, and solve problems together. The convenience of an online platform ensures accessibility for those in remote areas or with busy schedules. By reducing isolation and stress, offering peer learning, and empowering parents to advocate for their child’s needs, the group plays a vital role in improving both mental well-being and the overall quality of care for children with NF1.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
4
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
Patches and the Very Special Diagnosis
Our booklets helping people to talk to children about NF1 have been translated into Greek, Danish and German.
2. Raising Awareness and Educaton
One of our key missions is to improve understanding of NF1 among the general public, medical professionals, and educators. This year, we have focused on Campaigns and raising awareness through our social media
- Schools and Community Outreach : We are developing new educational materials for teachers and parents in the way of an information pack to help them better understand the challenges faced by children with NF1 and how to support them effectively.
3. Youth Ambassador Program
Our Youth Ambassador Program has grown, providing a platform for young people to become advocates for themselves and others with NF1.
4. Partnerships and Collaboratons
-
Rare Minds : Our ongoing collaboration has allowed us to expand access to counselling services, a critical resource for our community.
-
Medical Partnerships : We continue to work with healthcare providers to ensure that individuals with NF1 receive appropriate care and support.
-
Manchester Metropolitan University We continue to work with MMU on Research Projects.
-
Patent Led Research Hub – University of Cambridge the work we have done with them will hopefully lead to a paper being published in the BMJ (British Medical Journal) to show what care is like for those with NF1 outside of the Specialist Centres. We are also working on a new research project with them.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
5
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
Conclusion
This year has been one of growth and progress for Childhood Tumour Trust. We are proud of the work we have done to support families affected by NF1, and we remain dedicated to improving the lives of those we serve. We aim to continue our work, reaching out to more families, children and young people affected by NF1 with support from our community, partners, and donors.
We aim to carry on raising awareness of NF1, to continue to campaign for improved care pathways, to continue our classes, days out, camps and support groups and we look forward to another year of making a meaningful impact.
Public Beneft
The Trustees have considered their duty set out in Section 17 of the Charities Act 2011 to have due regard to public benefit guidance published by the Commission, and in their opinion the forgoing report on the achievements and performance demonstrates that they have compiled therewith.
Financial Review
The Treasurer reported that this year had been financially stable and CTT had achieved all it had set out to do.
Receipts in this year were £198,961
Payments in this year were £167,012
Bank Balance as of 31[st] March 2024 £90,993
Childhood Tumour Trust will continue to build up its reserves to enable the Charity to fulfil its objectives and financial plans.
Approved by the Management Committee on 9[th] August 2024 and signed on their behalf by
E. Brooks .. Dated 29[th] January 2025 Trustee
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
6
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Receipts and Payments Account
For the Period Ended 31[st] March 2024
| For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 |
|---|---|---|---|---|
| -------------------------------------------------------------------------------------------------------------------------------------- | ||||
| Notes | Unrestricted | Restricted 2024 | Restated 2023 | |
| £ | £ £ |
£ | ||
| Income From | ||||
| Donatons Grants Legacies | 1 | 140,285 | - 120,295 | 44,327 |
| Charitable Actvites | 2,793 | - 2,793 |
