CHILDHOOD TUMOUR TRUST (Charity
CHILDHOOD TUMOUR TRUST
Registered Charity Number: 1165777
Trustees’ Report and Financial Statements
For the year ended
31[st ] March 2021
1
CONTENTS OF THE FINANCIAL STATEMENTS FOR YEAR ENDED 31[ST] MARCH 2020
| CONTENTS | Page |
|---|---|
| Organisational Information |
3 |
| Report of the Trustees | 4 |
| Receipts and Payments Account | 8 |
| Statement of Assets and Liabilities | 9 |
| Independent Examiner’s Report | 10 |
| Notes to the Accounts |
11 |
REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31[ST] MARCH 2020
The committee of Childhood Tumour Trust presents its annual report and financial statements for the year ended 31[st] March 2020.
ORGANISATIONAL INFORMATION
Name of Charity: Childhood Tumour Trust Registered Charity Number: 1165777 Legal Form: Charitable Incorporated Organisation (CIO) Governing Document: Constitution adopted 26 February 2016 Committee Members: V. Martin C.Jim Joanne Tully M. Pomfret Donna Gilbert Diane Cole Bankers: The Co-Operative Bank Independent Examiners: Keith Swallow 2 Friars Hill Terrace Guestling TN35 4ER
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Childhood Tumour Trust
Trustees Annual Report for the Period ended
March 2020 STRUCTURE, GOVERNANCE AND
MANAGEMENT
Childhood Tumour Trust has a committee of Trustees governed by a constitution. It became a registered charity on the 26[th] February 2016. Day to Day management of the Association is vested in the Trustees, who are elected and co-opted under the terms of the constitution.
BOARD OF TRUSTEES
There are currently 6 trustees of Childhood Tumour Trust.
The Board of Trustees shall be administered by no less than three and no more than 15 members. Trustees and members will be elected for a period of up to one year at the AGM each year. The names of the Trustees are shown on page 2 of this document.
The trustees meet once a year in addition to almost daily contact and informal meetings.
OBJECTIVES
To support children, young people and their families affected by Neurofibromatosis Type 1 and to raise awareness of NF1 with medical professionals.
Raise awareness of NF1 through campaigning, working alongside other organisations such as Institute of Health Visiting, and NHS England to improve both diagnosis and better care for people with NF1.
Link People to the best information resources for NF1
Fundraise and organise social events and activities for families and children.
We focus on diagnosis – teaching medics what signs to look for and looking after parents/carers from diagnosis
ACHIEVEMENTS, PERFORMANCE AND FUTURE PLANS
Neurofibromatosis Type 1 (NF1) is an incurable medical condition which very few people have heard of.
CTT Childhood Tumour Trust) supports children and their families in a variety of different ways
1) We continue to run a 24/7 Facebook support group for families who have a child under the age of 30 with NF1, and children from 13 – 30 can also join the support group. We currently have almost 2000 members and this grows weekly. The trustees provide constant replies to people’s worries and concerns linking with our medical board where appropriate helping people access services and negotiate with schools. Advice is provided on a range of topics from disease complications to disability living allowance to how to keep their child still in an MRI scan! The group is a very important part of our work ensuring that people know that they are not alone in their journey with NF1.
2) Our Annual trips to Chessington and Alton Towers were successful and we aim to continue as annual events.
3) Sadly our Annual Youth Camp had to be cancelled again, but the young adults camp to Center parcs went ahead later in the year and was successful, however it was felt that more leaders were needed.
4) May 17[th] World Neurofibromatosis Awareness Day was very successful with the members of the European Patient Group NFPU joining in the I can Say Neurofibroamtosis Campaign. Our Celebrity list is growing and the videos can be reused each year.
5) Our social following continues to grow, on Twitter, Facebook and Instagram.
6) We continue to work with NHS England and have held meetings with our medical board with Anthony Prudhoe, National Commissioner for Children and Womens Cancer. However it was felt that CTT resources were probably better spent elsewhere.
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7) Our health Sketch on NF1 continues to grow and we are at over 170.,000 views
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8) Our website is growing and our ranking on search engines is rising.
We aim to continue the work that we have done and to continue to reach out to more families, children and young people affected by NF1
- 9) CTT continues to represent the UK in the European Patient Group NFPU, the European Conference was held virtually in Rotterdam.
10) We continue to fund any medics who are interested in attending any conferences or knowledge days. .
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11) Our Zoom sessions have taken off since Lockdown and we now have 10 regular sessions a week and parties and one offs in the holidays. These have been supported by grants.
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12) We continue to support particularly around the area of diagnosis – by our Count the Cals campaign, use of the Body Map, Dealing with Diagnosis Workshops and a story on how to tell your child about their diagnosis through our mascot Patches
FUTURE PLANS
We aim to continue the work that we have done and to continue to reach out to more families, children and young people affected by NF1
We aim to build on all our achievements and to reach out to more families, children and young people affected by NF1 and to continue to raise the profile of NF and Childhood Tumour Trust (CTT) and to work on a pathway of care with the NHS for children with NF1.
Public Benefit
The Trustees have considered their duty set out in Section 17 of the Charities Act 2011 to have due regard to public benefit guidance published by the Commission, and in their opinion the foregoing report on the achievements and performance demonstrates that they have compiled therewith.
FINANCIAL REVIEW
Financial Position
The Treasurer reported that the year had been financially stable and CTT had achieved all it had set out to do.
Receipts in the second year were £70,454.64 and payments were £54,413.89 resulting in a surplus of
£16,040.75
Reserves and Investment Policies
Childhood Tumour Trust will continue to build up its reserves to enable the Charity to fulfil its objectives and financial plans
Approved by the Management Committee on… … and signed on their behalf by
V. Martin ……………………………………… Dated…[2] …[4 ] …[J] …[an] …[u] …[a] …[ry] …[2] … 0…22
(Trustee)
;
TO THE ACCOUNTS FOR THE YEAR ENDED 31ST MARCH 2021
1. Receipts and Payments accounts
Receipts and payments accounts are statements that summarise the movement of cash into and out of the charity during the financial year. In this context "cash" includes cash equivalents, for example, bank accounts where cash can be readily withdrawn to pay for debts as they become due.
2. Trustees’ remuneration and benefits
Trustees received no remuneration or benefits in this period.
Trustees' expenses
During the year expense claims were paid to the trustees V. Martin, M. Pomfret and Carly Jim
3. Previous period
comparison Receipts have decreased by 5% Payments have decreased by 7%
4. Restricted fund
These are funds given to the charity, subject to specific restrictions set by the donor, but still within the