OpenCharities

Association For Glycogen Storage Disease (UK) Limited

Agsd (UK), Pompe UK

Country
England & Wales
Charity number
1132271
Status
Registered
Registered
Oct. 22, 2009
Legal form
Charitable company
Area of benefit
Undeined. In Practice, National

Address

Address
A G S D UK
PO Box 699
SOUTHAMPTON
SO50 0QT

Contact

Activities

We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.

Objects: The Relief Of Sickness, Particularly Of Persons Suffering From Any Form Of Glycogenstorage Disease

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities, Other Defined Groups

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £173,952 £212,211
March 31, 2024 £242,277 £197,548
March 31, 2023 £143,716 £156,761
March 31, 2022 £131,749 £144,848
March 31, 2021 £122,881 £141,668

Trustees

Name Appointed
Dr Florence Osbourne (Chair) May 1, 2021
Ailsa Arthur Oct. 29, 2017
Dr Charlotte Dawson Jan. 15, 2023
Dr Karolina Stepien Jan. 18, 2026
Kempton Rees Jan. 15, 2023
Rachel Thomas July 15, 2020
Sarah Chikhani July 12, 2020