# MLD SUPPORT ASSOCIATION UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1150542
- **Other names:** MLD SUPPORT ASSOCIATION UK1, MLD SUPPORT UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Jan. 21, 2013
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1150542


## Contact

- **Address:** Need More Time Ltd, 35 Marine Terrace, MARGATE, Kent
- **Postcode:** CT9 1XJ
- **Phone:** 01227 372424
- **Email:** admin@MLDSupportUK.org.uk
- **Website:** MLDSupportUK.org.uk



## Activities

**Objects:** 1.TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF THE DIAGNOSIS, PROGRESSION, AND TREATMENT FOR ALL FORMS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.).2. TO RELIEVE THE MENTAL AND PHYSICAL SICKNESS OF PERSONS RESIDENT IN THE UNITED KINGDOM, SUFFERING FROM BEREAVEMENT OR LOSS OF A FAMILY MEMBER THROUGH METACHROMATIC LEUKODYSTROPHY (M.L.D.) BY THE PROVISION OF COUNSELLING AND SUPPORT FOR SUCH PERSONS.3. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE TO THEIR FAMILIES; AND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE TO BONA FIDE CLINICIANS AND RESEARCH BODIES WHO ARE SEEKING THERAPEUTIC TREATMENT FOR THIS CONDITION.

**Activities:** We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD),  to spread awareness of the disease to medical establishments and raise awareness . We have  established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Defined Groups



## Geography

- **Area of benefit:** ENGLAND AND WALES
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Daniel Erskine |  | March 23, 2024 |
| Elizabeth Davenport |  | Nov. 19, 2022 |
| JACQUELINE IMRIE |  | Sept. 30, 2015 |
| Nicola Jane Elson |  | Oct. 24, 2018 |
| TWILA D&#x27;CRUZ |  | Dec. 28, 2012 |




