# MYOTUBULAR TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1137177
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** July 29, 2010
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1137177


## Contact

- **Address:** 15A BARNARD ROAD, LONDON
- **Postcode:** SW11 1QT
- **Phone:** 020 8641 6427
- **Email:** contact@myotubulartrust.org
- **Website:** www.myotubulartrust.org



## Activities

**Objects:** THE RELIEF OF DISABILITY AND THE EXTENSION OF LIFE FOR BABIES, CHILDREN AND ADULTS SUFFERING FROM MYOTUBULAR MYOPATHY, BY PROMOTING THE STUDY OF, AND RESEARCH INTO, THE TREATMENT AND CARE OF THE MUSCLE WEAKNESS CAUSED BY MYOTUBULAR MYOPATHY.

**Activities:** The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.

**Area of benefit:** UNDEFINED.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £138416 | £148309 | — | — |
| Dec. 31, 2023 | £117511 | £70876 | — | — |
| Dec. 31, 2022 | £147462 | £97944 | — | — |
| Dec. 31, 2021 | £144770 | £112630 | — | — |
| Dec. 31, 2020 | £132865 | £200271 | — | — |



## Trustees

- **ANDREW LENNOX** (Chair)
- ANNE LENNOX
- James Rosling
- Lisa Bashorum — appointed Oct. 24, 2025
- PATRICIA ALLEN — appointed Sept. 15, 2011
- Zachary Richard Hughes — appointed Oct. 24, 2025