| REFERENCE AND ADMINISTRATIVE DETAILS | REFERENCE AND ADMINISTRATIVE DETAILS | |
|---|---|---|
| Trustees | Mrs A Fielding | Resigned Chair February 2021 |
| Mrs T Amiss | ||
| Mrs T Bueser | Appointed January 2020 | |
| Mr G Favier | ||
| Mr C Horwood | ||
| Mr S Kirkham | ||
| Dr I McPherson OBE | ||
| Mrs J O'Connell | ||
| Mr E Power | Appointed January 2020 | |
| Mrs A Smyth | Appointed January 2020 | |
| Mrs R Sutton | Appointed June 2020 | |
| Appointed Chair February 2021 | ||
| Professor A Tickell | ||
| Mr P Thomas | Treasurer | |
| Chief Executive Officer | Mr J Rose | |
| Principal Address | 75A Woodside Road | |
| Amersham | ||
| Buckinghamshire | ||
| HP6 6AA | ||
| Bankers | CafCash Limited | |
| Kings Hill | ||
| West Melling | ||
| Kent | ||
| ME19 4TA | ||
| Lloyds | ||
| 82 High Street | ||
| Rickmansworth | ||
| Hertfordshire | ||
| WD31AG | ||
| Auditors | Seymour Taylor Audit Limited | |
| Registered Auditors | ||
| 57 London Road | ||
| High Wycombe | ||
| Buckinghamshire | ||
| HP11 IBS | ||
| Charity number | 1164263 |
| 2020 | 2019 | ||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | funds | funds | funds | ||
| Notes | £ |
£ | £ | £ | |
| INCOME AND ENDOWMENTS FROM | |||||
| Donations and legacies | 2 | 419,483 | 351,172 | 770,655 | 849,225 |
| Investment income | 3 | 1,174 | 1,174 | 502 | |
| Total | 420,657 | 351,172 | 771,829 | 849,727 | |
| EXPENDITURE ON | |||||
| Raising funds | 4 | 271,045 | 134 | 271,179 | 309,167 |
| Charitable activities | 5 | ||||
| Providing support | 113,857 | 205,491 | 319,348 | 232,978 | |
| Public and medical education | 52,461 | 20,213 | 72,674 | 150,818 | |
| Campaigning | 34,290 | 13,759 | 48,049 | 48,455 | |
| Research | 15,538 | 1,646 | 17,184 | 297,439 | |
| Other | 59,819 | 5,108 | 64,927 | 75,378 | |
| Total | 547,010 | 246,351 | 793,361 | 1,114,235 | |
| NET INCOME/(EXPENDITURE) | (126,353) | 104,821 | (21,532) | (264,508) | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 457,553 | 86,713 | 544,266 | 808,774 | |
| TOTAL FUNDS CARRIED FORWARD | 331,200 | 191,534 | 522,734 | 544,266 |
2020 |
2019 |
||||
|---|---|---|---|---|---|
| Unrestricted | Restricted | Total | Total | ||
| fund | funds | funds | funds | ||
| Notes | £ |
£ | £ | £ | |
| FIXED ASSETS | |||||
| Tangible assets | 11 | 8,857 | 8,857 | 6,545 | |
| CURRENT ASSETS | |||||
| Debtors: amounts falling due within one year | 12 | 161,908 | 161,908 | 120,153 | |
| Debtors: amounts falling due after more than | |||||
| one year | 12 | 4,006 | - | 4,006 | 26,495 |
| Cash at bank and in hand | 249,151 | 191,534 | 440,685 | 438,350 | |
| 415,065 | 191,534 | 606,599 | 584,998 | ||
| CREDITORS | |||||
| Amounts falling due within one year | 13 | (92,722) | (92,722) | (47,277) | |
| NET CURRENT ASSETS | 322,343 | 191,534 | 513,877 | 537,721 | |
| TOTAL ASSETS LESS CURRENT | |||||
LIABILITIES |
331,200 |
191,534 |
522,734 |
544,266 |
|
| NET ASSETS | 331,200 | 191,534 | 522,734 | 544,266 | |
FUNDS |
15 |
||||
| Unrestricted funds | 331,200 | 457,553 | |||
| Restricted funds | 191,534 | 86,713 | |||
| TOTAL FUNDS | 522,734 | 544,266 |
| 2020 | 2019 | |
|---|---|---|
| Notes | ||
| Cash flows from operating activities | ||
| Cash generated from operations 1 |
6,224 | (167,410) |
| Net cash provided by/(used in) operating activities | 6,224 | (167,410) |
| Cash flows from Investing activities | ||
| Purchase of tangible fixed assets | (5,063) | (3,781) |
