# AMY AND FRIENDS

## Details

- **Country:** England & Wales
- **Charity number:** 1119746
- **Status:** Registered
- **Legal form:** Other
- **Registered:** June 20, 2007
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1119746


## Contact

- **Address:** OXTON CONSERVATIVE CLUB, VILLAGE ROAD, PRENTON
- **Postcode:** CH43 5SR
- **Phone:** 01516384665
- **Email:** jayne@amyandfriends.org
- **Website:** www.amyandfriends.org



## Activities

**Objects:** FOR THE RELIEF OF PEOPLE SUFFERING WITH COCKAYNE SYNDROME AND THE PRESERVATION AND PROTECTION OF THE GOOD HEALTH OF THE FAMILIES AND CARERS OF SUCH PERSONS.

**Activities:** We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together. We provide respite care and a siblings club. We support families at our dedicated clinic at Thomas and Guys Hospital.

**Area of benefit:** NOT DEFINED.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £417007 | £374357 | — | — |
| March 31, 2024 | £262462 | £234886 | — | — |
| March 31, 2023 | £325400 | £318468 | — | — |
| March 31, 2022 | £248575 | £243046 | — | — |
| March 31, 2021 | £244572 | £246583 | — | — |



## Trustees

- **ROY MCGUNIGALL** (Chair)
- Jodie Barden — appointed April 1, 2025
- MARK HUGHES
- Phillipa Sellars — appointed April 1, 2025
- Shaun Fanning — appointed Dec. 8, 2016