REGisfEREDCOMPANY NUMBER: N1617725 (Northern Ireland)
REGISTERED CHAIUTY IYUMBER: NIC102130
REPORTOFTHE TRUSTEES AND
UlYALID￿ED FtYANCIAL STATEMEN7S FOR
THE YEAR ESDEDJI AUGUST 2018
FOK
TH£ ULTRA RARE DISEASES DISORDERS AND
DISIIBILITIES FOLNDATIO
M.B.McGNIN & Co
Chaftu￿ Accountants
Suitc 2B
Cadogan Ho
322 LISl￿M ROPAI
Bclfa5t
Lo. Anlrim
BT9 6GH

THE ULTRA RARE DISEASES DISORDERS AND
DISABILITIES FOUNDATION
CONTENTS OFTHE FINANCIAL ￿ATEmEwrS
FOR THE YEAR ENDED 31 AL'GUST 2018
Page
Reference and Administrative Details
RepK)rt of the Tn￿teeS
Indewident Examinerfs Reixyt
Ststemenl of Financial ArtiYitie5
Balance Sheet
5t06
Notes to the Financial Stazements
7t0 11
D¢tsil¢d Sthiement of Financial Activitie5
12

THF. ULTII4 RARE DISEASES DISORDERS AND
DISABILITIES FOUNDATION
REFERENCE AND ADMINISTRATIVE DETAILS
FOR THE YEAR EIYDED31 AUCUST 2018
TRusfELS
M Hw (Din*tor)
T Hoey (Director)
REGISTERED OFFICE
Suite 2B
322 LI5lx￿n Ro
Belf
Co, Antrim
BT9(￿H
REGi%fERED COIIIPANY liUMBER N1617725 (Northern Ireland)
REGISTERED CHARITY IWIUIIBER
NIC102130
INDEPEYDEYI T EXAMINER
4.B.McGrth.& Co
ChartLY¢d Accounlants
Suitc 2B
C&kn8an House
322 Lislmun Roxl
Bclf&s1
Co. Antrim
BT9 OCIH

THE ULTK4 II4RE DISEASES DISORDERS AND
DISABILITIES FOUNDATION
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 AUGUST 2018
The tnistees who are also directors of the charity f(Y the purpo￿ of the Companies Act 2(K)6. present their re￿rt with
th¢ fll]ancial swem¢nts of th¢ charity for the vear ended 31 August 2018. The tn￿tee5 have adopted the provisions of
Accounting and Rewrting by Charities: s￿￿ernent of Recommended Practice applicable to charities preparing their
2ecoiinls in accordance with the Financial Re￿rting Standard applicable in the IIK and Repiiblic nf Ireland (FRS In2)
{effethivc l January 2015).
OWEcfivES AND ACTIVITIES
Objertifves and aims
'lThe aim of the charity is to be a centre of sUp￿rt advice & help fff chIldre￿adUlts and their families who have been
diaonosed with a rare disease or an ultrd fdre dise&%e. The future of the Foundation includes a dedicated ieam of
volunteers. counsellor's & medical stsff. Their aims are hRgh and with the help of fvnding and sponsorship and
fundraising they hope to buy a large hou5¢ that thcy into a home from home. a place w'hcrc thc parcnts can bring
their children io and a place of sanctuary for patients with special needs also a home where the whole famil), can go to
for supp)rt and understanding and with your help they can make this happaL
FIIYAIN'CIAL REVIEW
The rEsults for the year and the Charitys end of year ￿siti￿ are shown in the thched accounts.
STRUCTURE, GOVERNANCE AND MANAGEMENr
Governing document
The charity is controlled by its governing documenl a deed of trusL and constitu￿5 a limi￿d company. limiied by
guardntee, &s defined by the Companie5 Aa 2(Kkfj.
Organisational strn¢turc
'Ik board of Tn￿ceS adminisler5 and holds the legal rES￿nsi￿711ty for the 8(￿￿1 management of the company.
Apw)ved by order of the tx)ard of trustees on ...
.. and signed on its behalf by:
T Hoey - Tn￿[