10,792 | |
| Other Income | 55,883 | - 55,883 |
53,575 | |
| ________ | ||||
| Total Income | 198,961 | -198,961 |
108,694 | |
| ________ | ||||
| Expenditure | ||||
| Charitable Actvites | ||||
| Raising Funds | - | - - |
- | |
| Charitable Actvites | 4 | 167,012 | - 167,012 |
184,607 |
| Other Costs | - | - - |
- | |
| ________ | ||||
| Total Expenditure | 167,012 | - 167012 |
184,607 | |
| ________ | ||||
| Net Income (Expenditure) | 31,949 | - 31,949 |
(75,913) | |
| Transfer Between Funds | - | - - |
- | |
| Other Recognised Gains/(Losses): | ________ | |||
| Net Movement In Funds | 31,949 | - 31,949 |
(75,913) | |
| Total Funds Brought Forward | 59,044 | - 59,044 |
134,957 | |
| ________ | ||||
| Total Funds Carried Forward | 90,993 | - 90,993 |
59,044 | |
| ________ | ||||
| Cash Funds | ||||
| Unrestricted Funds | 90,993 | - 90,993 |
59,044 | |
| Designated Funds | - | - - |
- | |
| Restricted Funds | - | - - |
- | |
| ________ | ||||
| 90,993 | - 90,993 |
59,044 | ||
| ________ |
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
7
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Statement of Assets and liabilities
For the Period Ended 31[st] March 2024
| Notes | Unrestricted | Restricted | 2024 | Restated 2023 | |
|---|---|---|---|---|---|
| £ | £ | £ | £ | ||
| Assets: | |||||
| Tangible Fixed Assets | 1,506 | - | 1,506 | - | |
| Bank Current Accounts | 89,487 | - | 89,487 | 59,044 | |
| Debtors | 7 | - | - | - | - |
| ________ | |||||
| 90,993 | 90,993 | 59,044 | |||
| ________ | |||||
| Liabilites | |||||
| Creditors | 8 | (1,649) | - | (1,649) | (1,111) |
| ________ | |||||
| (1,649) | - | (1,649) | (1,111) | ||
| ________ | |||||
| Net Assets | 89.344 | - | 89,344 | 57,933 | |
| _______ | |||||
| Net Reserves | |||||
| Cash Asset – Bank | 89,487 | - | 89,498 | 59,044 | |
| Fixed Asset | 1,506 | - | 1,506 | - | |
| Debtors | - | - | - | - | |
| Creditors | (1,649) | - | (1,649) | (1,111) | |
| _______ | |||||
| 89,344 | - | 89,344 | 57,933 | ||
| _______ |
Presented and approved by the Trustees of Childhood Tumour Trust at a meeting held on 13[th] July 2024 and signed on their behalf
E. Brooks .. Dated 29[th] January 2025 Trustee
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
8
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Notes to the Accounts
For the Period Ended 31[st] March 2024
Basis of Preparaton - The Accounts have been prepared on a Receipts and Payment basis using historical cost conventions, applicable to UK Accounting Standards and Charities Act 2011.
Funds - General funds unrestricted funds which are available for use at the discretion off the Trustees, in furtherance of the general objectives of the charity.
Designated funds comprise unrestricted funds that have been set aside by the trustees, for particular purposes. The aim and use of each designated fund is set out in the notes to the Accounts.
Restricted funds are funds which are to be used in accordance with specific restrictions imposed by the donors or which have been raised by the Charity, for particular purposes.
The Accounts include all transactions, assets and liabilities for which the Charity is responsible for in law.
Fixed Assets - No purchase under £1,000 is capitalised. If capitalised the asset will be depreciated over its useful life.
Short life assets will be depreciated over two years.
Long life assets 25% straight line method.
Income
Income is brought into account on receivable basis in the year in which it is received.
Intangible Income
Intangible income in the form of donated facilities and voluntary help etc, is not included in the Accounts since it is not considered practicable to quantify such income.
Expenditure
Expenditure is stated inclusive of value added tax and is brought into account in the period in which it is paid. Costs are allocated to functional headings on the bases of direct costs on a fair and reasonable basis.
Reserve Policy
The Charity aim to have adequate reserves to meet known commitments and designated funds for identified specific purposes.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE.