| Interest received | 1,174 | 502 |
| Net cash used in investing activities | (3,889) | (3,279) |
| Change in cash and cash equivalents | ||
| In the reporting period | 2,335 | (170,689) |
| Cash and cash equivalents at the | ||
| beginning of the reporting period | 438,350 | 609,039 |
| Cash and cash equivalents at the end | ||
| of the reporting period | 440,685 | 438,350 |
| ACTIVITIES | |
|---|---|
| 20202019 | |
| ££ | |
| Net expenditure for the reporting period (as per the Statement | |
| of Financial Activities) | (21,532) (264,508) |
| Adjustments for: | |
| Depreciation charges | 2,751 1,884 |
| Interest received | (1,174) (502) |
| (Increase)/decrease in debtors | (19,266) 105,832 |
| Increase/(decrease) in creditors | 45,445 (10,116) |
| Net cash provided by/(used in) operations | 6,224 (167,410) |
| ANALYSIS OF CHANGES IN NET FUNDS | |
|---|---|
| At 1.1.20 Cash flow At 31.12.20 |
|
| ££ | |
| Net cash | |
| Cash at bank and in hand | 438,350 2,335 440,685 |
| 438,350 2,335 440,685 |
|
| Total | 438,350 2,335 440,685 |
| 2. DONATIONS AND LEGACIES |
||
|---|---|---|
| 2020 | 2019 | |
| £ | £ | |
| Donations | 106,895 | 75,957 |
| Grants and legacies | 267,968 | 236,009 |
| Memberships and donations | 71,271 | 80,864 |
| Fundraising | 324,521 | 456,395 |
| 770,655 | 849,225 |
| 2020 | 2019 | |||
|---|---|---|---|---|
| Unrestricte | Restricted | Total | Total | |
| d | ||||
| Big Lottery Fund | 40,330 | |||
| The Lilley Benevolent Trust | 1,000 | |||
| Browns Solicitors | 60,800 | 60,800 | 30,000 | |
| Alexander Jansons Fund | - | - | 10,000 | |
| BBC Children in Need | 10,825 | 10,825 | 2,745 | |
| Big Lottery Fund - Community | ||||
| PeerSupport | 108,868 | 108,868 | 30,557 | |
| Heart Hive | 21,175 | |||
| Tesco | - | 1,000 | ||
| The Edward Gostling Foundation | - | 15,000 | 15,000 | 15,000 |
| Max`s Foundation | 14,776 | 14,776 | 15,276 | |
| Cunningham Family Trust | 10,000 | 10,000 | 5,000 | |
| BP Foundation US | 63 | |||
| John Mason Raven (dec'd) Trust | 50,000 | |||
| Pfizer Ltd | - | 21,100 | 21,100 | |
| MyokardiaNistra IE UK | 10,000 | 10,000 | ||
| The Moss Family Charitable Trust | 1,000 | 1,000 | ||
| European Consultancy | 6,356 | 6,356 | ||
| Total Grants | 17,356 | 241,369 | 258,725 | 222,146 |
| Total Legacies | 4,000 | 13,863 | ||
| Coronavirus Job Retention Scheme | 5,243 | - | ||
| 267,968 | 236,009 |
| 3. | INVESTMENT INCOME | ||
|---|---|---|---|
| 2020 | 2019 | ||
| £ | £ | ||
| Deposit account interest | 1,174 | 502 | |
| 4. | RAISING FUNDS | ||
| Raising donationsand legacies | |||
| 2020 | 2019 | ||
| £ | £ | ||
| Staff costs | 175,069 | 175,030 | |
| Rates and water | 605 | 304 | |
| Insurance | 926 | - | |
| Postage and stationery | 4,839 | 3,525 | |
| Sundries | 146 | 243 | |
| Event costs | 31,950 | 55,304 | |
| Marketing | 23,122 | 28,661 | |
| Travel and subsistence | 56 | 1,801 | |
| Computer | 3,456 | 4,642 | |
| Recruitment | 7,692 | 5,309 | |
| Staff training | - | 107 | |
| Rent | 9,486 | 9,489 | |
| Professional fees | 2,777 | 8,745 | |
| Donation charges | 6,512 | 11,703 | |
| Bank charges | 3,481 | 3,250 | |
| Subscriptions | 238 | 198 | |
| Depreciation | 824 | 856 | |
| 271,179 | 309,167 |
| CHARITABLE ACTIVITIES COSTS | |||
|---|---|---|---|
| Grant | |||
| funding of | |||
| activities | |||
| Direct | (see note | ||
| Costs | 6) | Totals | |
| £ | £ | £ | |
| Providing support | 319,348 | - | 319,348 |