tNDEPENDENT EXAm￿ER's REPORT TO THE TRu￿EEs OF
THE ULTRA RARE DISF.ASES DISORDERS AND
DISABILITIES FOUNDATION
I rewrt on the accounts of the company for the year en(kd 31 August 2018, which are set on F¢ges fow to eleven.
Respectii'e responsibilities of charity trustees and examlner
As the charity's trustees (and also the directors for the purFK)ses of company law) you are respN￿lb1e for the weparaiion
of the accounts in a￿OrdanCe with the requircments of the Companies Act 2(N)6.
Having satisfied myself that the charity is nol subject to audit under company law and is eli8il)le for independant
examinatio￿ it is my resp)nsbi ility to:
Lmmine the accounts under secuon 65 of the Chariiies Act
follow the procedures laid down in the general Direaions given by the Charity Commi55i(m for Northcm Jreland
under Section 65(9Mb) of the Charitie5 Act
sthle w'hether particular mallers have come to my attention.
Basls of the Independent examiner's report
I have examined your clwity acc(Kmts as required under sedion 65 of the Charitie5 Act and my examination wa5 carried
out in accordance with the general Directions given by the Ch*ity Commission for Nothern Ireland under section
65(9Xb) of the Charilie3 ACL The examinati￿ included a review of the accountin8 records kept by the charity and a
comparison of the accounts presenied with those records. It also included consideration of any unusual item5 or
disclosu￿S in the accounw and seeking ¢xplanatiODS from Y(￿ as clwity tr￿ste¢S concerning any such matter5.
My role is to SL2te whether any m￿erial Mat￿[S have come to my attention giving me cause to believe:
That accounting reciY&8 were not k¢pt in accordance with Section 386 of the C(Anpanies Act 2(
That the accounts do not comply with the ac¢ouniing requirements of section 396 of the Companies Act 2006
and with the methods and principles of th¢ Charities St&ement of Recomrnended Prnctice applicable ￿ chariiies
preparing their accounts in accord￿ with the Financial RepMing Stsndanl applicable in the UK and Republic
of IrelaJ)d
That there is further inf(wmation Deeded for a un(kT5thndiDg of the a￿oUnts to be r￿h
Independent examiner's sta¢¢ment
I have completed my examination and have no concerns in respect of the matter5 (1) to (4) listed above and, in
connection with following the Directions of th¢ Charity Commission f￿ Northern Irclan(L I have found no manus that
rrquire dTawin8 to your attenti(m.
Seamus McLernon FCA
M.B.McGrdd)' & Co
Chartered Accouniants
Suit¢ 2B
Cadogan House
32? Lisburn RIMd
Belfast
Co. Antrtm
BT9 6GH
Dalc: ..................................-......-...

THE ULTRA RARE DISEASES DISORDERS AND
DISABILITIES FOUNDATION
STATEMETr￿ OF FINANCIAL AcfIviTJES
FOR THE YEAR ENDED 31 AUGUST 2018
2018
Unrestrictcd
fund
2017
Total
funds
Notes
INCOME AND ENDOWMENTS FROM
Donations and legacies
1?.975
Total
12,975
EXPENDITURE ON
Raising funds
10,062
NET INCOME
1.169
4.681
RECONCILIATION OF FUNDS
Tot81 funds brought fonvard
6279
1.598
TOTAL FUNDS CARRIED FORWARD
6,279
The n(Kes form part of financial swements

THE ULTRA RARE DISEASES DISORDERS AND
DISABILITIES FOUNDATION
BALANCE SHEET
AT31 AUGU￿ 2018
2018
Unrestricted
fund
2017
Total
funds
Noies
FIXED ASSETS
Tangible &55ets
6,184
7,090
CURRENT ASSETS
Cash at bank
CREDITORS
Amounts falling due within one year
(720)
(811)
NET CURRE￿ ￿SETS1(LIABILITlES)
lJ64
(811)
TOTAL ASSETS LESS CURRENT
LIABILITIES
6279
NET ASSETS
6279
FUNDS
Unrestricted funds
TOTAL FUNDS
6,279
The no*s forni p&t of these fmancial sta*ments
continued...

THE ULTIL4 IL4RE DISEASES DISORDERS AND
DISABILITIES FOUIYDAI"IU
BALANCE SHEET- CONTINUED
AT31 AUGUST2018
The charitable company is entided to exempti￿ from audit under Section 477 of the Companies Act 21X)6 for the year
¢nd¢d 3 J Augu512018.
The members have not required the company to olxain an audit of its financial stttements fff Ihe year ended
31 August 2018 tn accordantt with Section 476 of the Com[￿leS Act 21x16.
The In1￿eeS acknowled8e their reSFKM￿il)j1itieS for
(a)
¢nsuring that thc charitabl¢ company keeps accounting ￿ that comply with Sections 386 and 387 of the
Companies Aci 2006 and
prcparing financial siatements which give a true and fair view of the sthte of affairs of the charioble company as
at the end of each financial vear and of its surplus or deficit for each fll)ancial vear in accordance with the
requirements of Seaions 394 and 395 and which otherwis¢ comply w ith th¢ requiremen￿ of the Conipanics Act
21X)6 relating to financial siatements. so far as applicable to the charitable company.
(b)
These financial sthiemen(s have been pr¢par¢d in with the special provisions of Part 15 of th¢ Companic5
Act 2(KJ6 relating to charitable small companies.
The financial sthtements were approved by thc Board of Tn￿ on ............................................. and wcr¢ 5ignd on its
Ixhalf b),:
T H(Ky -Trustee
The notes forn) of these financial staiemen