www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
9
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Notes to the Accounts
For the Period Ended 31[st] March 2024
| Unrestricted | Restricted 2024 | Restricted 2024 | Restated 2023 | |
|---|---|---|---|---|
| £ | £ | £ | £ | |
| Note 1 | ||||
| Donatons Grants Legacies | ||||
| Donatons Various | 55,295 | - | 55,295 | 44,327 |
| The Patrick and Helena Frost Foundaton 10,000 |
- | 10,000 | - | |
| Tresidor Investment Management | 5,000 |
- | 5,000 | - |
| Gene Leg Pro Ltd | 50,000 | - | 50,000 | - |
| Grants | 19,990 | - | 19,990 | - |
| _______ | ||||
| 140,285 | - | 140,285 | 44,327 | |
| _______ | ||||
| Note 4 | ||||
| Charitable Actvites | ||||
| Employment Costs | 23,551 | - | 23,551 | 23,517 |
| Direct Expenses, Counselling | 58,552 | - | 58,552 | 56,673 |
| Training | - | - | - | - |
| Travel – Natonal | 1,084 | - | 1,084 | 6,167 |
| Travel – Internatonal | 5,338 | - | 5,338 | 10,519 |
| Children’s Outng, Camp and Actvites58,034 | - | 58,034 | 72,048 | |
| Consultng | 3,540 | - | 3,540 | 4,975 |
| Subscriptons | 1,033 | - | 1,033 | 1,144 |
| Postage, freight and Courier | 500 | - | 500 | 177 |
| Printng and Statonery | 950 | - | 950 | 902 |
| Merchandise | 4,161 | - | 4,161 | 134 |
| General Expenses | 1,613 | - | 1,613 | 3,078 |
| IT, Sofware and Consumables | 7,088 | - | 7,088 | 3,346 |
| Telephone and Broadband | 462 | - | 462 | 370 |
| Governance | ||||
| Accountng and Payroll | 328 | - | 328 | 810 |
| Legal, Professional Fees | - | - | - | - |
| Insurance | 750 | 750 | 746 | |
| Bank Charges | 28 | - | 28 | 1 |
| __________ | ||||
| 167,012 | - |
167,012 |
184,607 | |
| __________ |
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
10
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Notes to the Accounts
For the Period Ended 31[st] March 2024
| For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 |
|---|---|---|---|
| -------------------------------------------------------------------------------------------------------------------------------------- | |||
| Unrestricted | Restricted 2024 Restated | 2023 | |
| £ | £ £ |
£ | |
| Note 5 | |||
| Employment Costs | |||
| Gross Salaries | 23,162 | - 23,162 |
23,031 |
| Employer Pension | 389 | - 389 |
486 |
| __________ | |||
| 23,551 | - 23,551 |
23,517 | |
| __________ |
No employee earned in excess of £60,000 during the year.
The average number of employees during the year was 2 (2023:2)
During the year, the trustees received no renumeration. The total expenses reimbursed to the trustees amounts to nil (2023:£nil)
Trustee V Martin received as an employee during the year.
| Unrestricted | Restricted | 2024 Restated | 2024 Restated | 2023 | |
|---|---|---|---|---|---|
| £ | £ |
£ | £ | ||
| Note 7 | |||||
| Debtors | |||||
| Pre-Paid | |||||
| ________ | |||||
| - | - | - | - | ||
| _______ | |||||
| Note 8 | - | ||||
| Creditors | |||||
| Other | (198) | - | (198) | (172) | |
| HMRC | (1,001) | - | 1,001) | (239) | |
| Accruals – Independent Examiner | (450) | (450) | (700) | ||
| ________ | |||||
| (1,649) | (1,649) | (1,111) |
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
11
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
CHILDHOOD TUMOUR TRUST
Registered Charity Number 1165777
Trustees’ Report and Financial Statements
For the year ended 31[st] March 2024
CONTENTS
Organisatonal Informaton Trustee Annual Report Independent Examiner’s Report Receipts and Payments Account Statement of Assets and Liabilites
Notes to the Accounts
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
1
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES
The Commitee of Childhood Tumour Trust presents its annual report and fnancial statements for the year ended 31[st] March 2024.
