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|REFERENCE AND ADMINISTRATIVE DETAILS|REFERENCE AND ADMINISTRATIVE DETAILS||
|---|---|---|
|Trustees|Mrs A Fielding|Resigned Chair February 2021|
||Mrs T Amiss||
||Mrs T Bueser|Appointed January 2020|
||Mr G Favier||
||Mr C Horwood||
||Mr S Kirkham||
||Dr I McPherson OBE||
||Mrs J O'Connell||
||Mr E Power|Appointed January 2020|
||Mrs A Smyth|Appointed January 2020|
||Mrs R Sutton|Appointed June 2020|
|||Appointed Chair February 2021|
||Professor A Tickell||
||Mr P Thomas|Treasurer|
|Chief Executive Officer|Mr J Rose||
|Principal Address|75A Woodside Road||
||Amersham||
||Buckinghamshire||
||HP6 6AA||
|Bankers|CafCash Limited||
||Kings Hill||
||West Melling||
||Kent||
||ME19 4TA||
||Lloyds||
||82 High Street||
||Rickmansworth||
||Hertfordshire||
||WD31AG||
|Auditors|Seymour Taylor Audit Limited||
||Registered Auditors||
||57 London Road||
||High Wycombe||
||Buckinghamshire||
||HP11 IBS||
|Charity number|1164263||



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|||||2020|2019|
|---|---|---|---|---|---|
|||Unrestricted|Restricted|Total|Total|
|||fund|funds|funds|funds|
||Notes|<br>£|£|£|£|
|INCOME AND ENDOWMENTS FROM||||||
|Donations and legacies|2|419,483|351,172|770,655|849,225|
|Investment income|3|1,174||1,174|502|
|Total||420,657|351,172|771,829|849,727|
|EXPENDITURE ON||||||
|Raising funds|4|271,045|134|271,179|309,167|
|Charitable activities|5|||||
|Providing support||113,857|205,491|319,348|232,978|
|Public and medical education||52,461|20,213|72,674|150,818|
|Campaigning||34,290|13,759|48,049|48,455|
|Research||15,538|1,646|17,184|297,439|
|Other||59,819|5,108|64,927|75,378|
|Total||547,010|246,351|793,361|1,114,235|
|NET INCOME/(EXPENDITURE)||(126,353)|104,821|(21,532)|(264,508)|
|RECONCILIATION OF FUNDS||||||
|Total funds brought forward||457,553|86,713|544,266|808,774|
|TOTAL FUNDS CARRIED FORWARD||331,200|191,534|522,734|544,266|





## 

|||||`2020`|`2019`|
|---|---|---|---|---|---|
|||Unrestricted|Restricted|Total|Total|
|||fund|funds|funds|funds|
||Notes|<br>£|£|£|£|
|FIXED ASSETS||||||
|Tangible assets|11|8,857||8,857|6,545|
|CURRENT ASSETS||||||
|Debtors: amounts falling due within one year|12|161,908||161,908|120,153|
|Debtors: amounts falling due after more than||||||
|one year|12|4,006|-|4,006|26,495|
|Cash at bank and in hand||249,151|191,534|440,685|438,350|
|||415,065|191,534|606,599|584,998|
|CREDITORS||||||
|Amounts falling due within one year|13|(92,722)||(92,722)|(47,277)|
|NET CURRENT ASSETS||322,343|191,534|513,877|537,721|
|TOTAL ASSETS LESS CURRENT||||||
|`LIABILITIES`||`331,200`|`191,534`|`522,734`|`544,266`|
|NET ASSETS||331,200|191,534|522,734|544,266|
|`FUNDS`|`15`|||||
|Unrestricted funds||||331,200|457,553|
|Restricted funds||||191,534|86,713|
|TOTAL FUNDS||||522,734|544,266|





