Sudep Action
Epilepsy Bereaved
- Country
- England & Wales
- Charity number
- 1164250
- Status
- Registered
- Registered
- Nov. 4, 2015
- Legal form
- CIO
Address
- Address
- Sudep Action
18 Newbury Street
Wantage
OX12 8DA
Contact
- Phone
- 01235 772850
- info@sudep.org
- Website
Activities
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Objects: The Promotion Of Any Charitable Purpose Directed To Supporting And Alleviating The Mental And Physical Distress Of Those Who Are Bereaved Following The Death Of Someone With Epilepsy Including Research, Education And Influencing Change To Improve The Treatment Of Bereaved Families.the Promotion Of Any Charitable Purpose To Improve Understanding And Communication To People With Epilepsy, Their Families, Professionals, Policy-Makers And Other Interested Parties Concerning Prevention Of Sudden Unexpected Death In Epilepsy (Sudep) And All Epilepsy-Related Deaths Including Research, Education And Influencing Change To Improve The Treatment Of Epilepsy, Recognition And Management Of Risks And, In Due Course, To Minimise The Occurrence Of Such Deaths.
Classification
- How
- Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- The Advancement Of Health Or Saving Of Lives, Other Charitable Purposes
- Who
- Other Defined Groups
Geography
- Country
- Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £517,612 | £695,986 | £382,364 | 10 |
| March 31, 2024 | £634,046 | £513,094 | £560,738 | 10 |
| March 31, 2023 | £505,663 | £413,153 | £439,786 | 9 |
| March 31, 2022 | £386,724 | £447,165 | - | - |
| March 31, 2021 | £501,183 | £425,524 | £407,717 | 10 |
Trustees
| Name | Appointed |
|---|---|
| Dr JOHN RAYMOND HIRST (Chair) | March 2, 2017 |
| Alexandra Eleanor Stirling | March 2, 2017 |
| David James Raywood Sibree | July 16, 2020 |
| Dr Judith MAry Shakespeare | Nov. 7, 2019 |
| Dr Rhys Thomas | Nov. 13, 2025 |
| Dr William Owen Pickrell | Feb. 5, 2025 |
| Paul Warren | May 14, 2026 |
| Professor Josemir W Sander | May 13, 2025 |
| Rachel Shah | March 2, 2017 |
| Simon Lees | March 2, 2017 |
Linked charities
- Epilepsy Bereaved (1164250-1)