



|DeecWptlon ofOe charity's trusts|DeecWptlon ofOe charity's trusts|DeecWptlon ofOe charity's trusts|||||||
|---|---|---|---|---|---|---|---|---|
||of<br>overn)<br>document|Charthabte||Incmorated||OWnlsation|Constitution||
||How the char8y is constituted|™|||||||
||Trustee selection methods|Appointed<br>by resolution<br>chartty Trustees,<br>having||||passed ata property convened<br> regard to the skills krowledge||meeting ofthe<br>and experience|
|||requ/red|forthe||effective|administration|ofthe C10||
|AddSonal governance<br>hauea||(Optional|Inforrnatton)||||||
|You may ehocee to Include<br>additional<br>lnfornmtlon,<br>where||We require<br>role in the||all Trustees <br> administration||to undertake aDBScheck, and <br>and ac6vttles ofthe CIQ.||tc take an active|
|relevant,<br>about;|||||||||
|~|policies and pn:ceduvs||||||||
||adopted<br>for the induction<br>and||||||||
||training eftrustees:||||||||
|~|lhe chartty's organlsatlcnal||||||||
||structure and any wider||||||||
||network<br>with which the charity||||||||
||works;||||||||
|e|relationship<br>with any related||||||||
||paries',||||||||
|e|trustees'<br>conskleration<br>of||||||||
||malar rleks and the system||||||||
||and procedures<br>to manage||||||||
||them,||||||||











|Summary ofthe main<br>achfevemsnts<br>ofthe chartty<br>durtng the year|Summary ofthe main<br>achfevemsnts<br>ofthe chartty<br>durtng the year|The QO has continued<br>to spread awareness<br>of NlLD through<br>the<br>distribution<br>ofexplaretory<br>leaflets to health professionals<br>and families.<br>The webslte has also been updated<br>regularly to retteet information<br>evailake end events|The QO has continued<br>to spread awareness<br>of NlLD through<br>the<br>distribution<br>ofexplaretory<br>leaflets to health professionals<br>and families.<br>The webslte has also been updated<br>regularly to retteet information<br>evailake end events|The QO has continued<br>to spread awareness<br>of NlLD through<br>the<br>distribution<br>ofexplaretory<br>leaflets to health professionals<br>and families.<br>The webslte has also been updated<br>regularly to retteet information<br>evailake end events|The QO has continued<br>to spread awareness<br>of NlLD through<br>the<br>distribution<br>ofexplaretory<br>leaflets to health professionals<br>and families.<br>The webslte has also been updated<br>regularly to retteet information<br>evailake end events|
|---|---|---|---|---|---|
|||The echtsvjsnmnts<br>have included:||||
|||Providing up-~ate<br>information|on the Corenavlrus<br>epidemic,||including|
|||advice on vacclnathns<br>for'those|with IIELD.|||
|||lntroductng<br>a National Database|which would|show all sufferers ofMLO||
|||In the UK||||
|||The intreductfon<br>ofa comprehensive<br>suNey||for MLD pattents|and care-|
|||givers.||||
|||Continued<br>updating ofwebslte.||||
|||Further details of aH these achjlevements<br>can||be found in Section C||














|||||||Unreatrleted|Unreatrleted|Reetfle,ted|Reetfle,ted|Reetfle,ted||Endowtnettt|Endowtnettt|
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|Cetrrg Orrrr||S|Dale u»|||fulttla|||funda|||I'unde||
|||||||tn nenrant|E|'Ia|naalvIlE|||to neatest|E|
|B1Ceeh funda|||HSBC Current|Account||||||||||
||||II88COaaoalr|Aooounl||||||||||
||||||Tete!ceeft /bitte|dlrOIO||||||||
||||(tore»»»neoer||wlN rtnelpn~ parr»err»|||||||||
||||||~tonne( ~n|||K|||t|||
|||||||Vnteatrlotad||Restricted||||Endowment||
|||||||funda|||funda|||funda||
||||Details|||to nenreat|e|to|noaraat|E||lo nealaat|E|
|B2Other monetary||eeeete||||||||||||
|||||||l'one to which||||||Currant vaIw||
||||Details|||~anat balan|~|||||o<br>Lo||
|83fnveetmettt|eeeete|||||||||||||
||||Details|||Fond lo vrhteh<br>asset bal||C|( 4„lj|||Carrant value<br>lanai||
|B4Aeeete retained||for the||||||||||||
|cherlty'e own|uee|||||||||||||
|||||||aund to wtrlch||Anrooni dua||||When due||
||||Datsiia|||ilahll<br>re1tee|||lanai|||o u|I|
|15Llebllitlee||||||||||||||
|Signed by one or Nro buataea on<br>behalf Of ell IIIOlrualaea||||8lgnalure|||Prlrrt Name|||||Dote of<br>e<br>ravel||
|||||||v &O'IMMI&~M||||||||



