Wolf Hirschhorn Syndrome Trust
- Country
- England & Wales
- Charity number
- 1038219
- Status
- Registered
- Registered
- May 31, 1994
- Legal form
- Trust
- Area of benefit
- United Kingdom
Address
- Address
- 26 Ockley Lane
HASSOCKS
West Sussex
BN6 8BB
Contact
- Phone
- 07917334407
- [email protected]
- Website
hs4pminus.co.uk
Activities
The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.
Objects: The Relief Of Persons With Wolf Hirschhorn Syndrome 4p- (hereinafter "wolf Syndrome") By Promoting And Assisting In The Provision Of Their Care And Treatment; (for Further Details See Clause 4 Of Trust Deed)
Classification
- How
- Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- What
- Disability
- Who
- People With Disabilities
Areas of operation
- Country
- Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| May 31, 2025 | £15,706 | £843 |
| May 31, 2024 | £17,680 | £26,408 |
| May 31, 2023 | £8,696 | £2,915 |
| May 31, 2022 | £11,685 | £17,511 |
| May 31, 2021 | £6,505 | £3,542 |
Trustees
| Name | Appointed |
|---|---|
| Stephen William D'allenger Bradshaw (Chair) | May 27, 2013 |
| Gareth Griffiths | May 20, 2024 |
| Katharina Sophie Vogt | Oct. 1, 2023 |
| Sarah Fleming | May 20, 2024 |