THE ULTRA RARE DISF.ASE& DISORDERS AND
DISABILITIES FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 AUGu¥f 2018
ACCOu1￿ING POLICIES
Basi5 of preparin% the f￿anCIal statements
The financial siatcmenis of the charilable comw. which is a wblic bcncfit cniity under FRS 102. havc Ixcn
prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting bv Chariti¢5: Stalemenl
of Recommended Practice applicable to eh8rities preparing their accounts in accordance with the Financial
Reporting Stsndard applicable in the UK and Republic of Ireland (FRS JO?) (effective l January 2015),,
Financial Reporting Standard 102 Tr Financial Retx)rting Standard applicable in the UK and Republic of
Ireland. and the Companies Act 2(K16. The financial statements have beffl prepar&J under the historical cost
convenuon.
Income
All income is rwognis¢d in the Stst¢m¢nt of Financia] Activiti¢5 once th¢ chty has cntitlemeni to the funds it
is probable thai the income will bc r￿c]Ved and the amount can be mcasurcd rcliablv.
Expenditure
Liabiliiies are recogni5ed as eX￿]dItUre as s(x)n as thcrc is a legal or constnictive obligation committing the
charity to that expenditure. it is probable th21 a transfer of ec￿omIC [￿nefits ￿]11 k rrquired in settlement and
thc amount of th¢ obliwion Can be measured reliably. Expcnditure is accounted for on an accruals basis and has
been CI￿lfied under he&linss that aggrega* all c05t rclatcd to the catcgorv. Where costs cannot be directly
attributed to particular he￿JIng5 they have been allocated to activllies on a basis wnsistent with the usc of
Tangibk fixed a55ets
Depreciation is provided at the following annual ra*s in order to write off each asset over its estimated useful
Taxation
The charity is exempt from corN)￿l(￿ thx on its charithble ￿tiVities.
Fund accounting
Unrestrithed fi￿dS can be used in acconkn with the charitable objedives at the discretion of the In￿5.
Restricted funds can onty be used particular rcstricted purposes within the objects of the charity. Restrictions
arise when 5pecificd by the donor or when funds are raised for wticular restricted PUryK)5¢5.
FurtlKr ¢xplan&ion of th¢ nanwc and purp05¢ of ¢ach fimd is included in thc n(rtcs kn the fthancial 3tat¢m¢n
RAISING FUNDS
Raising donations and legxeies
2018
2017
Support costs
10,065

THE ULTRA RARE DISEASES DISORDERS AND
DISABILITIES FOUNDATION
NOTES TO THE FINANCIAL ￿ATEmEP[[s- CONllNUED
FOR THE YEAR EYDED 31 AUGUST 2018
NET INCOMEI(EXPENDITURE)
Net incomeJ(¢xpeDdituR) is stated after ¢hargingl(crediting):
2018
2017
DepreCi￿10n . owned &sseLS
929
TRUSTEES, REMUNERATION AND BENEFITS
There were no tr￿$1¢¢5, rcmuneraiion ty other benefits for the year ￿ded 31 August 2018 nor for the year ended
31 August 2017.
Tru5tffs' ¢xpen5es
There were no trusiees, exFnses paid for the year ended 31 August 2018 nor for the year eth 31 August 2017 .
COMPARATIVES FOR THE STATEMEiYf OF FINANCIAL AcfiviTIES
Unrestrlcted
fund
INCOME AND ENDOWMEKfs FROM
Donations and legacies
12,975
Totsi
12,975
EXPENDITURE ON
Raising funds
8,294
Totsl
8294
NET INCOME
4.681
RECONCILIATION OF FUNDS
Total funds brought forward
1,598
TOTAL FUNDS CARRtED FX)RWARD
6279

