# ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED

## Details

- **Country:** England & Wales
- **Charity number:** 1132271
- **Other names:** AGSD (UK), POMPE UK
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Oct. 22, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1132271


## Contact

- **Address:** A G S D UK, PO Box 699, SOUTHAMPTON
- **Postcode:** SO50 0QT
- **Phone:** 0300 123 2790
- **Email:** info@agsd.org.uk
- **Website:** www.agsd.org.uk



## Activities

**Objects:** THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGENSTORAGE DISEASE

**Activities:** We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.

**Area of benefit:** UNDEINED. IN PRACTICE, NATIONAL




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £173952 | £212211 | — | — |
| March 31, 2024 | £242277 | £197548 | — | — |
| March 31, 2023 | £143716 | £156761 | — | — |
| March 31, 2022 | £131749 | £144848 | — | — |
| March 31, 2021 | £122881 | £141668 | — | — |



## Trustees

- **Dr Florence Osbourne** (Chair) — appointed May 1, 2021
- Ailsa Arthur — appointed Oct. 29, 2017
- Dr Charlotte Dawson — appointed Jan. 15, 2023
- Dr Karolina Stepien — appointed Jan. 18, 2026
- Kempton Rees — appointed Jan. 15, 2023
- Rachel Thomas — appointed July 15, 2020
- Sarah Chikhani — appointed July 12, 2020