# THE GARY WOODWARD DYSKERATOSIS CONGENITA TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1113617
- **Status:** Registered
- **Legal form:** Other
- **Registered:** April 5, 2006
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1113617


## Contact

- **Address:** 5 Malaunay Place, SANDY, Bedfordshire
- **Postcode:** SG19 1UP
- **Phone:** 01767689757
- **Email:** enquiries@dyskeratosiscongenita.org.uk
- **Website:** www.dyskeratosiscongenita.org.uk



## Activities

**Objects:** (A) THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY DYSKERATOSIS CONGENITA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO;(B) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO DYSKERATOSIS CONGENITA AND ITS IMPLICATIONS FOR THE FAMILY.(C) THE PROMOTION F RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF DYSKERATOSIS CONGENITA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

**Activities:** Dyskeratosis Congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults.  Our aims are to promote awareness, support and education for the general public and Healthcare professionals via leaflets, telephone support and web page access.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £417 | £246 | — | — |
| March 31, 2024 | £853 | £1290 | — | — |
| March 31, 2023 | £16 | £623 | — | — |
| March 31, 2022 | £401 | £791 | — | — |
| March 31, 2021 | £200 | £658 | — | — |



## Trustees

- Abigail Frances Sinfield — appointed June 21, 2017
- Ben Paul Sinfield — appointed June 21, 2017
- PAUL MELVYN SINFIELD
- PROFESSOR INDERJEET DOKAL
- ROCHELLE KAY BLAKE