## 

||2020|2019|
|---|---|---|
|Notes|||
|Cash flows from operating activities|||
|Cash generated from operations<br>1|6,224|(167,410)|
|Net cash provided by/(used in) operating activities|6,224|(167,410)|
|Cash flows from Investing activities|||
|Purchase of tangible fixed assets|(5,063)|(3,781)|
|Interest received|1,174|502|
|Net cash used in investing activities|(3,889)|(3,279)|
|Change in cash and cash equivalents|||
|In the reporting period|2,335|(170,689)|
|Cash and cash equivalents at the|||
|beginning of the reporting period|438,350|609,039|
|Cash and cash equivalents at the end|||
|of the reporting period|440,685|438,350|





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## 

|ACTIVITIES||
|---|---|
||20202019|
||££|
|Net expenditure for the reporting period (as per the Statement||
|of Financial Activities)|(21,532)<br>(264,508)|
|Adjustments for:||
|Depreciation charges|2,751<br>1,884|
|Interest received|(1,174)<br>(502)|
|(Increase)/decrease in debtors|(19,266)<br>105,832|
|Increase/(decrease) in creditors|45,445<br>(10,116)|
|Net cash provided by/(used in) operations|6,224<br>(167,410)|



|ANALYSIS OF CHANGES IN NET FUNDS||
|---|---|
||At 1.1.20<br>Cash flow<br>At 31.12.20|
||££|
|Net cash||
|Cash at bank and in hand|438,350<br>2,335<br>440,685|
||438,350<br>2,335<br>440,685|
|Total|438,350<br>2,335<br>440,685|





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## 

|2.<br>DONATIONS AND LEGACIES|||
|---|---|---|
||2020|2019|
||£|£|
|Donations|106,895|75,957|
|Grants and legacies|267,968|236,009|
|Memberships and donations|71,271|80,864|
|Fundraising|324,521|456,395|
||770,655|849,225|



||||2020|2019|
|---|---|---|---|---|
||Unrestricte|Restricted|Total|Total|
||d||||
|Big Lottery Fund||||40,330|
|The Lilley Benevolent Trust||||1,000|
|Browns Solicitors||60,800|60,800|30,000|
|Alexander Jansons Fund||-|-|10,000|
|BBC Children in Need||10,825|10,825|2,745|
|Big Lottery Fund - Community|||||
|PeerSupport||108,868|108,868|30,557|
|Heart Hive||||21,175|
|Tesco|||-|1,000|
|The Edward Gostling Foundation|-|15,000|15,000|15,000|
|Max`s Foundation||14,776|14,776|15,276|
|Cunningham Family Trust|10,000||10,000|5,000|
|BP Foundation US||||63|
|John Mason Raven (dec'd) Trust||||50,000|
|Pfizer Ltd|-|21,100|21,100||
|MyokardiaNistra IE UK||10,000|10,000||
|The Moss Family Charitable Trust|1,000||1,000||
|European Consultancy|6,356||6,356||
|Total Grants|17,356|241,369|258,725|222,146|
|Total Legacies|||4,000|13,863|
|Coronavirus Job Retention Scheme|||5,243|-|
||||267,968|236,009|





|3.|INVESTMENT INCOME|||
|---|---|---|---|
|||2020|2019|
|||£|£|
||Deposit account interest|1,174|502|
|4.|RAISING FUNDS|||
||Raising donations**and legacies**|||
|||2020|2019|
|||£|£|
||Staff costs|175,069|175,030|
||Rates and water|605|304|
||Insurance|926|-|
||Postage and stationery|4,839|3,525|
||Sundries|146|243|
||Event costs|31,950|55,304|
||Marketing|23,122|28,661|
||Travel and subsistence|56|1,801|
||Computer|3,456|4,642|
||Recruitment|7,692|5,309|
||Staff training|-|107|
||Rent|9,486|9,489|
||Professional fees|2,777|8,745|
||Donation charges|6,512|11,703|
||Bank charges|3,481|3,250|
||Subscriptions|238|198|
||Depreciation|824|856|
|||271,179|309,167|