ORGANISATIONAL INFORMATION
Name of Charity: Childhood Tumour Trust Registered Charity Number: 1165777 Legal Form: Charitable Incorporated Organisaton (CIO) Governing Document: Consttuton Adopted 26[th] February 2016 Trustee Commitee Members: Kirsten Samuel Vanessa Martin Martin Pomphret Joanne Tully Daniel Coleman Elizabeth Brooks Mel Jarra Kay Ashton Jodie Hodgson Sunil Singh Bankers: The Co-Operative Bank Independent Examiner: Brenda Peers-Ross
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
2
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
Structure, Governance and Management
Childhood Tumour Trust has a committee of Trustees governed by a constitution. It became a registered charity on the 26[th of] February 2016. Day to Day management of the Association is vested in the Trustees, who are elected and co-opted under the terms of the constitution.
Board of Trustees
There are currently 10 Trustees of Childhood Tumour Trust. The Board of Trustees shall be administered by no less than three and no more than 12 members. The names of the Trustees are listed above.
The Trustees meet once a year in addition to monthly and informal meetings.
Objectves
To support children, young people and their families affected by Neurofibromatosis Type 1 and to raise awareness of NF1 with medical professionals.
Raise awareness of NF1 through campaigning, working alongside other organisations such as Institute of Health Visiting and NHS England to improve both diagnosis and better care of people with NF1.
Link people to the best information resources for NF1.
Fundraise and organise social events and activities for families and children affected by NF1.
Neurofibromatosis Type 1 (NF1) is an incurable medical condition which very few people have heard of.
CTT (Childhood Tumour Trust) supports children and their families in a variety of ways.
The Past Year
Over the past year, Childhood Tumour Trust has continued its vital work supporting children, young people, and families affected by Neurofibromatosis Type 1 (NF1). The charity has expanded its services and strengthened its community outreach to ensure that those impacted by this condition receive the support, understanding, and opportunities they need. This report outlines our key activities, achievements, and the progress we've made over the last 12 months.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
3
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
1. Support and Services
a. Camps and Actvity Days
Our annual activity camp was held at JCA in Shrewsbury. It continues to be an integral part of our offering and becomes increasingly well attended each year.
- Day Trips : Highlights included family days to Alton Towers, Chessington.
In response to continued demand for accessible, virtual activities, we have maintained our popular Zoom sessions:
-
Sign Language Classes : Helping to improve communication skills in a supportive environment.
-
Arts and Crafs : Creative sessions encouraging self-expression.
-
Cookery Classes : Offering a fun, interactive way for families to bond and learn new skills together.
-
Partes: On top of these regular zoom activities, we have had Christmas, Easter and Halloween parties, and ceramics.
c. Counselling and Emotonal Support
We continued to offer mental health support through our partnership with Rare Minds. This service has been crucial in helping individuals and families cope with the emotional and psychological challenges of NF1.
- Counselling Support : We have supported counselling sessions for adults addressing concerns such as anxiety, low self-esteem, and the stress associated with NF1.
d .
Online Support Group
Our online support group for parents and carers of children with NF1 offers essential emotional support, practical advice, and a sense of community. It connects families facing similar challenges, providing a space to share experiences, access resources, and solve problems together. The convenience of an online platform ensures accessibility for those in remote areas or with busy schedules. By reducing isolation and stress, offering peer learning, and empowering parents to advocate for their child’s needs, the group plays a vital role in improving both mental well-being and the overall quality of care for children with NF1.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
4
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
Patches and the Very Special Diagnosis
Our booklets helping people to talk to children about NF1 have been translated into Greek, Danish and German.
2. Raising Awareness and Educaton
One of our key missions is to improve understanding of NF1 among the general public, medical professionals, and educators. This year, we have focused on Campaigns and raising awareness through our social media
- Schools and Community Outreach : We are developing new educational materials for teachers and parents in the way of an information pack to help them better understand the challenges faced by children with NF1 and how to support them effectively.
3. Youth Ambassador Program
Our Youth Ambassador Program has grown, providing a platform for young people to become advocates for themselves and others with NF1.
4. Partnerships and Collaboratons
-
Rare Minds : Our ongoing collaboration has allowed us to expand access to counselling services, a critical resource for our community.
-
Medical Partnerships : We continue to work with healthcare providers to ensure that individuals with NF1 receive appropriate care and support.
