REGisfEREDCOMPANY NUMBER: N1617725 (Northern Ireland) REGISTERED CHAIUTY IYUMBER: NIC102130 REPORTOFTHE TRUSTEES AND UlYALIDED FtYANCIAL STATEMEN7S FOR THE YEAR ESDEDJI AUGUST 2018 FOK TH£ ULTRA RARE DISEASES DISORDERS AND DISIIBILITIES FOLNDATIO M.B.McGNIN & Co Chaftu Accountants Suitc 2B Cadogan Ho 322 LISlM ROPAI Bclfa5t Lo. Anlrim BT9 6GH
THE ULTRA RARE DISEASES DISORDERS AND DISABILITIES FOUNDATION CONTENTS OFTHE FINANCIAL ATEmEwrS FOR THE YEAR ENDED 31 AL'GUST 2018 Page Reference and Administrative Details RepK)rt of the TnteeS Indewident Examinerfs Reixyt Ststemenl of Financial ArtiYitie5 Balance Sheet 5t06 Notes to the Financial Stazements 7t0 11 D¢tsil¢d Sthiement of Financial Activitie5 12
THF. ULTII4 RARE DISEASES DISORDERS AND DISABILITIES FOUNDATION REFERENCE AND ADMINISTRATIVE DETAILS FOR THE YEAR EIYDED31 AUCUST 2018 TRusfELS M Hw (Din*tor) T Hoey (Director) REGISTERED OFFICE Suite 2B 322 LI5lxn Ro Belf Co, Antrim BT9(H REGi%fERED COIIIPANY liUMBER N1617725 (Northern Ireland) REGISTERED CHARITY IWIUIIBER NIC102130 INDEPEYDEYI T EXAMINER 4.B.McGrth.& Co ChartLY¢d Accounlants Suitc 2B C&kn8an House 322 Lislmun Roxl Bclf&s1 Co. Antrim BT9 OCIH
THE ULTK4 II4RE DISEASES DISORDERS AND DISABILITIES FOUNDATION REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 AUGUST 2018 The tnistees who are also directors of the charity f(Y the purpo of the Companies Act 2(K)6. present their rert with th¢ fll]ancial swem¢nts of th¢ charity for the vear ended 31 August 2018. The tntee5 have adopted the provisions of Accounting and Rewrting by Charities: sernent of Recommended Practice applicable to charities preparing their 2ecoiinls in accordance with the Financial Rerting Standard applicable in the IIK and Repiiblic nf Ireland (FRS In2) {effethivc l January 2015). OWEcfivES AND ACTIVITIES Objertifves and aims 'lThe aim of the charity is to be a centre of sUprt advice & help fff chIldreadUlts and their families who have been diaonosed with a rare disease or an ultrd fdre dise&%e. The future of the Foundation includes a dedicated ieam of volunteers. counsellor's & medical stsff. Their aims are hRgh and with the help of fvnding and sponsorship and fundraising they hope to buy a large hou5¢ that thcy into a home from home. a place w'hcrc thc parcnts can bring their children io and a place of sanctuary for patients with special needs also a home where the whole famil), can go to for supp)rt and understanding and with your help they can make this happaL FIIYAIN'CIAL REVIEW The rEsults for the year and the Charitys end of year siti are shown in the thched accounts. STRUCTURE, GOVERNANCE AND MANAGEMENr Governing document The charity is controlled by its governing documenl a deed of trusL and constitu5 a limid company. limiied by guardntee, &s defined by the Companie5 Aa 2(Kkfj. Organisational strn¢turc 'Ik board of TnceS adminisler5 and holds the legal rESnsi711ty for the 8(1 management of the company. Apw)ved by order of the tx)ard of trustees on ... .. and signed on its behalf by: T Hoey - Tn[