## 

|CHARITABLE ACTIVITIES COSTS||||
|---|---|---|---|
|||Grant||
|||funding of||
|||activities||
||Direct|(see note||
||Costs|6)|Totals|
||£|£|£|
|Providing support|319,348|-|319,348|
|Public and medical education|72,674||72,674|
|Campaigning|48,049||48,049|
|Research|16,538|1,646|17,184|
||455,609|1,646|457,255|





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## 

|GRANTS PAYABLE||
|---|---|
||2020<br>2019|
||££|
|Research|1,646<br>264,200|



|The following Grants were paid to Institutions during the|year;|
|---|---|
||2020<br>2019|
||£<br>£|
|Royal Brompton Hospital|92,500|
|Imperial College Hospital|39,284|
|Alexander Janson's Myocarditis|1,646 132,416|
|Total|1,646 264,200|



## 

|SUPPORT COSTS||||
|---|---|---|---|
|||Governance||
||Management|costs|Totals|
||||F-|
|Other resources expended|59,877|5,050|64,927|



## 

||General Governance|General Governance|
|---|---|---|
||Support<br>function<br>Basis of apportionment||
||£<br>£||
|Wages|25,806|The duties to which they relate|
|Property related expenses|<br>10,756|Floor space|
|General office and|||
|administration|22,847|-<br>Specific support costs|
|Legal and professional fees||-<br>Specific support costs|
|Bank charges|102|-<br>General charges|
|Depreciation|366|-<br>Floor space|
|Audit fees|-5,050<br>Governance||
||Total - 59,8775,050||





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|STAFF COSTS|||
|---|---|---|
||2020|2019|
||£|£|
|Wages and salaries|482,236|443,061|
|Social security costs|39,020|40,145|
|Other pension costs|13,463|11,614|
||534,719|494,820|



|Transactions with key management personnel||
|---|---|
||2020<br>2019|
||£F-|
|Total compensation of key management personnel|64,297<br>63,036|
|The average monthly number of employees during the year was as follows:||
||2020<br>2019|
||1820|



|<br>£60,000|<br>was:||
|---|---|---|
|||2020<br>2019|
|£60,001|-P-70,000|11|





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|11.|TANGIBLE FIXED ASSETS||
|---|---|---|
|||Computer|
|||equipment|
||COST||
||At 1 January 2020|23,903|
||Additions|5,063|
||At 31 December 2020|28,966|
||DEPRECIATION||
||At 1 January 2020|17,358|
||Charge for year|2,751|
||At 31 December 2020|20,109|
||NET BOOK VALUE||
||At 31 December 2020|8,857|
||At 31 December 2019|6,545|
|12.|DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR||
|||2020<br>2019|
|||££|
||Trade debtors|15,982-|
||Prepayments and accrued income|145,926<br>120,153|
|||161,908<br>120,153|
|13.|CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR||
|||2020<br>2019|
|||££|
||Trade creditors|8,503<br>4,132|
||Social security and other taxes|12,312<br>8,982|
||Other creditors|4,018<br>2,795|
||Accruals and deferred income|67,889<br>31,368|
|||92,722<br>47,277|





## 

## 

||||2020|2019|
|---|---|---|---|---|
||||£|£|
||Within one year||33,393|23,468|
||Between one and five years||105,600|3,911|
||_In more than five years_||_129,800_|_1_|
||||268,793|27,379|
|15.|MOVEMENT IN FUNDS||||
||||Net||
||||movement|At|
|||At 1.1.20|in funds|31.12.20|
|||£|£|£|
||Unrestricted funds||||
||General fund|457,553|(126,353)|331,200|
||Restricted funds||||
||Medical education|22,600|(12,582)|10,018|
||Providing support helpline|164|(164)|-|
||Youth services|6,664|(2,690)|3,974|
||West Midlands support fund|924||924|
||AlexanderJanson's Foundation|116|1,144|1,260|
||BBC Children in Need|2,937|1,377|4,314|
||Heart Hive|1,891|-|1,891|
||Max's Foundation|11,755|2,174|13,929|
||Community Peer Support (National||||
||Lottery Community Fund)|4,662|(4,662)||
||Building Capabilities (National Lottery||||
||Community Fund)|25,000|(7,156)|17,844|
||Online Medical Education|10,000|9,574|19,574|
||Advocacy||27,803|27,803|
||PPCM Campaign|-|4,941|4,941|
||BLF Helpline||20,572|20,572|
||Building the Community|_|64,490|64,490|
|||86,713|104,821|191,534|
||TOTAL FUNDS|544,266|(21,532)|522,734|





