OpenCharities

Wolf Hirschhorn Syndrome Trust

Country
England & Wales
Charity number
1038219
Status
Registered
Reporting
Up to date Last filed March 24, 2026. Filing history
Registered
May 31, 1994
Legal form
Trust

Address

Address
71 Blacon Avenue
Blacon
Chester
CH1 5BB

Activities

The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.

Objects: The Relief Of Persons With Wolf Hirschhorn Syndrome 4p- (Hereinafter "Wolf Syndrome") By Promoting And Assisting In The Provision Of Their Care And Treatment; (For Further Details See Clause 4 Of Trust Deed)

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
What
Disability
Who
People With Disabilities

Geography

Area of benefit
United Kingdom
Country
Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
May 31, 2025 March 24, 2026On time £15,706 £843
May 31, 2024 March 22, 2025On time £17,680 £26,408
May 31, 2023 March 18, 2024On time £8,696 £2,915
May 31, 2022 Nov. 1, 2022On time £11,685 £17,511
May 31, 2021 July 4, 2021On time £6,505 £3,542

Trustees

Name Appointed
Gareth Griffiths (Chair) May 20, 2024
Katharina Sophie Vogt Oct. 1, 2023
Nick Watts May 1, 2026
Sarah Fleming May 20, 2024