-
Manchester Metropolitan University We continue to work with MMU on Research Projects.
-
Patent Led Research Hub – University of Cambridge the work we have done with them will hopefully lead to a paper being published in the BMJ (British Medical Journal) to show what care is like for those with NF1 outside of the Specialist Centres. We are also working on a new research project with them.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
5
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
REPORT FOR THE TRUSTEES for the year ended March 31[st] , 2024
Conclusion
This year has been one of growth and progress for Childhood Tumour Trust. We are proud of the work we have done to support families affected by NF1, and we remain dedicated to improving the lives of those we serve. We aim to continue our work, reaching out to more families, children and young people affected by NF1 with support from our community, partners, and donors.
We aim to carry on raising awareness of NF1, to continue to campaign for improved care pathways, to continue our classes, days out, camps and support groups and we look forward to another year of making a meaningful impact.
Public Beneft
The Trustees have considered their duty set out in Section 17 of the Charities Act 2011 to have due regard to public benefit guidance published by the Commission, and in their opinion the forgoing report on the achievements and performance demonstrates that they have compiled therewith.
Financial Review
The Treasurer reported that this year had been financially stable and CTT had achieved all it had set out to do.
Receipts in this year were £198,961
Payments in this year were £167,012
Bank Balance as of 31[st] March 2024 £90,993
Childhood Tumour Trust will continue to build up its reserves to enable the Charity to fulfil its objectives and financial plans.
Approved by the Management Committee on 9[th] August 2024 and signed on their behalf by
E. Brooks .. Dated 29[th] January 2025 Trustee
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
6
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Receipts and Payments Account
For the Period Ended 31[st] March 2024
| For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 |
|---|---|---|---|---|
| -------------------------------------------------------------------------------------------------------------------------------------- | ||||
| Notes | Unrestricted | Restricted 2024 | Restated 2023 | |
| £ | £ £ |
£ | ||
| Income From | ||||
| Donatons Grants Legacies | 1 | 140,285 | - 120,295 | 44,327 |
| Charitable Actvites | 2,793 | - 2,793 |
10,792 | |
| Other Income | 55,883 | - 55,883 |
53,575 | |
| ________ | ||||
| Total Income | 198,961 | -198,961 |
108,694 | |
| ________ | ||||
| Expenditure | ||||
| Charitable Actvites | ||||
| Raising Funds | - | - - |
- | |
| Charitable Actvites | 4 | 167,012 | - 167,012 |
184,607 |
| Other Costs | - | - - |
- | |
| ________ | ||||
| Total Expenditure | 167,012 | - 167012 |
184,607 | |
| ________ | ||||
| Net Income (Expenditure) | 31,949 | - 31,949 |
(75,913) | |
| Transfer Between Funds | - | - - |
- | |
| Other Recognised Gains/(Losses): | ________ | |||
| Net Movement In Funds | 31,949 | - 31,949 |
(75,913) | |
| Total Funds Brought Forward | 59,044 | - 59,044 |
134,957 | |
| ________ | ||||
| Total Funds Carried Forward | 90,993 | - 90,993 |
59,044 | |
| ________ | ||||
| Cash Funds | ||||
| Unrestricted Funds | 90,993 | - 90,993 |
59,044 | |
| Designated Funds | - | - - |
- | |
| Restricted Funds | - | - - |
- | |
| ________ | ||||
| 90,993 | - 90,993 |
59,044 | ||
| ________ |
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
7
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Statement of Assets and liabilities
For the Period Ended 31[st] March 2024
| Notes | Unrestricted | Restricted | 2024 | Restated 2023 | |
|---|---|---|---|---|---|
| £ | £ | £ | £ | ||
| Assets: | |||||
| Tangible Fixed Assets | 1,506 | - | 1,506 | - | |
| Bank Current Accounts | 89,487 | - | 89,487 | 59,044 | |
| Debtors | 7 | - | - | - | - |
| ________ | |||||
| 90,993 | 90,993 | 59,044 | |||
| ________ | |||||
| Liabilites | |||||
| Creditors | 8 | (1,649) | - | (1,649) | (1,111) |
| ________ | |||||
| (1,649) | - | (1,649) | (1,111) | ||
| ________ | |||||
| Net Assets | 89.344 | - | 89,344 | 57,933 | |
| _______ | |||||
| Net Reserves | |||||
| Cash Asset – Bank | 89,487 | - | 89,498 | 59,044 | |
| Fixed Asset | 1,506 | - | 1,506 | - | |
| Debtors | - | - | - | - | |
| Creditors | (1,649) | - | (1,649) | (1,111) | |
| _______ | |||||
| 89,344 | - | 89,344 | 57,933 | ||
| _______ |
Presented and approved by the Trustees of Childhood Tumour Trust at a meeting held on 13[th] July 2024 and signed on their behalf
E. Brooks .. Dated 29[th] January 2025 Trustee
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
8
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Notes to the Accounts
For the Period Ended 31[st] March 2024
Basis of Preparaton - The Accounts have been prepared on a Receipts and Payment basis using historical cost conventions, applicable to UK Accounting Standards and Charities Act 2011.
