2024-12-20-accounts - Avon Mesothelioma Foundation

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Trustees' Annual Report for the period

Period start date Period end date Day Month Year Day Month Year From 21 Dec 2023 To 20 12 2024

Section A Reference and administration details

Charity name Other names charity is known by AMF Registered charity number (if any) 1153290

Avon Mesothelioma Foundation

Charity's principal address Southmead Hospital Bristol Postcode BS10 5NB

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Nick Maskell	Chair
John Harvey	Independent member
NajRahman	Independent member
Anna Morley	Nurse representative
Chris Smith	Laytrustee
Deborah Walton	Nurse representative	Until 12/01/2024

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Section B Structure, governance and management

Description of the charity’s trusts

Type of governing document

AMF Charter

(eg. trust deed, constitution)

Charitable fund How the charity is constituted

(eg. trust, association, company)

Trustees are appointed after being proposed and voted on at the Annual Trustee selection methods General Meeting

(eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

policies and procedures adopted for the induction and training of trustees;
the charity’s organisational structure and any wider network with which the charity works;
relationship with any related parties;
trustees’ consideration of major risks and the system and procedures to manage them.

Section C Objectives and activities

AMF was established to help support patents and their families with mesothelioma, to aid research and fund essential equipment.

Summary of the objects of the charity set out in its Mesothelioma is a devastating disease with about 2700 new cases being governing document diagnosed every year. There is no cure and is life limiting and therefore research is paramount.

The AMF trustees will review applications for research grants and funding

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applications and aims to support top quality national and local research with an aim to improve treatment options and care for patients with this disease.

A previous grant application for the funding of 1 year of a 3 year PhD post (mesothelioma research) was paid = £45 353.15.

Another previous grant application for the funding of a long survivors of mesothelioma project (BAP1s and histology review is still ongoing – up to £10 000 awarded.

The following funding applications were reviewed by the Trustees and approved;

Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

validating a scoring system to predict time to disease progression in epithelioid mesothelioma = £7 290
support clinical fellow funding for Dr Alex Dipper – PhD in Malignant Pleural effusion management = £19 000

By agreeing to the above expenditure, the Trustees have kept in mind the Charity Commission’s guidance on public benefit. They have also considered maintaining a reserve of at least £50 000 in the AMF account.

The funding of the PhD student, the project in long survivors of mesothelioma and validating a scoring system will provide patients with an opportunity to participate in quality research projects which will aim to improve treatments and quality of life for patients with mesothelioma in the future.

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where relevant, about:

policy on grantmaking;
policy programme related investment;
contribution made by volunteers.

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Section D Achievements and performance

Summary of the main achievements of the charity during the year

The main achievement for AMF over this time period was the funding of a research registrar, Dr Geraldine Lynch, who commenced her PhD in mesothelioma research in August 2022 and continues to deliver high quality research in mesothelioma.

It has also helped to fund a PhD student to work on a project on the management Malignant Pleural Effusions (MPE) which will benefit the quality of life for mesothelioma patients.

It has also funded 2 important ongoing projects in mesothelioma, both aim to benefit patients with mesothelioma in the future. It is hoped the results of these research studies will be presented at conference and shared with the local mesothelioma support group (Bristol and Beyond Asbestos Family Support, BBAFS) as well written up for publication in a medical journal.

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Section D Achievements and erformance p
Section E Financial review
~~>=~~ The Trustees had agreed to ensure a balance of £50 000 before
Brief statement of the spending any money from the AMF funds. charity’s policy on reserves Details of any funds materially Nil
in deficit Further financial review details (Optional information) Please see AMF Financial Statement for the year ending 20 December
You may choose to include 2024.
additional information, where relevant about: • the charity’s principal sources of funds (including any fundraising);
• how expenditure has supported the key objectives of the charity;
• investment policy and objectives including any ethical investment policy adopted. ~~_~~
Section F Other optional information Section G Declaration
~~___~~ The trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Professor Nick Maskell Position (eg Secretary, Chair, Chair etc) Date 04.01.25

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REG TERED CHARITY NUMBER: 1153290 Report of the Trustees a Unaudited Financlal Statem nts for the Year Ended 20 Decemb 2024 for AVON MESOTHELIOMA FOUN TION Sandlson Lang Llmited 2 St Marys Road Tonbrldge Kent TN9 2LB

AVON MESOTHELIOMA FOUNDATION Contents of the Financial Statements forthe Year Ended 20 December 2024 Page Report of the Trustees I to 2 Independent Examiner's Report Statement of Flnanclal Actlvltle5 Balance Sheet Notestothe Flnanclal Statements 6 to 10 Detailed Statement of Flnancial Activities li