tNDEPENDENT EXAmER's REPORT TO THE TRuEEs OF THE ULTRA RARE DISF.ASES DISORDERS AND DISABILITIES FOUNDATION I rewrt on the accounts of the company for the year en(kd 31 August 2018, which are set on F¢ges fow to eleven. Respectii'e responsibilities of charity trustees and examlner As the charity's trustees (and also the directors for the purFK)ses of company law) you are respNlb1e for the weparaiion of the accounts in aOrdanCe with the requircments of the Companies Act 2(N)6. Having satisfied myself that the charity is nol subject to audit under company law and is eli8il)le for independant examinatio it is my resp)nsbi ility to: Lmmine the accounts under secuon 65 of the Chariiies Act follow the procedures laid down in the general Direaions given by the Charity Commi55i(m for Northcm Jreland under Section 65(9Mb) of the Charitie5 Act sthle w'hether particular mallers have come to my attention. Basls of the Independent examiner's report I have examined your clwity acc(Kmts as required under sedion 65 of the Charitie5 Act and my examination wa5 carried out in accordance with the general Directions given by the Ch*ity Commission for Nothern Ireland under section 65(9Xb) of the Charilie3 ACL The examinati included a review of the accountin8 records kept by the charity and a comparison of the accounts presenied with those records. It also included consideration of any unusual item5 or disclosuS in the accounw and seeking ¢xplanatiODS from Y( as clwity trste¢S concerning any such matter5. My role is to SL2te whether any merial Mat[S have come to my attention giving me cause to believe: That accounting reciY&8 were not k¢pt in accordance with Section 386 of the C(Anpanies Act 2( That the accounts do not comply with the ac¢ouniing requirements of section 396 of the Companies Act 2006 and with the methods and principles of th¢ Charities St&ement of Recomrnended Prnctice applicable chariiies preparing their accounts in accord with the Financial RepMing Stsndanl applicable in the UK and Republic of IrelaJ)d That there is further inf(wmation Deeded for a un(kT5thndiDg of the aoUnts to be rh Independent examiner's sta¢¢ment I have completed my examination and have no concerns in respect of the matter5 (1) to (4) listed above and, in connection with following the Directions of th¢ Charity Commission f Northern Irclan(L I have found no manus that rrquire dTawin8 to your attenti(m. Seamus McLernon FCA M.B.McGrdd)' & Co Chartered Accouniants Suit¢ 2B Cadogan House 32? Lisburn RIMd Belfast Co. Antrtm BT9 6GH Dalc: ..................................-......-...
THE ULTRA RARE DISEASES DISORDERS AND DISABILITIES FOUNDATION STATEMETr OF FINANCIAL AcfIviTJES FOR THE YEAR ENDED 31 AUGUST 2018 2018 Unrestrictcd fund 2017 Total funds Notes INCOME AND ENDOWMENTS FROM Donations and legacies 1?.975 Total 12,975 EXPENDITURE ON Raising funds 10,062 NET INCOME 1.169 4.681 RECONCILIATION OF FUNDS Tot81 funds brought fonvard 6279 1.598 TOTAL FUNDS CARRIED FORWARD 6,279 The n(Kes form part of financial swements
THE ULTRA RARE DISEASES DISORDERS AND DISABILITIES FOUNDATION BALANCE SHEET AT31 AUGU 2018 2018 Unrestricted fund 2017 Total funds Noies FIXED ASSETS Tangible &55ets 6,184 7,090 CURRENT ASSETS Cash at bank CREDITORS Amounts falling due within one year (720) (811) NET CURRE SETS1(LIABILITlES) lJ64 (811) TOTAL ASSETS LESS CURRENT LIABILITIES 6279 NET ASSETS 6279 FUNDS Unrestricted funds TOTAL FUNDS 6,279 The nos forni p&t of these fmancial staments continued...
