2021-04-05-accounts - Vhl Uk/ireland

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ve UK/Ireland THE CURE FOR CANCER IS IN OUR GENES

ANNUAL ACCOUNTS

ANNUAL CHARITY REPORT

INDEPENDENT EXAMINER'S REPORT

Year Ended 5 April 2021

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“tg UK/Ireland
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THE CURE FOR CANCER IS IN OUR GENES

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Receipts and Payments Account (UK) for the Year Ended 5 April 2021
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05 April 2020 05 April 2021
£ £
Receipts:
25,330 Donations 34,442
4,604 Trading Activities 382
29,934 34,824
Payments:
40,000 Grants and Donations 60,000
534 Patient Support -
252 Subscriptions 72
515 Telephone, Internet and Postage 260
142 Fundraising Charges 287 60,619
41,443
=n Met Payments ee
68,295 Opening Balance 56,786
- 11,509 Net Payments - 25,795
56,786 Closing Balance 30,991
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THE CURE FOR CANCER IS IN QUR GENES

Chair's Annual Report 2020-2021

The charity has like many other charities had to adapt to the restrictions imposed to deal with the COVID-19 pandemic. All individual fund-raising events at locations were curtailed and there were relatively few on-line replacements. With fewer fund-raising events the demand for some on-line shop merchandise also decreased. Despite this there was one significant fundraiser organised by Charles White raising “£20K and just recently a legacy donation of £10K (to appear in the next year’s account reporting).

There were significant problems with the charity’s website which had allowed external information to be uploaded without the necessary controls. This combined with the web designer leaving the charity meant that it became a target for spammers and hackers. The decision was taken to rewrite the whole website using a professional website designer. He was able to restore all the significant historical information and now has a small annual maintenance contract so there should be no repeat of the previous problems.

The charity continues to support hosting of the websites for both the charity www.vhl-uk-ireland.ore and the HLRCC Family Alliance www.hirccinfo.org .The latter was upgraded to use SSL which improves its security. Note that the HLRCCFA is a project of the VHL Alliance.

The charity continues to provide a limited patient support service by telephone.

The charity increased by £20,000 each the two previous grant awards of £40,000 each to the Genetic Centre at Addenbrooke's, Cambridge under the stewardship of Professor Eamonn Maher. These increases enable the work of these projects to continue.

These projects are:

(1) a VHL patient registry and surveillance project; and (2) a VHL gene analysis of the 100,000 genome project data.

The fundraiser by Charles White enabled the charity to make a grant award of £20K to be made to the Crick’s Institute to support the specific VHL research work of Professor William Drake at St Bartholomew's Hospital. The project is Saturation Genome Editing to Define Genotype/Phenotype Relationships in VHL Disease.

It is hoped that with the lifting of COVID-19 restrictions the charity will be able to expand its fundraising activities back to its previous levels.

VHL UK/Ireland Charity is registered in England and Wales (1160381) and Ireland (20101039)

Report to the Trustees of the VHL UK/Ireland Charity Accounts for the Year Ended 5 April 2021

Respective responsibilities of trustees and examiner

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144 of the Charities Act 2011 (the Charities Act) and that an independent examination is needed.

It is my responsibility to:

- examine the accounts under section 145 of the Charities Act; * to follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the Charities Act; and
to state whether particular matters have come to my attention.

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from the trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion is given as to whether the accounts present a ‘true and fair view’ and the report is limited to those matters set out in the statement below.

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

(1) which gives me reasonable cause to believe that, in any material respect, the requirements:

- to keep accounting records in accordance with section 130 of the Charities Act: and * to prepare accounts which accord with the accounting records and comply with the accounting requirements of the Charities Act have not been met; or
(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding ofthe accounts to be reached, \

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PaukDavid Griffiths FCA y \ Pa Date: TM Meyeman2 252\
Hepworth Griffiths
Chartered Accountants
47 Grove Street
Retford
Nottinghamshire
DN22 6LA
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