AVON MESOTHELIOMA FOUNDATION Report of the Trustees for the Year Ended 20 December 2024 The trustees present their report with the financial statements 20 December 2024. The trustees have adopted the provisions of Ac Statement of Recommended Practice applicable to charities preparing Financial Reporting Standard applicable in the UK and Republic of Ireland I the charity for the year ended unting and Reporting by Charities: eir accounts in accordance with the RS 1021 leffective l January 20191. OBJECTIVES AND AcfiviTIES ObJectSves and alms The primary aim of the charity is to help fund local research into Mes Iso aims at assisting the care of patients with mesothelioma and supporti helioma within the area of Avon. It the local support groups Significant activities We have had another impressive year in raising money for the charity mesothelioma. These studies have been run from the Academic Resear of these projects are likely to change practice and benefit patients in the f d supporting research projects into h Unit at University of Brlstol. Some ure. We are grateful for the support we have received from patients and th of the charity. r carers in helpin8 US with the goals FINANCIAL REVIEW Reserves pollcy The Charity does not have any salaries to pay or any commitments ot The Trustees agreed that spending donations to support the AMF actlv for mesotheloima sufferers is the most Important mlssion. Keeping a allow us to maintain the charity for 5 years even without new donations. r than serving the webslte charges. ies of supporting research and care inimum of £5,000 reserves would STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document The charity is controlled by its governing document, a deed of trust charity. and constitutes an unincorporated REFERENCE AND ADMINISTRATIVE DETAILS Reglstered Charity number 1153290 Principal address North Bristol Lung Centre Southmead Hospital Westbury on Trym Bristol BSIO 5NB Page I

AVON MESOTHELIOMA FOUNDATION Report of the Trustees forthe Year Ended 20 December 2024 Trustees Professor N Maskell J E Harvey D J Walton C D Smith AJ Morlev N M Rahman Independent Examlner Ryan Cottington ACA Sandison Lang Limited 2 St Marys Road Tonbridge Kent TN9 2LB Approved by order ofthe board of trustees on......,. and signed on its behalf by: Profe550r N Ma5kell . T U5tee Page 2

Independent Examlner's Report to the Trustees of Avon Mesothelioma Foundation Independent examiner's report to the trustees of Avon Mesothelloma F I report to the charity trustees on my examination of the accounts of Trust) forthe year ended 20 December 2024. ndation von Mesothelioma Foundation Ithe Responsibilities and basls of report As the charity trustees of the Trust you are responsible for the preparati the requirements of the Charities Act 20111'the Act'l. of the accounts in accordance with I report in respect of my examination of the Trust's accounts carried ou carrying out my examination I have followed all applicable Directions gi Section 145(5llbl of the Act. under Section 145 of the Act and in n by the Charity Commission under Independent examlnees statement I have completed my examination. I confirm that no material mat connection with the examination givin8 me cause to believe that in any m rs have come to my attention in erlal respett.. accounting records were not kept in respect of the Trust as requlre the accounts do not accord with those records,. or the accounts do not comply with the applicable requirements accounts set out in the Charities (Accounts and Reports) Regulati that the accounts give a true and fair view which is not a matter examination. by Section 130 ofthe Act,. or oncerning the form and content of s 2008 other than any requirement nsidered as part of an independent I have no concerns and have come across no other matters in conne attention should be drawn in this report in order to enable a proper reached. ion with the examination to which nderstanding of the accounts to be Ryan Cottington ACA Sandison Lang Limited 2 St Marys Road Tonbridge Kent TN9 2LB Date:.....,..................,...,..,....,........ Page 3

AVON MESOTHELIOMA FOUNDATION Statement of Financial Actlvltles for the Year Ended 20 December 2024 2024 Unrestricted fund Total funds 2023 Notes INCOME AND ENDOWMENTS FROM Donations and legacies 34,472 1,830 EXPENDITURE ON Charltable actlvltles Grant to hospital charity 45,353 Other 822 216 Total 46,175 216 NET INCOMEIIEXPENDITURE) (11,7031 1,614 RECONCILIATION OF FUNDS Total funds brought forward 115,209 113,595 TOTAL FUNDS CARRIED FORWARD 103,506 115,209 The notes form part of these financial statements Page 4

AVON MESOTHELIOMA FOUNDATION Balance Sheet 20 December 2024 2024 Unrestrlcted fund 2023 Total funds Notes CURRENT ASSErs Cash at bank 104,100 115,209 CREDITORS Amounts falling due within one year {594) NET CURRENT ASSETS 103,506 115,209 TOTAL ASSETS LE55 CURRENT LIABILITIES 103,506 115,209 NET ASSETS 103,506 115,209 FUNDS Unrestricted funds 103,506 115,209 TOTAL FUNDS 103,506 115,209 The financial statements were approved by the Board of Trust ..l.L..l.ri'l'Lr" and were slgned on its behalf by: es and authori5ed for issue on N Maskell - Truste The notes form part of these financial state nts Page S

