BOOM F•UIIIIIo1 Th• Boom Foundation (NIC1005611 TRUSTEES. REPORT For th• y•ar •nded 31 March 2023 Th8 trustees pr08ent their Trustees. Rewt under the Charities SORP In acrda10 wlth audlted financial staiements lor Ihe year end8(1 31 March 2023 al80 prapar8d In acrdanCe wlth the aforemen1 Siatement of RecornrTN8nded Practice. The Trustees vtho served during thls year wero as lolhm: Leona Rankln Joann8 Smiih Kent Smilh Tony Wilson Sandra McAllister Laura Rankin ObJ•ctlv• and Actlvftl Th• Boom Foundatlon (tho ¥Charlty") is the only charity In Northem Irèland dedicated to support- Ing Pabents Suffering from Garcoma cancer. There aro, in or around. 1 new paMnt8 diagn08ed Wlth Sarcorna each yoar In Nl. Th8 Charity'8 objectives are to (1) promote and protect the physical and m•nlal health of 8ufferer3 of sarcoma cancer in Northem Iland through the provrnion of finano'al assistan, support and acb.cal adviee (2) to advaru the educatK)n of the general public In all areas relabng lo sarcoma {3) to advance th8 res•arch of Sarcoma cancer through the provlslon of financial gUPPOrt to Sar- corna UK ('Sar¢oma UK") (a regi8t8rnd chanty In the UK under charity number 7487432) Achl•v•m•nts The 8oom Foundation is the Mly charity in Northem lrnland dedicated to 8Upp.n9 patients 8Lrf- fering from sarcoma canc•r. Sinc• October 2013, the 80(Kn FndatIOn ha8 worked alongside Sarcoma UK, allowlng it to en• hance its undorstanding surrourKling the dgnoSeS and treatrnent of sarcoma as w811 as enguring that research is continually 8UPPOrted through rts own endeavourn. 50% of the money raised by the Charity ig used in Northem Ireland, offerirrfJ wath.cal Supp and agsistance to patsnts lIst the remaining 50% 18 sont 10 Sarcoma UK to fund vrtal research Into Sarcoma and rt8 treatrnonL Th8 Charrty's lour tru8tee8 and member8 of the Chafty glve their tlme voluntarily to en8ure that palbents recéive the 8UPPOrt that they require. The Chanty relie8 i>n the conbnuing support and generosrty ol individuals, txN'ne6se8 and organ18aticTh across Northem Ir8land. Boom al80 w5 do8ely health wofesslonals in Nthm Ireland which means that it Kmid88 supwt in the right Way to patsent8 and their familieg. Boom ha8 a unique referral system in place with ts 8ellast Health and Social Care Trust and Ihe South Eastem Health and soal Care Trust en a patient is diagnosed in Northern Ireland with sarcoma (and provides thelr necessary coTh eent), a referr is made by their Gcnsultant oncologist (or Sarcoma Ch'Thcal NurBe Speciali8t> and
sent to Boom. Boom have a dedic8ted team of volunteern who liaise wlth the p8b.ent thrr)ughout thoir treatment. ensuring that th8y and thwr family receive th8 nIetted support they require wrth- out delay. Referrals for financial Support are not means tested in any way and examples of Su port Incl18 the following (the followirKJ list IS not exhau8tive) 1. winter fuel allowance (sent to every palient In January l February of each year): 2. car modthcatlons (for instance, followifvJ a potient'• amwtation),, 3. wvate counselling.. 4. wivate tultlon for children undertaklrwd treatment durlng GCSE I AS I A-L•vel; 5. travel insurance", 8. furmling the travel to GB and atrAoad for patient8, famili85 during period8 of treatrnont: and 7. weekend breaks. The Boom Foundation facllitate8 Ithry only 8UPPOrt group in Nthern lrnland. The Support group. which is held quarterly. provbdes Pabents arKJ thelr families wlth an op•n forum alk)wing thom to discuss any problems or concem8 that they may h8ve. The support group 18 not lypical. In tho 8en8e that rt run Ilke a 'mob"vatK)nal WQfkshop' Wilh proles$lonai kni th'scus8n• and key speak- In September 2022, the BcM Foundatlon held a large scale pab8nt information day, attended by Sarcoma patsents, their familiethiends and other Charrt&. A range of speakers presented on the day including urcoma consuiiants. professionals frDm Sarcoma UK. dinical nurse 8peaalist8 and patsent8. The Boom Foundation prepar8s for its gal8 dinner in April 2023 which has been postponed (kn to the Covid-19 Pandemic. 11 i& envigaged that Ihe proce6d8 from the Gala dinner will Increase the income of the charity for next financial year. Flnancl•l R•vl•w There has been a decr8aso In our overall Income to £30,534 (last year £48,8). Fund8 have been raised Ihrough communlty fundraising, donatlons from groups and irKliNryduals. Tr decraase was anribuied to a coniinued lack of publlc lundrsIng due to the conb'nued Cov1&19 ParKlemiG. Al the 8rKI of ts year, tha Charity had lunds of totalling £180.855 and no debt, Structurn, Govemanc• WKI Manag•rn•nt Goveming Document The &>om Foundabon 18 a ragistered eharfty and is g0vend by the terns of its constitutlcffi. Th8 Boom Foundabon is regi&ered with the Charlty Commisswi Nl and is placed on Ithg NortIrn Ire- land reg18ter of charitss on 18 January 2015. MM•g•m•nt Commltt•• Th8 obi8CIiVO8 and actslIaS 01 th8 Charity are administered by a Management Commrtlee ol less Ihan four members agas 18 years and ovor and who are elecie(l at th8 Annual G8neral t- Ing. the Management Commlltee shall m88t not less 4 11.mes per annum. y Ixdor of the Board Leona Rankin Trustse
Srnilh Trustee Dato. 30