# FOP FRIENDS

## Details

- **Country:** England & Wales
- **Charity number:** 1147704
- **Other names:** FOP ACTION, FOP FRIENDS OF OLIVER, FRIENDS OF OLIVER
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** June 15, 2012
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1147704


## Contact

- **Address:** 1 Cumberland Road, Sale
- **Postcode:** M33 3FR
- **Phone:** 01612820441
- **Email:** info@fopfriends.com
- **Website:** www.fopfriends.com



## Activities

**Objects:** THE RELIEF OF DISTRESS AND SICKNESS FOR THOSE AFFECTED BY FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) A TRAGIC, DEGENERATIVE AND DEBILITATING CONDITION AND TO IMPROVE THE LIVES OF SUFFERERS AND THEIR FAMILIES.TO RAISE PUBLIC AWARENESS AND UNDERSTANDING OF FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) AND TO PROMOTE EDUCATION AND RESEARCH INTO THE STUDY AND CURE OF FOP AND RELATED CONDITIONS.TO SUPPORT CHARITIES AND ORGANISATIONS UNDERTAKING CHARITABLE ACTIVITIES IN BOTH THE UK AND ABROAD WHO FUND RESEARCH, PROVIDE HELP, SUPPORT, CARE AND TREATMENT FOR PEOPLE AFFECTED BY FOP AND RELATED CONDITIONS.TO SUPPORT ORGANISATIONS RESEARCHING TREATMENTS AND A CURE FOR FOP AND RELATED CONDITIONS.

**Activities:** FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP)  and related conditions by supporting current and future research projects together with supporting families impacted.  Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.




## Classification

- **How:** Provides Other Finance, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind



## Areas of operation

- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £142840 | £182893 | — | — |
| March 1, 2024 | £83617 | £58322 | — | — |
| March 1, 2023 | £231413 | £141357 | — | — |
| March 1, 2022 | £245252 | £162748 | — | — |
| March 1, 2021 | £179763 | £136207 | — | — |



## Trustees

- **MR CHRIS BEDFORD-GAY** (Chair) — appointed June 13, 2012
- ALISON ACOSTA BEDFORD — appointed June 13, 2012
- Andrew Rankin — appointed Feb. 20, 2024
- FIONA WHITE — appointed Feb. 12, 2013
- Helen Bedford-Gay — appointed Jan. 26, 2015
- RACHEL BEDFORD — appointed June 13, 2012