2021-07-24-accounts

DeecWptlon ofOe charity's trusts	DeecWptlon ofOe charity's trusts	DeecWptlon ofOe charity's trusts
	of overn) document	Charthabte		Incmorated		OWnlsation	Constitution
	How the char8y is constituted	™
	Trustee selection methods	Appointed by resolution chartty Trustees, having				passed ata property convened regard to the skills krowledge		meeting ofthe and experience
		requ/red	forthe		effective	administration	ofthe C10
AddSonal governance hauea		(Optional	Inforrnatton)
You may ehocee to Include additional lnfornmtlon, where		We require role in the		all Trustees administration		to undertake aDBScheck, and and ac6vttles ofthe CIQ.		tc take an active
relevant, about;
~	policies and pn:ceduvs
	adopted for the induction and
	training eftrustees:
~	lhe chartty's organlsatlcnal
	structure and any wider
	network with which the charity
	works;
e	relationship with any related
	paries',
e	trustees' conskleration of
	malar rleks and the system
	and procedures to manage
	them,

Summary ofthe main achfevemsnts ofthe chartty durtng the year	Summary ofthe main achfevemsnts ofthe chartty durtng the year	The QO has continued to spread awareness of NlLD through the distribution ofexplaretory leaflets to health professionals and families. The webslte has also been updated regularly to retteet information evailake end events	The QO has continued to spread awareness of NlLD through the distribution ofexplaretory leaflets to health professionals and families. The webslte has also been updated regularly to retteet information evailake end events	The QO has continued to spread awareness of NlLD through the distribution ofexplaretory leaflets to health professionals and families. The webslte has also been updated regularly to retteet information evailake end events	The QO has continued to spread awareness of NlLD through the distribution ofexplaretory leaflets to health professionals and families. The webslte has also been updated regularly to retteet information evailake end events
		The echtsvjsnmnts have included:
		Providing up-~ate information	on the Corenavlrus epidemic,		including
		advice on vacclnathns for'those	with IIELD.
		lntroductng a National Database	which would	show all sufferers ofMLO
		In the UK
		The intreductfon ofa comprehensive suNey		for MLD pattents	and care-
		givers.
		Continued updating ofwebslte.
		Further details of aH these achjlevements can		be found in Section C

						Unreatrleted	Unreatrleted	Reetfle,ted	Reetfle,ted	Reetfle,ted		Endowtnettt	Endowtnettt
Cetrrg Orrrr		S	Dale u»			fulttla			funda			I'unde
						tn nenrant	E	'Ia	naalvIlE			to neatest	E
B1Ceeh funda			HSBC Current	Account
			II88COaaoalr	Aooounl
					Tete!ceeft /bitte	dlrOIO
			(tore»»»neoer		wlN rtnelpn~ parr»err»
					~tonne( ~n			K			t
						Vnteatrlotad		Restricted				Endowment
						funda			funda			funda
			Details			to nenreat	e	to	noaraat	E		lo nealaat	E
B2Other monetary		eeeete
						l'one to which						Currant vaIw
			Details			~anat balan	~					o Lo
83fnveetmettt	eeeete
			Details			Fond lo vrhteh asset bal		C	( 4„lj			Carrant value lanai
B4Aeeete retained		for the
cherlty'e own	uee
						aund to wtrlch		Anrooni dua				When due
			Datsiia			ilahll re1tee			lanai			o u	I
15Llebllitlee
Signed by one or Nro buataea on behalf Of ell IIIOlrualaea				8lgnalure			Prlrrt Name					Dote of e ravel
						v &O'IMMI&~M