{"country": "England & Wales", "charity_number": "1038219", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1038219", "name": "WOLF HIRSCHHORN SYNDROME TRUST", "known_as": null, "other_names": [], "status": "Registered", "date_registered": "1994-05-31", "date_removed": null, "legal_form": "Trust", "area_of_benefit": "UNITED KINGDOM", "address": "26 Ockley Lane, HASSOCKS, West Sussex", "postcode": "BN6 8BB", "phone": "07917334407", "email": "chair@whs4pminus.co.uk", "website": "www.whs4pminus.co.uk", "lat": 50.924793, "lng": -0.131434, "activities": "The charity supports persons with Wolf Hirschhorn Syndrome and their families / carers. The charity produces regular newsletters, provides written information, a website, an advice line and organises meetings at local and national level. The charity provides grants for equipment. The charity promotes research and aims to increase awareness of this rare genetic condition.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE RELIEF OF PERSONS WITH WOLF HIRSCHHORN SYNDROME 4P- (HEREINAFTER \"WOLF SYNDROME\") BY PROMOTING AND ASSISTING IN THE PROVISION OF THEIR CARE AND TREATMENT; (FOR FURTHER DETAILS SEE CLAUSE 4 OF TRUST DEED)", "classifications": [{"type": "How", "code": 301, "description": "Makes Grants To Individuals"}, {"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 303, "description": "Provides Other Finance"}, {"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "How", "code": 310, "description": "Other Charitable Activities"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 15706, "latest_expenditure": 843, "fin_period_start": "2024-06-01", "fin_period_end": "2025-05-31", "financial_years": [{"start": "2024-06-01", "end": "2025-05-31", "income": 15706, "expenditure": 843, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-06-01", "end": "2024-05-31", "income": 17680, "expenditure": 26408, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-06-01", "end": "2023-05-31", "income": 8696, "expenditure": 2915, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-06-01", "end": "2022-05-31", "income": 11685, "expenditure": 17511, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-06-01", "end": "2021-05-31", "income": 6505, "expenditure": 3542, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "STEPHEN WILLIAM D'ALLENGER BRADSHAW", "chair": true, "appointment": "2013-05-27"}, {"name": "Gareth Griffiths", "chair": false, "appointment": "2024-05-20"}, {"name": "Katharina Sophie Vogt", "chair": false, "appointment": "2023-10-01"}, {"name": "Sarah Fleming", "chair": false, "appointment": "2024-05-20"}]}