Wolf Hirschhorn Syndrome Trust
- Country
- England & Wales
- Charity number
- 1038219
- Status
- Registered
- Registered
- May 31, 1994
- Legal form
- Trust
Address
- Address
- 71 Blacon Avenue
Blacon
Chester
CH1 5BB
Contact
- Phone
- 07917 334407
- chair@whs4pminus.co.uk
- Website
whs4pminus.co.uk
Activities
The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.
Objects: The Relief Of Persons With Wolf Hirschhorn Syndrome 4p- (Hereinafter "Wolf Syndrome") By Promoting And Assisting In The Provision Of Their Care And Treatment; (For Further Details See Clause 4 Of Trust Deed)
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- What
- Disability
- Who
- People With Disabilities
Geography
- Area of benefit
- United Kingdom
- Country
- Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| May 31, 2025 | £15,706 | £843 |
| May 31, 2024 | £17,680 | £26,408 |
| May 31, 2023 | £8,696 | £2,915 |
| May 31, 2022 | £11,685 | £17,511 |
| May 31, 2021 | £6,505 | £3,542 |
Trustees
| Name | Appointed |
|---|---|
| Gareth Griffiths (Chair) | May 20, 2024 |
| Katharina Sophie Vogt | Oct. 1, 2023 |
| Nick Watts | May 1, 2026 |
| Sarah Fleming | May 20, 2024 |