# VHL UK/IRELAND

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1160381
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Feb. 9, 2015
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1160381


## Contact

- **Address:** 47 Tiln Lane, RETFORD
- **Postcode:** DN22 6SN
- **Phone:** 07762 525561
- **Email:** uk@vhl-uk-ireland.org
- **Website:** http://vhl-uk-ireland.org/



## Activities

**Objects:** TO RELIEVE THE CHARITABLE NEEDS OF PERSONS WHO HAVE VON HIPPEL-LINDAU SYNDROME (VHL) AND SIMILAR GENETIC CONDITIONS SUCH AS HEREDITARY LEIOMYOMATOSIS AND RENAL CELL CANCER (HLRCC) AND BIRT-HOGG-DUBE SYNDROME (BHD) AND THEIR FAMILIES AND CARERS IN THE UK AND IRELAND FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY BY1)PROVIDING SUPPORT AND ADVICE REGARDING THEIR GENETIC CONDITIONS,2)PROVIDING FUNDS FOR RESEARCH INTO THE GENETIC CONDITIONS AND FOR EQUIPMENT TO ASSIST WITH SUCH RESEARCH,3)TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THE GENETIC CONDITIONS.

**Activities:** The main activity of the charity  is raising funds through donations and fund-raising activities in order to fund specialised research into the conditions of VHL, BHD and HLRCC at centres of excellence in the UK and Ireland.The charity also provides personal support through telephone and social media to patients and carers with the above conditions and maintains a web-site.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Geography

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Mark Ashley Lodge** | Chair | Jan. 29, 2026 |
| Charli Christina Diane Lawton |  | May 1, 2026 |
| Dr Antony Richard Horton Ph D |  | May 7, 2015 |
| Francesca Goddard |  | June 11, 2020 |
| GRAHAM JOHN LOVITT |  | March 1, 2013 |
| JANICE HEPWORTH |  | May 7, 2015 |
| John Allan Hepworth |  | May 22, 2016 |
| Joyce Noreen Bonin |  | May 26, 2026 |
| Kathryn Chapman |  | June 11, 2020 |
| Kim Lara Vaughan |  | June 11, 2020 |
| Nancy Molyneaux-Finley |  | March 11, 2024 |
| ROXANNE MICA DAPHNE BONIN BA HONS |  | Nov. 11, 2014 |
| Tantara Fox-Stillwell |  | June 11, 2020 |