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||Incoming|Resources|Movement|
|---|---|---|---|
||resources|expended|in funds|
||£|£|£|
|Unrestricted funds||||
|General fund|420,657|(547,010)|(126,353)|
|Restricted funds||||
|Medical education|179|(12,761)|(12,582)|
|Providing support helpline|30,000|(30,164)|(164)|
|Youth services|15,000|(17,690)|(2,690)|
|Alexander Janson's Foundation|2,924|(1,780)|1,144|
|BBC Children in Need|10,825|(9,448)|1,377|
|Max's Foundation|14,776|(12,602)|2,174|
|Community Peer Support (National||||
|Lottery Community Fund)|63,218|(67,880)|(4,662)|
|Building Capabilities (National Lottery||||
|Community Fund)||(7,156)|(7,156)|
|Online Medical Education|30,000|(20,426)|9,574|
|Advocacy<br>PPCM Campaign|51,900<br>18,700|(24,097)<br>(13,759)|27,803<br>4,941|
|BLF Helpline|45,650|(25,078)|20,572|
|Building the Community|68,000|(3,510)|64,490|
||351,172|(246,351)|104,821|
|TOTAL FUNDS|771,829|(793,361)|(21,532)|





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|Comparatives for movement in funds||||
|---|---|---|---|
|||Net||
|||movement|At|
||At 1.1.19|in funds|31.12.19|
|Unrestricted funds||||
|General fund|550,909|(93,356)|457,553|
|Restricted funds||||
|Medical education|23,049|(449)|22,600|
|Providing support helpline|-|164|164|
|Youth services|10,156|(3,492)|6,664|
|BLF Heart to Heart Project|2,366|(2,366)|-|
|West Midlands support fund|924|-|924|
|Alexander Janson's Foundation|210,390|(210,274)|116|
|BBC Children in Need|10,980|(8,043)|2,937|
|Heart Hive||1,891|1,891|
|Max's Foundation||11,755|11,755|
|Community Peer Support (National||||
|Lottery Community Fund)||4,662|4,662|
|Building Capabilities (National Lottery||||
|Community Fund)|-|25,000|25,000|
|Online Medical Education|-|10,000|10,000|
||257,865|(171,152)|86,713|
|TOTAL FUNDS|808,774|(264,508)|544,266|





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||Incoming|Resources|Movement|
|---|---|---|---|
||resources|expended|in funds|
||£|£|£|
|Unrestricted funds||||
|General fund|622,171|(715,527)|(93,356)|
|Restricted funds||||
|Medical education||(449)|(449)|
|Providing support helpline|30,000|(29,836)|164|
|Youth services|15,000|(18,492)|(3,492)|
|BLF Heart to Heart Project|40,330|(42,696)|(2,366)|
|AlexanderJanson's Foundation|41,473|(251,747)|(210,274)|
|BBC Children in Need|2,745|(10,788)|(8,043)|
|Tesco's Community Groundwork Fund|1,000|(1,000)|-|
|Heart Hive|41,175|(39,284)|1,891|
|Max's Foundation|15,276|(3,521)|11,755|
|Community Peer Support (National||||
|Lottery Community Fund)|5,557|(895)|4,662|
|Building Capabilities (National Lottery||||
|Community Fund)|25,000||25,000|
|Online Medical Education|10,000||10,000|
||227,556|(398,708)|(171,152)|
|TOTAL FUNDS|849,727|(1,114,235)|(264,508)|





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