# ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS

## Details

- **Country:** England & Wales
- **Charity number:** 1133182
- **Other names:** N A FUND
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Dec. 8, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1133182


## Contact

- **Address:** Flat 39, Coleherne Court, The Little Boltons, LONDON
- **Postcode:** SW5 0DN
- **Phone:** 02074608874
- **Email:** ginger@naadvocacy.org
- **Website:** www.naadvocacy.org



## Activities

**Objects:** 1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF NEUROACANTHOCYTOSIS DISEASES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE2 TO ADVANCE THE EDUCATION OF HEALTH PROFESSIONALS AND THE GENERAL PUBLIC IN AL AREAS RELATING TO NEUROACANTHOCYTOSIS DISEASES

**Activities:** Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.

**Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL AND OVERSEAS.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Areas of operation

- France
- Germany
- Italy
- Japan
- Netherlands
- Portugal
- Spain
- Switzerland
- United States
- Oxfordshire



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Aug. 31, 2024 | £50244 | £52008 | — | — |
| Aug. 31, 2023 | £8847 | £33936 | — | — |
| Aug. 31, 2022 | £90098 | £16790 | — | — |
| Aug. 31, 2021 | £15082 | £89196 | — | — |
| Aug. 31, 2020 | £182144 | £100248 | — | — |



## Trustees

- **GINGER IRVINE** (Chair)
- Dr Peter George Mills — appointed Dec. 4, 2019
- Mary Elizabeth Leigh-Wood — appointed Dec. 4, 2019
- Nicola Keat — appointed July 1, 2022
- Professor Dr Adrian Danek — appointed March 20, 2024