Funds - General funds unrestricted funds which are available for use at the discretion off the Trustees, in furtherance of the general objectives of the charity.
Designated funds comprise unrestricted funds that have been set aside by the trustees, for particular purposes. The aim and use of each designated fund is set out in the notes to the Accounts.
Restricted funds are funds which are to be used in accordance with specific restrictions imposed by the donors or which have been raised by the Charity, for particular purposes.
The Accounts include all transactions, assets and liabilities for which the Charity is responsible for in law.
Fixed Assets - No purchase under £1,000 is capitalised. If capitalised the asset will be depreciated over its useful life.
Short life assets will be depreciated over two years.
Long life assets 25% straight line method.
Income
Income is brought into account on receivable basis in the year in which it is received.
Intangible Income
Intangible income in the form of donated facilities and voluntary help etc, is not included in the Accounts since it is not considered practicable to quantify such income.
Expenditure
Expenditure is stated inclusive of value added tax and is brought into account in the period in which it is paid. Costs are allocated to functional headings on the bases of direct costs on a fair and reasonable basis.
Reserve Policy
The Charity aim to have adequate reserves to meet known commitments and designated funds for identified specific purposes.
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE.
www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
9
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Notes to the Accounts
For the Period Ended 31[st] March 2024
| Unrestricted | Restricted 2024 | Restricted 2024 | Restated 2023 | |
|---|---|---|---|---|
| £ | £ | £ | £ | |
| Note 1 | ||||
| Donatons Grants Legacies | ||||
| Donatons Various | 55,295 | - | 55,295 | 44,327 |
| The Patrick and Helena Frost Foundaton 10,000 |
- | 10,000 | - | |
| Tresidor Investment Management | 5,000 |
- | 5,000 | - |
| Gene Leg Pro Ltd | 50,000 | - | 50,000 | - |
| Grants | 19,990 | - | 19,990 | - |
| _______ | ||||
| 140,285 | - | 140,285 | 44,327 | |
| _______ | ||||
| Note 4 | ||||
| Charitable Actvites | ||||
| Employment Costs | 23,551 | - | 23,551 | 23,517 |
| Direct Expenses, Counselling | 58,552 | - | 58,552 | 56,673 |
| Training | - | - | - | - |
| Travel – Natonal | 1,084 | - | 1,084 | 6,167 |
| Travel – Internatonal | 5,338 | - | 5,338 | 10,519 |
| Children’s Outng, Camp and Actvites58,034 | - | 58,034 | 72,048 | |
| Consultng | 3,540 | - | 3,540 | 4,975 |
| Subscriptons | 1,033 | - | 1,033 | 1,144 |
| Postage, freight and Courier | 500 | - | 500 | 177 |
| Printng and Statonery | 950 | - | 950 | 902 |
| Merchandise | 4,161 | - | 4,161 | 134 |
| General Expenses | 1,613 | - | 1,613 | 3,078 |
| IT, Sofware and Consumables | 7,088 | - | 7,088 | 3,346 |
| Telephone and Broadband | 462 | - | 462 | 370 |
| Governance | ||||
| Accountng and Payroll | 328 | - | 328 | 810 |
| Legal, Professional Fees | - | - | - | - |
| Insurance | 750 | 750 | 746 | |
| Bank Charges | 28 | - | 28 | 1 |
| __________ | ||||
| 167,012 | - |
167,012 |
184,607 | |
| __________ |
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
10
Supporting Children and Young People and their Families and Carers Affected by a Diagnosis of Neurofibromatosis Type 1 info@childhoodtumourtrust.org.uk
