OpenCharities

Vhl Uk/ireland

Country
England & Wales
Charity number
1160381
Status
Registered
Registered
Feb. 9, 2015
Legal form
Other

Address

Address
47 Tiln Lane
Retford
DN22 6SN

Activities

The main activity of the charity is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.

Objects: To Relieve The Charitable Needs Of Persons Who Have Von Hippel-Lindau Syndrome (Vhl) And Similar Genetic Conditions Such As Hereditary Leiomyomatosis And Renal Cell Cancer (Hlrcc) And Birt-Hogg-Dube Syndrome (Bhd) And Their Families And Carers In The UK And Ireland For The Public Benefit In Particular But Not Exclusively By1)providing Support And Advice Regarding Their Genetic Conditions,2)providing Funds For Research Into The Genetic Conditions And For Equipment To Assist With Such Research,3)to Advance The Education Of The Public In All Matters Concerning The Genetic Conditions.

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives
Who
People With Disabilities

Geography

Country
Ireland, Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
April 5, 2025 £20,076 £38,915
April 5, 2024 £38,000 £1,900
April 5, 2023 £8,110 £21,514
April 5, 2022 £18,131 £801
April 5, 2021 £34,824 £60,619

Trustees

Name Appointed
Mark Ashley Lodge (Chair) Jan. 29, 2026
Charli Christina Diane Lawton May 1, 2026
Dr Antony Richard Horton Ph D May 7, 2015
Francesca Goddard June 11, 2020
Graham John Lovitt March 1, 2013
Janice Hepworth May 7, 2015
John Allan Hepworth May 22, 2016
Joyce Noreen Bonin May 26, 2026
Kathryn Chapman June 11, 2020
Kim Lara Vaughan June 11, 2020
Nancy Molyneaux-Finley March 11, 2024
Roxanne Mica Daphne Bonin Ba Hons Nov. 11, 2014
Tantara Fox-Stillwell June 11, 2020