OpenCharities

Myotubular Trust

Country
England & Wales
Charity number
1137177
Status
Registered
Registered
July 29, 2010
Legal form
Charitable company
Company number
07260229

Address

Address
15a Barnard Road
London
SW11 1QT

Activities

The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

Objects: The Relief Of Disability And The Extension Of Life For Babies, Children And Adults Suffering From Myotubular Myopathy, By Promoting The Study Of, And Research Into, The Treatment And Care Of The Muscle Weakness Caused By Myotubular Myopathy.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Geography

Area of benefit
Undefined.
Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £138,416 £148,309
Dec. 31, 2023 £117,511 £70,876
Dec. 31, 2022 £147,462 £97,944
Dec. 31, 2021 £144,770 £112,630
Dec. 31, 2020 £132,865 £200,271

Trustees

Name Appointed
Andrew Lennox (Chair)
Anne Lennox
James Rosling
Lisa Bashorum Oct. 24, 2025
Patricia Allen Sept. 15, 2011
Zachary Richard Hughes Oct. 24, 2025