OpenCharities

FOP Friends

Country
Scotland
Charity number
SC046950
Status
Active
Reporting
Up to date Last filed Nov. 3, 2025. Filing history
Registered
Nov. 2, 2016
Legal form
Trust (founding document is a deed of trust) (other than educational endowment)

Address

Address
1 Cumberland Road
Sale
Cheshire
M33 3FR

Contact

Activities

'It makes grants, donations, loans, gifts or pensions to individuals','It carries out activities or services itself'

'the advancement of education','the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage'

Beneficiaries: 'Children or young people','Older People','People with disabilities or health problems'

Objectives: The objects of the charity ('the objects') are: The relief of distress and sickness for those affected by Fibrodysplasia Ossificans Progressiva (FOP) a tragic, degenerative and debilitating condition and to improve the lives of sufferers and their families. To raise public awareness and understanding of Fibrodysplasia Ossificans Progressiva (FOP) and to promote education and research into the study and cure of FOP and related conditions. To support charities and organisations undertaking charitable activities in both the UK and abroad who fund research, provide help, support, care and treatment for people affected by FOP and related conditions. To support organisations researching treatments and a cure for FOP and related conditions. The charity will carry out these objects by: ? Funding research related to the treatment and cure of FOP and related conditions. ? Funding organisations or charities in researching, providing help, support, care or treatment of FOP and related conditions.

Geography

Main operating location
Outwith Scotland
Geographical spread
Scotland and other parts of the UK

Finances

Period end Filed Income Expenditure Employees
Dec. 31, 2024 Nov. 3, 202534 days late £142,840 £182,893 1
March 1, 2024 Dec. 9, 20248 days late £83,617 £58,322 1
March 1, 2023 Dec. 1, 2023On time £231,413 £141,357 1
March 1, 2022 Dec. 16, 202215 days late £245,252 £162,748 1
March 1, 2021 Dec. 20, 202119 days late £179,763 £136,207 1

Due dates are 9 months after the year end, OSCR's deadline, so they don't allow for any extension OSCR has granted.