| Public and medical education | 72,674 | 72,674 | |
| Campaigning | 48,049 | 48,049 | |
| Research | 16,538 | 1,646 | 17,184 |
| 455,609 | 1,646 | 457,255 |
| GRANTS PAYABLE | |
|---|---|
| 2020 2019 |
|
| ££ | |
| Research | 1,646 264,200 |
| The following Grants were paid to Institutions during the | year; |
|---|---|
| 2020 2019 |
|
| £ £ |
|
| Royal Brompton Hospital | 92,500 |
| Imperial College Hospital | 39,284 |
| Alexander Janson's Myocarditis | 1,646 132,416 |
| Total | 1,646 264,200 |
| SUPPORT COSTS | |||
|---|---|---|---|
| Governance | |||
| Management | costs | Totals | |
| F- | |||
| Other resources expended | 59,877 | 5,050 | 64,927 |
| General Governance | General Governance | |
|---|---|---|
| Support function Basis of apportionment |
||
| £ £ |
||
| Wages | 25,806 | The duties to which they relate |
| Property related expenses | 10,756 |
Floor space |
| General office and | ||
| administration | 22,847 | - Specific support costs |
| Legal and professional fees | - Specific support costs |
|
| Bank charges | 102 | - General charges |
| Depreciation | 366 | - Floor space |
| Audit fees | -5,050 Governance |
|
| Total - 59,8775,050 |
| STAFF COSTS | ||
|---|---|---|
| 2020 | 2019 | |
| £ | £ | |
| Wages and salaries | 482,236 | 443,061 |
| Social security costs | 39,020 | 40,145 |
| Other pension costs | 13,463 | 11,614 |
| 534,719 | 494,820 |
| Transactions with key management personnel | |
|---|---|
| 2020 2019 |
|
| £F- | |
| Total compensation of key management personnel | 64,297 63,036 |
| The average monthly number of employees during the year was as follows: | |
| 2020 2019 |
|
| 1820 |
£60,000 |
was: |
|
|---|---|---|
| 2020 2019 |
||
| £60,001 | -P-70,000 | 11 |
| 11. | TANGIBLE FIXED ASSETS | |
|---|---|---|
| Computer | ||
| equipment | ||
| COST | ||
| At 1 January 2020 | 23,903 | |
| Additions | 5,063 | |
| At 31 December 2020 | 28,966 | |
| DEPRECIATION | ||
| At 1 January 2020 | 17,358 | |
| Charge for year | 2,751 | |
| At 31 December 2020 | 20,109 | |
| NET BOOK VALUE | ||
| At 31 December 2020 | 8,857 | |
| At 31 December 2019 | 6,545 | |
| 12. | DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |
| 2020 2019 |
||
| ££ | ||
| Trade debtors | 15,982- | |
| Prepayments and accrued income | 145,926 120,153 |
|
| 161,908 120,153 |
||
| 13. | CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR | |
| 2020 2019 |
||
| ££ | ||
| Trade creditors | 8,503 4,132 |
|
| Social security and other taxes | 12,312 8,982 |
|
| Other creditors | 4,018 2,795 |
|
| Accruals and deferred income | 67,889 31,368 |
|
| 92,722 47,277 |
| 2020 | 2019 | |||
|---|---|---|---|---|
| £ | £ | |||
| Within one year | 33,393 | 23,468 | ||
| Between one and five years | 105,600 | 3,911 | ||
| In more than five years | 129,800 | 1 | ||
| 268,793 | 27,379 | |||
| 15. | MOVEMENT IN FUNDS | |||
| Net | ||||
| movement | At | |||
| At 1.1.20 | in funds | 31.12.20 | ||
| £ | £ | £ | ||
| Unrestricted funds | ||||
| General fund | 457,553 | (126,353) | 331,200 | |
| Restricted funds | ||||
| Medical education | 22,600 | (12,582) | 10,018 | |
| Providing support helpline | 164 | (164) | - | |
| Youth services | 6,664 | (2,690) | 3,974 | |
| West Midlands support fund | 924 | 924 | ||
| AlexanderJanson's Foundation | 116 | 1,144 | 1,260 | |
| BBC Children in Need | 2,937 | 1,377 | 4,314 | |
| Heart Hive | 1,891 | - | 1,891 | |
| Max's Foundation | 11,755 | 2,174 | 13,929 | |