THE ULTIL4 RARE DISEASES DISORDERS AND
DISABILITIES bOUNDATION
OTES TO THE FINANCIAL STATEMENTS- CONTINUED
FOR THE YEAR ENDED 31 AUGUST 2018
TknYGIBLE FIXED ASSETS
oirKe fllture3 and
Building
rittiDgs
Motor
vehicles
Computer
equlpment
Tota15
COST
At I Sepiemkr 2017 and
31 August 2018
3ffj34
8279
DEPRECIATION
At I septern￿r 2017
ChargL for year
153
76
799
799
237
31
1.189
906
At 31 August 2018
229
lJ98
2.095
NET BOOKVALUE
At 31 Augusi2018:
2J97
6,184
At31 Augusi 2017
3,634
229
3.196
31
7.090
CREDITOILS: AMOUMS FALLING DUE WITHIN ONE YEAR
2018
2017
Bank loans and overdrafts (stt no￿ 8)
Accountancy
91
720
720
720
811
LOANS
An ￿alYSIS of th¢ maturity of loans is given below:
2018
2017
Amounts falling due within one year on demand.
Bank overdraft
91
MOVEME￿ IN FUNDS
Net
movement in
fund5
At In)117
At311W18
Unrestricted funds
General fund
6379
1,169
TOTAL FUNDS
6279
1.169
7,448

THE ULTRA RARE DISEASE& DISORDERS AND
DISABILITIES FOUliDATIO,
NOTES TO THE FINANCIAL ￿ATEmENTS-cO￿fiNuED
FOR THE YEAR ENDED 31 AUGUST 2018
MOVEMENT IN FUNDS- continued
Net movcmcnt in funds, included in the above are as follows:
Incoming
resourees
Resources MoTr'ement In
expended
funds
Unrestricted fundj
General fimd
(10,062)
1,169
TOTAL FUNDS
(10,062)
1,169
ComparatiTr'es for movement in funds
Net
movement in
fund5
At lTrllO
At 31TrA17
Unrestrleted Funds
Genernl fimd
lJ98
4,681
6279
TOTAL FUNDS
4,681
6279
Compamive net movemeni in fvnds. included in the thve are as follows:
In￿ming
Resources Movement in
expended
funds
unre5lrici￿ funds
General fvnd
11975
(&294)
4,681
TOTAL FUNDS
l L975
(&294)
4.681
A current year 12 mMths aNI prior year 12 months combined w5ition is &$ follows:
Net
mO￿ement in
funds
At 1fy116
At311W18
Unrestricled funds
Gfflierdl fund
TOTAL FUNDS
lJ98
50.9)
10

THE ULTRA RARF DISEASES DISORDERS AND
DISABILITIES FOUNDATION
NOTES TO THE FINAIYCiAL STATF.MENTS- CO￿lNUED
FOR THE YEAR ENDED 31 AUGUST 2018
MOVEMENT IN FUNDS. continued
A current Y￿ 12 months and prior ycar 12 months combined nct movcmcnt in fund& includ￿ in the abovc
as follows:
Incoming
Resourees Movement in
expended
funds
Unrestricted funds
General fund
242(
(18J56)
5350
TOTAL FUNDS
242
(18J56)
5*50
10.
RELATED PARTY DISCLOSURES
There were no relaied party transacti￿￿ for the year end￿ 31 August 2018.
VOLUNTARY INCOME
Voluntary Income includes £8.623 ￿CeIVed from the tsiste￿ Terry and Maur¢¢n H(w. io cover expenditure
incurred by the charity.

TIIE ULTRA RARE DISEASES DISORDEILS AND
DISABILITIES FOUNDATION
DETAILED STATEMENT OF FINANCIALA￿￿￿[ES
FOR THE YEAR ENDED 31 AUGUST 2018
2018
2017
INCOMF. AIYI) F.NIK)WMErffs
Donations and kgaci
Donaiions
11231
1?,975
Total incoming resources
12.975
EXPENDITURE
Other trading activities
Exceptional ilcms
(3)
Support Costs
ManA%ement
Insurance
Molor
Telephone
Postsge and s￿tiOnery
Advertising
Sundries
OtTice & computer
membe￿h1p fces
80
299
220
976
9.44
778
228
360
4.236
690
287
140
&119
6.557
Finance
Bank charges
Fixiure5 and fittings
Motor vehicles
Computer equipmeni
107
76
799
31
76
799
1.013
1.043
Goi'erngnce costs
Accounwicy and le8￿ fees
933
694
Totsi resource5 expended
I￿002
8294
Net income
1,169
4.681
This page thes forn) part of the strt￿ory financial ststsments
12