The Gary Woodward Dyskeratosis Congenita Trust
- Country
- England & Wales
- Charity number
- 1113617
- Status
- Registered
- Registered
- April 5, 2006
- Legal form
- Other
- Area of benefit
- Not Defined
Address
- Address
- 5 Malaunay Place
SANDY
Bedfordshire
SG19 1UP
Contact
- Phone
- 01767689757
- [email protected]
- Website
dyskeratosiscongenita.org.uk
Activities
Dyskeratosis Congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults. Our aims are to promote awareness, support and education for the general public and Healthcare professionals via leaflets, telephone support and web page access.
Objects: (A) The Relief Of Sickness And The Protection And Preservation Of The Health Of Persons Affected By Dyskeratosis Congenita And Any Related Condition And Their Families And Carers In Particular By But Not Restricted To;(b) The Advancement Of The Education Of The Medical Profession And The General Public Into Dyskeratosis Congenita And Its Implications For The Family.(c) The Promotion F Research Into The Causes, Effects, Treatment And Management Of Dyskeratosis Congenita And To Disseminate The Useful Results Thereof.
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind
Areas of operation
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £417 | £246 |
| March 31, 2024 | £853 | £1,290 |
| March 31, 2023 | £16 | £623 |
| March 31, 2022 | £401 | £791 |
| March 31, 2021 | £200 | £658 |
Trustees
| Name | Appointed |
|---|---|
| Abigail Frances Sinfield | June 21, 2017 |
| Ben Paul Sinfield | June 21, 2017 |
| Paul Melvyn Sinfield | |
| Professor Inderjeet Dokal | |
| Rochelle Kay Blake |
Nearby
- Streatley Playing Field Trust 0.1 mi
- The Afnan Library Trust 0.1 mi
- Urban Community Projects 0.3 mi
- The Royal Edward Lodge No 1489 Benevolent Fund 0.3 mi
- Nexus Performing Arts Group 0.3 mi