# WOLF HIRSCHHORN SYNDROME TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1038219
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** May 31, 1994
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1038219


## Contact

- **Address:** 26 Ockley Lane, HASSOCKS, West Sussex
- **Postcode:** BN6 8BB
- **Phone:** 07917334407
- **Email:** chair@whs4pminus.co.uk
- **Website:** www.whs4pminus.co.uk



## Activities

**Objects:** THE RELIEF OF PERSONS WITH WOLF HIRSCHHORN SYNDROME 4P- (HEREINAFTER "WOLF SYNDROME") BY PROMOTING AND ASSISTING IN THE PROVISION OF THEIR CARE AND TREATMENT; (FOR FURTHER DETAILS SEE CLAUSE 4 OF TRUST DEED)

**Activities:** The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.

**Area of benefit:** UNITED KINGDOM




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** Disability
- **Who:** People With Disabilities



## Areas of operation

- Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| May 31, 2025 | £15706 | £843 | — | — |
| May 31, 2024 | £17680 | £26408 | — | — |
| May 31, 2023 | £8696 | £2915 | — | — |
| May 31, 2022 | £11685 | £17511 | — | — |
| May 31, 2021 | £6505 | £3542 | — | — |



## Trustees

- **STEPHEN WILLIAM D'ALLENGER BRADSHAW** (Chair) — appointed May 27, 2013
- Gareth Griffiths — appointed May 20, 2024
- Katharina Sophie Vogt — appointed Oct. 1, 2023
- Sarah Fleming — appointed May 20, 2024