OpenCharities

SUDEP Action

Also known as: SUDEP Action Scotland. Epilepsy Bereaved

Country
Scotland
Charity number
SC047223
Status
Active
Reporting
Up to date Last filed Dec. 18, 2025. Filing history
Registered
March 7, 2017
Legal form
CIO (Charitable Incorporated Organisation, E&W)

Address

Address
18 Newbury Street
Wantage
Oxfordshire
OX12 8DA

Contact

Website
sudep.org
Screenshot of the SUDEP Action website

Activities

'It makes grants, donations or gifts to organisations','It carries out activities or services itself'

'the advancement of health','the saving of lives'

Beneficiaries: 'People with disabilities or health problems','No specific group, or for the benefit of the community'

Objectives: The objects of the CIO are: The promotion of any charitable purpose directed to supporting and alleviating the mental and physical distress of those who are bereaved following the death of someone with epilepsy including research, education and influencing change to improve the treatment of bereaved families. The promotion of any charitable purpose to improve understanding and communication to people with epilepsy, their families, professionals, policy-makers and other interested parties concerning prevention of Sudden Unexpected Death in Epilepsy (SUDEP) and all epilepsy related deaths including research, education and influencing change to improve the treatment of epilepsy, recognition and management of risks and, in due course, to minimise the occurrence of such deaths.

Geography

Main operating location
Outwith Scotland
Geographical spread
Scotland and other parts of the UK

Finances

Period end Filed Income Expenditure Employees
March 31, 2025 Dec. 18, 2025On time £517,612 £695,986 17
March 31, 2024 Dec. 19, 2024On time £634,046 £513,094 13
March 31, 2023 Dec. 20, 2023On time £505,663 £413,153 9
March 31, 2022 June 29, 2023180 days late £386,724 £447,165 10
March 31, 2021 Dec. 22, 2021On time £501,183 £425,524 10

Due dates are 9 months after the year end, OSCR's deadline, so they don't allow for any extension OSCR has granted.