Association For Glycogen Storage Disease (UK) Limited
Agsd (UK), Pompe UK
Address
- Address
- A G S D UK
PO Box 699
Southampton
SO50 0QT
Contact
- Phone
- 0300 123 2790
- info@agsd.org.uk
- Website
agsd.org.uk
Activities
We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.
Objects: The Relief Of Sickness, Particularly Of Persons Suffering From Any Form Of Glycogenstorage Disease
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- What
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities, Other Defined Groups
Geography
- Area of benefit
- Undeined. In Practice, National
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £173,952 | £212,211 |
| March 31, 2024 | £242,277 | £197,548 |
| March 31, 2023 | £143,716 | £156,761 |
| March 31, 2022 | £131,749 | £144,848 |
| March 31, 2021 | £122,881 | £141,668 |
Trustees
| Name | Appointed |
|---|---|
| Dr Florence Osbourne (Chair) | May 1, 2021 |
| Ailsa Arthur | Oct. 29, 2017 |
| Dr Charlotte Dawson | Jan. 15, 2023 |
| Dr Karolina Stepien | Jan. 18, 2026 |
| Kempton Rees | Jan. 15, 2023 |
| Rachel Thomas | July 15, 2020 |
| Sarah Chikhani | July 12, 2020 |
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