# SUDEP ACTION

## Details

- **Country:** England & Wales
- **Charity number:** 1164250
- **Other names:** EPILEPSY BEREAVED
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Nov. 4, 2015
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1164250


## Contact

- **Address:** SUDEP ACTION, 18 Newbury Street, WANTAGE
- **Postcode:** OX12 8DA
- **Phone:** 01235772850
- **Email:** info@sudep.org
- **Website:** www.sudep.org



## Activities

**Objects:** THE PROMOTION OF ANY CHARITABLE PURPOSE DIRECTED TO SUPPORTING AND ALLEVIATING THE MENTAL AND PHYSICAL DISTRESS OF THOSE WHO ARE BEREAVED FOLLOWING THE DEATH OF SOMEONE WITH EPILEPSY INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF BEREAVED FAMILIES.THE PROMOTION OF ANY CHARITABLE PURPOSE TO IMPROVE UNDERSTANDING AND COMMUNICATION TO PEOPLE WITH EPILEPSY, THEIR FAMILIES, PROFESSIONALS, POLICY-MAKERS AND OTHER INTERESTED PARTIES CONCERNING PREVENTION OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP) AND ALL EPILEPSY-RELATED DEATHS INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF EPILEPSY, RECOGNITION AND MANAGEMENT OF RISKS AND, IN DUE COURSE, TO MINIMISE THE OCCURRENCE OF SUCH DEATHS.

**Activities:** SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.




## Classification

- **How:** Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Other Charitable Purposes
- **Who:** Other Defined Groups



## Areas of operation

- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £517612 | £695986 | £382364 | 10 |
| March 31, 2024 | £634046 | £513094 | £560738 | 10 |
| March 31, 2023 | £505663 | £413153 | £439786 | 9 |
| March 31, 2022 | £386724 | £447165 | — | — |
| March 31, 2021 | £501183 | £425524 | £407717 | 10 |



## Trustees

- **Dr JOHN RAYMOND HIRST** (Chair) — appointed March 2, 2017
- ALEXANDRA ELEANOR STIRLING — appointed March 2, 2017
- David James Raywood Sibree — appointed July 16, 2020
- Dr Judith MAry Shakespeare — appointed Nov. 7, 2019
- Dr Rhys Thomas — appointed Nov. 13, 2025
- Dr William Owen Pickrell — appointed Feb. 5, 2025
- Professor Josemir W Sander — appointed May 13, 2025
- Rachel Shah BA, ICAEW — appointed March 2, 2017
- SIMON LEES — appointed March 2, 2017