| Community Peer Support (National | ||||
| Lottery Community Fund) | 4,662 | (4,662) | ||
| Building Capabilities (National Lottery | ||||
| Community Fund) | 25,000 | (7,156) | 17,844 | |
| Online Medical Education | 10,000 | 9,574 | 19,574 | |
| Advocacy | 27,803 | 27,803 | ||
| PPCM Campaign | - | 4,941 | 4,941 | |
| BLF Helpline | 20,572 | 20,572 | ||
| Building the Community | _ | 64,490 | 64,490 | |
| 86,713 | 104,821 | 191,534 | ||
| TOTAL FUNDS | 544,266 | (21,532) | 522,734 |
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 420,657 | (547,010) | (126,353) |
| Restricted funds | |||
| Medical education | 179 | (12,761) | (12,582) |
| Providing support helpline | 30,000 | (30,164) | (164) |
| Youth services | 15,000 | (17,690) | (2,690) |
| Alexander Janson's Foundation | 2,924 | (1,780) | 1,144 |
| BBC Children in Need | 10,825 | (9,448) | 1,377 |
| Max's Foundation | 14,776 | (12,602) | 2,174 |
| Community Peer Support (National | |||
| Lottery Community Fund) | 63,218 | (67,880) | (4,662) |
| Building Capabilities (National Lottery | |||
| Community Fund) | (7,156) | (7,156) | |
| Online Medical Education | 30,000 | (20,426) | 9,574 |
| Advocacy PPCM Campaign |
51,900 18,700 |
(24,097) (13,759) |
27,803 4,941 |
| BLF Helpline | 45,650 | (25,078) | 20,572 |
| Building the Community | 68,000 | (3,510) | 64,490 |
| 351,172 | (246,351) | 104,821 | |
| TOTAL FUNDS | 771,829 | (793,361) | (21,532) |
| Comparatives for movement in funds | |||
|---|---|---|---|
| Net | |||
| movement | At | ||
| At 1.1.19 | in funds | 31.12.19 | |
| Unrestricted funds | |||
| General fund | 550,909 | (93,356) | 457,553 |
| Restricted funds | |||
| Medical education | 23,049 | (449) | 22,600 |
| Providing support helpline | - | 164 | 164 |
| Youth services | 10,156 | (3,492) | 6,664 |
| BLF Heart to Heart Project | 2,366 | (2,366) | - |
| West Midlands support fund | 924 | - | 924 |
| Alexander Janson's Foundation | 210,390 | (210,274) | 116 |
| BBC Children in Need | 10,980 | (8,043) | 2,937 |
| Heart Hive | 1,891 | 1,891 | |
| Max's Foundation | 11,755 | 11,755 | |
| Community Peer Support (National | |||
| Lottery Community Fund) | 4,662 | 4,662 | |
| Building Capabilities (National Lottery | |||
| Community Fund) | - | 25,000 | 25,000 |
| Online Medical Education | - | 10,000 | 10,000 |
| 257,865 | (171,152) | 86,713 | |
| TOTAL FUNDS | 808,774 | (264,508) | 544,266 |
| Incoming | Resources | Movement | |
|---|---|---|---|
| resources | expended | in funds | |
| £ | £ | £ | |
| Unrestricted funds | |||
| General fund | 622,171 | (715,527) | (93,356) |
| Restricted funds | |||
| Medical education | (449) | (449) | |
| Providing support helpline | 30,000 | (29,836) | 164 |
| Youth services | 15,000 | (18,492) | (3,492) |
| BLF Heart to Heart Project | 40,330 | (42,696) | (2,366) |
| AlexanderJanson's Foundation | 41,473 | (251,747) | (210,274) |
| BBC Children in Need | 2,745 | (10,788) | (8,043) |
| Tesco's Community Groundwork Fund | 1,000 | (1,000) | - |
| Heart Hive | 41,175 | (39,284) | 1,891 |
| Max's Foundation | 15,276 | (3,521) | 11,755 |
| Community Peer Support (National | |||
| Lottery Community Fund) | 5,557 | (895) | 4,662 |
| Building Capabilities (National Lottery | |||
| Community Fund) | 25,000 | 25,000 | |
| Online Medical Education | 10,000 | 10,000 | |
| 227,556 | (398,708) | (171,152) | |
| TOTAL FUNDS | 849,727 | (1,114,235) | (264,508) |