{"country": "England & Wales", "charity_number": "1119746", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1119746", "name": "AMY AND FRIENDS", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "2007-06-20", "date_removed": null, "legal_form": "Other", "area_of_benefit": "NOT DEFINED.", "address": "OXTON CONSERVATIVE CLUB, VILLAGE ROAD, PRENTON", "postcode": "CH43 5SR", "phone": "01516384665", "email": "jayne@amyandfriends.org", "website": "www.amyandfriends.org", "lat": 53.382412, "lng": -3.044045, "activities": "We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together. We provide respite care and a siblings club. We support families at our dedicated clinic at Thomas and Guys Hospital.", "purposes": null, "what_charity_does": null, "charitable_objects": "FOR THE RELIEF OF PEOPLE SUFFERING WITH COCKAYNE SYNDROME AND THE PRESERVATION AND PROTECTION OF THE GOOD HEALTH OF THE FAMILIES AND CARERS OF SUCH PERSONS.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 417007, "latest_expenditure": 374357, "fin_period_start": "2024-04-01", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-01", "end": "2025-03-31", "income": 417007, "expenditure": 374357, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-04-01", "end": "2024-03-31", "income": 262462, "expenditure": 234886, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-04-01", "end": "2023-03-31", "income": 325400, "expenditure": 318468, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-04-01", "end": "2022-03-31", "income": 248575, "expenditure": 243046, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-04-01", "end": "2021-03-31", "income": 244572, "expenditure": 246583, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "ROY MCGUNIGALL", "chair": true, "appointment": null}, {"name": "Jodie Barden", "chair": false, "appointment": "2025-04-01"}, {"name": "MARK HUGHES", "chair": false, "appointment": null}, {"name": "Phillipa Sellars", "chair": false, "appointment": "2025-04-01"}, {"name": "Shaun Fanning", "chair": false, "appointment": "2016-12-08"}]}