THE ULTIL4 IL4RE DISEASES DISORDERS AND DISABILITIES FOUIYDAI"IU BALANCE SHEET- CONTINUED AT31 AUGUST2018 The charitable company is entided to exempti from audit under Section 477 of the Companies Act 21X)6 for the year ¢nd¢d 3 J Augu512018. The members have not required the company to olxain an audit of its financial stttements fff Ihe year ended 31 August 2018 tn accordantt with Section 476 of the Com[leS Act 21x16. The In1eeS acknowled8e their reSFKMil)j1itieS for (a) ¢nsuring that thc charitabl¢ company keeps accounting that comply with Sections 386 and 387 of the Companies Aci 2006 and prcparing financial siatements which give a true and fair view of the sthte of affairs of the charioble company as at the end of each financial vear and of its surplus or deficit for each fll)ancial vear in accordance with the requirements of Seaions 394 and 395 and which otherwis¢ comply w ith th¢ requiremen of the Conipanics Act 21X)6 relating to financial siatements. so far as applicable to the charitable company. (b) These financial sthiemen(s have been pr¢par¢d in with the special provisions of Part 15 of th¢ Companic5 Act 2(KJ6 relating to charitable small companies. The financial sthtements were approved by thc Board of Tn on ............................................. and wcr¢ 5ignd on its Ixhalf b),: T H(Ky -Trustee The notes forn) of these financial staiemen
THE ULTRA RARE DISF.ASE& DISORDERS AND DISABILITIES FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 AUGu¥f 2018 ACCOu1ING POLICIES Basi5 of preparin% the fanCIal statements The financial siatcmenis of the charilable comw. which is a wblic bcncfit cniity under FRS 102. havc Ixcn prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting bv Chariti¢5: Stalemenl of Recommended Practice applicable to eh8rities preparing their accounts in accordance with the Financial Reporting Stsndard applicable in the UK and Republic of Ireland (FRS JO?) (effective l January 2015),, Financial Reporting Standard 102 Tr Financial Retx)rting Standard applicable in the UK and Republic of Ireland. and the Companies Act 2(K16. The financial statements have beffl prepar&J under the historical cost convenuon. Income All income is rwognis¢d in the Stst¢m¢nt of Financia] Activiti¢5 once th¢ chty has cntitlemeni to the funds it is probable thai the income will bc rc]Ved and the amount can be mcasurcd rcliablv. Expenditure Liabiliiies are recogni5ed as eX]dItUre as s(x)n as thcrc is a legal or constnictive obligation committing the charity to that expenditure. it is probable th21 a transfer of ecomIC [nefits ]11 k rrquired in settlement and thc amount of th¢ obliwion Can be measured reliably. Expcnditure is accounted for on an accruals basis and has been CIlfied under he&linss that aggrega all c05t rclatcd to the catcgorv. Where costs cannot be directly attributed to particular heJIng5 they have been allocated to activllies on a basis wnsistent with the usc of Tangibk fixed a55ets Depreciation is provided at the following annual ras in order to write off each asset over its estimated useful Taxation The charity is exempt from corN)l( thx on its charithble tiVities. Fund accounting Unrestrithed fidS can be used in acconkn with the charitable objedives at the discretion of the In5. Restricted funds can onty be used particular rcstricted purposes within the objects of the charity. Restrictions arise when 5pecificd by the donor or when funds are raised for wticular restricted PUryK)5¢5. FurtlKr ¢xplan&ion of th¢ nanwc and purp05¢ of ¢ach fimd is included in thc n(rtcs kn the fthancial 3tat¢m¢n RAISING FUNDS Raising donations and legxeies 2018 2017 Support costs 10,065
