Country

England & Wales

Charity number

1150542

Status

Registered

Registered

Jan. 21, 2013

Legal form

CIO

Area of benefit

England And Wales

Address

Contact

Phone

01227372424

Email

[email protected]

Website

MLDSupportUK.org.uk

Activities

We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD), to spread awareness of the disease to medical establishments and raise awareness . We have established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.

Objects: 1.To Advance The Education Of The Public In The Subject Of The Diagnosis, Progression, And Treatment For All Forms Of Metachromatic Leukodystrophy (M.l.d.).2. To Relieve The Mental And Physical Sickness Of Persons Resident In The United Kingdom, Suffering From Bereavement Or Loss Of A Family Member Through Metachromatic Leukodystrophy (M.l.d.) By The Provision Of Counselling And Support For Such Persons.3. To Promote And Protect The Physical And Mental Health Of Sufferers Of Metachromatic Leukodystrophy (M.l.d.) In The United Kingdom Through The Provision Of Support, Education And Practical Advice To Their Families; And Through The Provision Of Financial Assistance To Bona Fide Clinicians And Research Bodies Who Are Seeking Therapeutic Treatment For This Condition.

Classification

How

Provides Advocacy/advice/information, Sponsors Or Undertakes Research

What

Education/training, The Advancement Of Health Or Saving Of Lives, Disability

Who

Children/young People, People With Disabilities, Other Defined Groups

Areas of operation

Region

Throughout England And Wales

Finances

Trustees

Nearby

• The Margate School CIO 0.2 mi
• Crate Studio & Project Space Limited 0.2 mi
• Not A Phase 0.2 mi
• Margate Baptist Church (Cecil Square) 0.2 mi
• Open School East 0.2 mi

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