OpenCharities

Amy And Friends

Country
England & Wales
Charity number
1119746
Status
Registered
Registered
June 20, 2007
Legal form
Other

Address

Address
Oxton Conservative Club
Village Road
Prenton
CH43 5SR

Activities

We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together. We provide respite care and a siblings club. We support families at our dedicated clinic at Thomas and Guys Hospital.

Objects: For The Relief Of People Suffering With Cockayne Syndrome And The Preservation And Protection Of The Good Health Of The Families And Carers Of Such Persons.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Geography

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £417,007 £374,357
March 31, 2024 £262,462 £234,886
March 31, 2023 £325,400 £318,468
March 31, 2022 £248,575 £243,046
March 31, 2021 £244,572 £246,583

Trustees

Name Appointed
Roy Mcgunigall (Chair)
Jodie Barden April 1, 2025
Mark Hughes
Phillipa Sellars April 1, 2025
Shaun Fanning Dec. 8, 2016