OpenCharities

Sudep Action

Epilepsy Bereaved

Country
England & Wales
Charity number
1164250
Status
Registered
Registered
Nov. 4, 2015
Legal form
CIO

Address

Address
SUDEP ACTION
18 Newbury Street
WANTAGE
OX12 8DA

Contact

Activities

SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.

Objects: The Promotion Of Any Charitable Purpose Directed To Supporting And Alleviating The Mental And Physical Distress Of Those Who Are Bereaved Following The Death Of Someone With Epilepsy Including Research, Education And Influencing Change To Improve The Treatment Of Bereaved Families.the Promotion Of Any Charitable Purpose To Improve Understanding And Communication To People With Epilepsy, Their Families, Professionals, Policy-Makers And Other Interested Parties Concerning Prevention Of Sudden Unexpected Death In Epilepsy (sudep) And All Epilepsy-Related Deaths Including Research, Education And Influencing Change To Improve The Treatment Of Epilepsy, Recognition And Management Of Risks And, In Due Course, To Minimise The Occurrence Of Such Deaths.

Classification

How
Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Other Charitable Purposes
Who
Other Defined Groups

Areas of operation

Country
Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure Assets Employees
March 31, 2025 £517,612 £695,986 £382,364 10
March 31, 2024 £634,046 £513,094 £560,738 10
March 31, 2023 £505,663 £413,153 £439,786 9
March 31, 2022 £386,724 £447,165
March 31, 2021 £501,183 £425,524 £407,717 10

Trustees

Name Appointed
Dr JOHN RAYMOND HIRST (Chair) March 2, 2017
Alexandra Eleanor Stirling March 2, 2017
David James Raywood Sibree July 16, 2020
Dr Judith MAry Shakespeare Nov. 7, 2019
Dr Rhys Thomas Nov. 13, 2025
Dr William Owen Pickrell Feb. 5, 2025
Professor Josemir W Sander May 13, 2025
Rachel Shah BA, ICAEW March 2, 2017
Simon Lees March 2, 2017