THE ULTRA RARE DISEASES DISORDERS AND DISABILITIES FOUNDATION NOTES TO THE FINANCIAL ATEmEP[[s- CONllNUED FOR THE YEAR EYDED 31 AUGUST 2018 NET INCOMEI(EXPENDITURE) Net incomeJ(¢xpeDdituR) is stated after ¢hargingl(crediting): 2018 2017 DepreCi10n . owned &sseLS 929 TRUSTEES, REMUNERATION AND BENEFITS There were no tr$1¢¢5, rcmuneraiion ty other benefits for the year ded 31 August 2018 nor for the year ended 31 August 2017. Tru5tffs' ¢xpen5es There were no trusiees, exFnses paid for the year ended 31 August 2018 nor for the year eth 31 August 2017 . COMPARATIVES FOR THE STATEMEiYf OF FINANCIAL AcfiviTIES Unrestrlcted fund INCOME AND ENDOWMEKfs FROM Donations and legacies 12,975 Totsi 12,975 EXPENDITURE ON Raising funds 8,294 Totsl 8294 NET INCOME 4.681 RECONCILIATION OF FUNDS Total funds brought forward 1,598 TOTAL FUNDS CARRtED FX)RWARD 6279
THE ULTIL4 RARE DISEASES DISORDERS AND DISABILITIES bOUNDATION OTES TO THE FINANCIAL STATEMENTS- CONTINUED FOR THE YEAR ENDED 31 AUGUST 2018 TknYGIBLE FIXED ASSETS oirKe fllture3 and Building rittiDgs Motor vehicles Computer equlpment Tota15 COST At I Sepiemkr 2017 and 31 August 2018 3ffj34 8279 DEPRECIATION At I septernr 2017 ChargL for year 153 76 799 799 237 31 1.189 906 At 31 August 2018 229 lJ98 2.095 NET BOOKVALUE At 31 Augusi2018: 2J97 6,184 At31 Augusi 2017 3,634 229 3.196 31 7.090 CREDITOILS: AMOUMS FALLING DUE WITHIN ONE YEAR 2018 2017 Bank loans and overdrafts (stt no 8) Accountancy 91 720 720 720 811 LOANS An alYSIS of th¢ maturity of loans is given below: 2018 2017 Amounts falling due within one year on demand. Bank overdraft 91 MOVEME IN FUNDS Net movement in fund5 At In)117 At311W18 Unrestricted funds General fund 6379 1,169 TOTAL FUNDS 6279 1.169 7,448
THE ULTRA RARE DISEASE& DISORDERS AND DISABILITIES FOUliDATIO, NOTES TO THE FINANCIAL ATEmENTS-cOfiNuED FOR THE YEAR ENDED 31 AUGUST 2018 MOVEMENT IN FUNDS- continued Net movcmcnt in funds, included in the above are as follows: Incoming resourees Resources MoTr'ement In expended funds Unrestricted fundj General fimd (10,062) 1,169 TOTAL FUNDS (10,062) 1,169 ComparatiTr'es for movement in funds Net movement in fund5 At lTrllO At 31TrA17 Unrestrleted Funds Genernl fimd lJ98 4,681 6279 TOTAL FUNDS 4,681 6279 Compamive net movemeni in fvnds. included in the thve are as follows: Inming Resources Movement in expended funds unre5lrici funds General fvnd 11975 (&294) 4,681 TOTAL FUNDS l L975 (&294) 4.681 A current year 12 mMths aNI prior year 12 months combined w5ition is &$ follows: Net mOement in funds At 1fy116 At311W18 Unrestricled funds Gfflierdl fund TOTAL FUNDS lJ98 50.9) 10
THE ULTRA RARF DISEASES DISORDERS AND DISABILITIES FOUNDATION NOTES TO THE FINAIYCiAL STATF.MENTS- COlNUED FOR THE YEAR ENDED 31 AUGUST 2018 MOVEMENT IN FUNDS. continued A current Y 12 months and prior ycar 12 months combined nct movcmcnt in fund& includ in the abovc as follows: Incoming Resourees Movement in expended funds Unrestricted funds General fund 242( (18J56) 5350 TOTAL FUNDS 242 (18J56) 5*50 10. RELATED PARTY DISCLOSURES There were no relaied party transacti for the year end 31 August 2018. VOLUNTARY INCOME Voluntary Income includes £8.623 CeIVed from the tsiste Terry and Maur¢¢n H(w. io cover expenditure incurred by the charity.
TIIE ULTRA RARE DISEASES DISORDEILS AND DISABILITIES FOUNDATION DETAILED STATEMENT OF FINANCIALA[ES FOR THE YEAR ENDED 31 AUGUST 2018 2018 2017 INCOMF. AIYI) F.NIK)WMErffs Donations and kgaci Donaiions 11231 1?,975 Total incoming resources 12.975 EXPENDITURE Other trading activities Exceptional ilcms (3) Support Costs ManA%ement Insurance Molor Telephone Postsge and stiOnery Advertising Sundries OtTice & computer membeh1p fces 80 299 220 976 9.44 778 228 360 4.236 690 287 140 &119 6.557 Finance Bank charges Fixiure5 and fittings Motor vehicles Computer equipmeni 107 76 799 31 76 799 1.013 1.043 Goi'erngnce costs Accounwicy and le8 fees 933 694 Totsi resource5 expended I002 8294 Net income 1,169 4.681 This page thes forn) part of the strtory financial ststsments 12