Childhood Tumour Trust
Registered Charity Incorporated Organisation (CIO) Number 1165777 Notes to the Accounts
For the Period Ended 31[st] March 2024
| For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 | For the Period Ended 31stMarch 2024 |
|---|---|---|---|
| -------------------------------------------------------------------------------------------------------------------------------------- | |||
| Unrestricted | Restricted 2024 Restated | 2023 | |
| £ | £ £ |
£ | |
| Note 5 | |||
| Employment Costs | |||
| Gross Salaries | 23,162 | - 23,162 |
23,031 |
| Employer Pension | 389 | - 389 |
486 |
| __________ | |||
| 23,551 | - 23,551 |
23,517 | |
| __________ |
No employee earned in excess of £60,000 during the year.
The average number of employees during the year was 2 (2023:2)
During the year, the trustees received no renumeration. The total expenses reimbursed to the trustees amounts to nil (2023:£nil)
Trustee V Martin received as an employee during the year.
| Unrestricted | Restricted | 2024 Restated | 2024 Restated | 2023 | |
|---|---|---|---|---|---|
| £ | £ |
£ | £ | ||
| Note 7 | |||||
| Debtors | |||||
| Pre-Paid | |||||
| ________ | |||||
| - | - | - | - | ||
| _______ | |||||
| Note 8 | - | ||||
| Creditors | |||||
| Other | (198) | - | (198) | (172) | |
| HMRC | (1,001) | - | 1,001) | (239) | |
| Accruals – Independent Examiner | (450) | (450) | (700) | ||
| ________ | |||||
| (1,649) | (1,649) | (1,111) |
Patrons: Rakie Ayola. Lorraine Stanley. Lord Hunt of Kings Heath MBE. www.childhoodtumourtrust.org.uk Registered Charity No. 1165777
11
Brenda Peers-Ross 29 Drift Road Selsey Chichester West Sussex PO20 0PW
To the Members: CHILDHOOD TUMOUR TRUST Registered Charity Incorporated Organisation (CIO) Number: 1165777
INDEPENDENT EXAMINER’S REPORT ON THE ACCOUNTS
I have Independently Examined the Receipts and Payments Account and Statement of Assets and Liabilities on Pages 7 to 10, for financial year ending 31[st ] March 2024.
Respective responsibilities of Members and Examiner
As members, you are responsible for the preparations of the Accounts; you have to consider that an audit does not apply. It is my responsibility to state, on the basis of procedures, whether particular matters have come to my attention.
Basis of Independent Examiner’s Report
My examination was carried out in accordance with general accounting practice. An examination includes a review of the accounting records kept by the organisation and an examination of the accounts presented with these records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you the Members concerning such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently we do not express an audit opinion on the view given by the Accounts.
Independent Examiner’s Statement
In connection with my examination, no matter has come to my attention:
-
(1) which gives me reasonable cause to believe that in any material respect
-
the requirements:
-
to keep adequate accounting records
-
to prepare accounts which accord with the accounting records and to comply with general accounting requirements
have not been met: or
-
(2) to which in my opinion, attention should be drawn in order to enable
-
a proper understanding of the accounts to be reached.
Brenda Peers-Ross
Brenda Peers- Ross FMAAT MCIE
29[th] January 2025