OpenCharities

Advocacy For Neuroacanthocytosis Patients

N A Fund

Country
England & Wales
Charity number
1133182
Status
Registered
Registered
Dec. 8, 2009
Legal form
Charitable company
Area of benefit
Undefined. In Practice, National And Overseas.

Address

Address
Flat 39
Coleherne Court
The Little Boltons
LONDON
SW5 0DN

Contact

Activities

Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

Objects: 1 To Promote And Protect The Physical And Mental Health Of Sufferers Of Neuroacanthocytosis Diseases And Their Families Through The Provision Of Support, Education And Practical Advice2 To Advance The Education Of Health Professionals And The General Public In Al Areas Relating To Neuroacanthocytosis Diseases

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities

Areas of operation

Country
France, Germany, Italy, Japan, Netherlands, Portugal, Spain, Switzerland, United States
Local Authority
Oxfordshire

Finances

Period end Income Expenditure
Aug. 31, 2024 £50,244 £52,008
Aug. 31, 2023 £8,847 £33,936
Aug. 31, 2022 £90,098 £16,790
Aug. 31, 2021 £15,082 £89,196
Aug. 31, 2020 £182,144 £100,248

Trustees

Name Appointed
Ginger Irvine (Chair)
Dr Peter George Mills Dec. 4, 2019
Mary Elizabeth Leigh-Wood Dec. 4, 2019
Nicola Keat July 1, 2022
Professor Dr Adrian Danek March 20, 2024