Killowen Fundraising Group TRUSTEES. REPORT for the year ended 30 September 2018 The Iruste8s pr8s8nl their Report aThJ cJn1S for Killowen FundraIr¥j Group for the year ended 301h September 2018. Objectives and Activiti•s- The purpose of the charity is to; 1. To offer valuable. practical help and conb"nuou$ 5UPPOrt to the Grant brothws from Killowen who suffer from Duchenne Musculaf Dystrophy (Duehennel and their parents. 2. To offer Support and advice lo other Duchenne families in the Newrylmourne Distr Couribil Ar¥ 3. To raise funds in the South Dovm area by local events and avrdreness of need for more funding. 4. To use these events lo Greate awareness of Duchenne in the cornrnunty via radiolpTessfinterneVsocial mÈdialinformation she8tslfvndralserslactitie$1pr(I¢ts 5. To support Ihe wder Duchenne comrnunity via"Acison [1xne. ant1 lobbyiru. e. Tu 4s5i51 current rE5earch JectS that aim to pyovkje better treatments for Duchenne 7. To ensure the charity has adequate funds to enable the iEneficiaries to benefft from new trealment should any hp.r.nrnp AVAiIAhlp. In setting our objectives and planning Iwr tiVitieS for the year the tnjslees have given car&ful ¢ons¥Jeration to the Charity Commission for Northern Ireland's gvKlarte on public benefiL to ensure that the aCtits"e5 h8ve helped to achieve the charity's purpos8 and pmwde 8 benefit to the benelaries. Trustees Thè trijstees who sgrve(I during the year are as folbws: Mrs Tracey Rice Ms Aslinn Grant Mr Roger Morgan Mrs Margaret Mcmanus Mr Martin Grant Miss K8lhleen Grant Miss Helen McAvoy Mr Aidan MUrdk Mrs Oenise Mccann Mr John Rice Mr Brian McAnu Mr Michael Grant Achi•Yoments and Pèrfomi•nG The charity have continued to sUsSlI raise fijnds in the I1 area. The annual 'rniles for rnuscles, wn was onc8 again a very su¢¢essfvl and enjoyable day. The charrty OaniSed a trip to Disneyland for its beneflarieS which uld not have b8en possble wthout the help ofthe charity. Flnanclal Revlew The charity incurred a defici( of £3,611 for the year ended 30 September 2018 mainly due lo the on&off co819 in roltion to tho trip to Dign@yl2nd. At th• y•r 4ndgd SoPt0mboT 2018 the charrty had rg¢orv¢w of £69,800, oll of whi¢h is unrestricted funds. These funds a hekl in order to meet expècted future expenses should incorning resources dirnini5h or were targets a nol &hieved in the hope that better treatrnent or even a cure for Du¢h8nne may b8coTh availab in the fijture. Future D•v•lopm¢nts- The charity's plans for y•r *nded are to; continue lo provide physiolherapy for the beneficAaries - to conb.nue to support creative technology and gaming workshcps for pulS atterKI St Marks"ECPD Un xfter school ¢lub and provide fundiryJ for classroom a&%islants rf necessary - lo continuè lo pledg8 [nieS to Kay Dawes Researth on Utophin - adaplign Df new VEhide for Iwo wheelchairs for the benefioaries
Killowen Fundraising Group TRUSTEES. REPORT for the year ended 30 September 2018 By ordgr of tho Board [{ Mr Brian MeAnulty Trustee Mrdan Murdock ee racey Ri Trustee Date: 21 January 2019