Country

England & Wales

Charity number

1147704

Status

Registered

Registered

June 15, 2012

Legal form

Trust

Address

Contact

Phone

01612820441

Email

[email protected]

Website

fopfriends.com

Activities

FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.

Objects: The Relief Of Distress And Sickness For Those Affected By Fibrodysplasia Ossificans Progressiva (Fop) A Tragic, Degenerative And Debilitating Condition And To Improve The Lives Of Sufferers And Their Families.to Raise Public Awareness And Understanding Of Fibrodysplasia Ossificans Progressiva (Fop) And To Promote Education And Research Into The Study And Cure Of Fop And Related Conditions.to Support Charities And Organisations Undertaking Charitable Activities In Both The UK And Abroad Who Fund Research, Provide Help, Support, Care And Treatment For People Affected By Fop And Related Conditions.to Support Organisations Researching Treatments And A Cure For Fop And Related Conditions.

Classification

How

Provides Other Finance, Sponsors Or Undertakes Research

What

The Advancement Of Health Or Saving Of Lives

Who

Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind

Areas of operation

Country

United States

Region

Throughout England And Wales

Finances

Trustees

Nearby

• FOP Friends 0.0 mi
• Manchester Round Table 0.0 mi
• Pegasus Rda 0.1 mi
• Grace Community Outreach Centre 0.1 mi
• Sale Civic Society 0.2 mi

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