AVON MESOTHELIOMA FOUNDATION Notes to the Flnanclal Statements forthe Year Ended 20 December 2024 ACCOUNTING POLICIES Basls of preparlng the flnancial statements The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP {FRS 1021 'Accounting and Reporting by Charities.. Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 102} {effective l January 20191,, Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland, and the Charities Act 2011. The financial Statements have been prepared under the historical cost convention. Income All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably. Expendlture Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources. Grants offered subject to conditions which have not been met at the year end date are noted as a commitment but not accrued as expenditure. Taxatlon The charity is exempt f rom tax on its charitable activities. Fund accountlng Unrestrirted fund5 can be used in accordance with the charitable objectives at the discretion of the trustees. Restricted funds can only be used for particular restricted purposes Wlthin the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes. Further explanation of the nature and purpose of each fund is included In the notes to the financial statements. Page 6 continued...

AVON MESOTHELIOMA FOUNDATION Notes to the Flnanclal Statements- continued for the Year Ended 20 December 2024 TRUSTEES, REMUNERATION AND BENEFrrs There were no trustees, remuneration or other benefits for the v the year ended 20 December 2023. ar ended 20 December 2024 nor for Trustees, expenses There were no trustees, expenses paid for the year ended 20 D 20 December 2023. ember 2024 nor for the year ended COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIE5 Unrestricted fund INCOME AND ENDOWMENTS FROM Donations and legacie5 1,830 EXPENDITURE ON Other 216 NEf INCOME 1,614 RECONCILIATION OF FUNDS Total fund5 brought forward 113,595 TOTAL FUNDS CARRIED FORWARD 115,209 Page 7 continued...

AVON MESOTHELIOMA FOUNDATION Notes to the Financial Statements- continued forthe Year Ended 20 December 2024 CREDITORS: AMOUNTS FALUNG DUE WITHIN ONE YEAR 2024 2023 Other creditors 594 MOVEMENT IN FUNDS Net movement in fund5 At 21112123 At 20112124 Unrestrltted funds General fund 115,209 111,703) 103,506 TOTAL FUNDS 115,209 (11,703) 103,506 Net movement in funds, included in the above are as follows: Incoming resources Resources expended Movement in funds Unrestricted funds General fund 34,472 (46,175) (11,7031 TOTAL FUNDS 34.472 146,175) {11,703) Comparatives for movement in funds Net movement in funds At 21112122 At 20112/23 Unrestricted funds General fund 113,595 1,614 115,209 TOTAL FUNDS 113,595 1,614 115,209 Page 8 continued...

AVON MESOTHELIOMA FOUNDATION Notes to the Flnanclal Statements- continued for the Year Ended 20 Decernber 2024 MOVEMENT IN FUNDS- continued Comparatlve net movement in funds, included in the above are as f Ilows: Incoi re50 ing ces Resources expended Movement in funds Unrestricted fund5 General fund 30 12161 1.614 TOTAL FUNDS 30 12161 1,614 A current year 12 months and prior year 12 months combined posit n is as follows: Net movement in funds At 22 At 20112/24 2111 Unrestrlcted funds General fund 113 95 110,0891 103,506 TOTAL FUNDS 113 95 110,0891 103,506 A current year 12 months and prior year 12 months combined ne above are as follows.. movenlent in funds, included in the Inco resou ing ces Resources expended Movement in funds Unrestricted funds General fund 36 02 146,3911 110,0891 TOTAL FUNDS 36 02 146,3911 110,0891 Page 9 continued...

AVON MESOTHELIOMA FOUNDATION Notes to the Flnanclal Statements- contlnued forthe Year Ended 20 December 2024 RELATED PARTY DISCLOSURES There were no related party transactions for the year ended 20 December 2024. Page 10

AVON MESOTHELIOMA FOUNDATION Detsiled Ststernent of Flnanclal Artlvltles for the Year Ended 20 December 2024 2024 2023 INCOME AND ENDOWMENTS Donatlons and legacles Donations Legacies 10,661 23,811 1,830 34,472 1,830 Total Incoming resources 34,472 1,830 EXPENDITURE Charitable activlties Grants to institutions 45,353 Support costs Governance costs Computing costs Accountancy and legal fees 228 594 216 822 216 Total resources expended 46,175 216 Net lexpendlture)/lncome (11,703) 1,614 This page does not form part of the statutoryfinanci I statements Page 11