REGISTERED COMPANY NUMBER: 2202260 (England and Wales) REGISTERED CHARITY NUMBER: 327735 REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 ECEMBE 24 FOR T.O.F.S. Lemans 29 Arboretum Street Nottingham NG14JA
CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 Page Report of the Trustees Independenl Examinerfs Report 13 Statement of FinancAal Actiwt 14 Balance Sheet 15 Notes to the Financial Statements 17 Detailed Statement of Financial Activiti'es 23
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2024 The Truslees. who are also directors of the chartty for the purposes of the Companies Act 20C6, presenl their report with the financial statements of the charrty for the year ended 31 December 2024. The Trustees have adopted the provisions of the Statement of Recommended Practice (SORP) "Accounting and Reporting by Chartlies. in preparing the annual report and financial sLitements of the chanty. The financial statements have been prepared in accordance wilh the accounting policies set out in the noles to the accounts and comply with the Chartty's goveming doGument. the Charities Act 2011, the Companies Acl 2(, the Memorandum and ArtiCS of Association and Accounting and Reporting by Charilies.. Statement of Recommended Practice applicable to charities preparing their accounts in accordan with the Financial Reporting Standard. applicable in the UK and Republic of Ireland published in October 2019. REFERENCE AND ADMINISTRATIVE DETAILS Registered Company numbor 2202260 (England and Wales) Regl8terod Charlty numb•r 327735 Rogistsred offi¢• St George's Centre 91 Victoria Road Netherfield Nottingham NG4 2NN Tru8te08 Andrew Bailey Duncan Jackson John Pearce Darrell Hill Trace Loffman Graham Slater Clare Johns Sue L8wis-Jones Tamasine Swan Katrina Tyler Chair (frorn 9 May 2024) Chair (until 9 May 2024, Vice-chair from 9 May 2024) Vice Chair and Treasurer (resigned 18 April 2024>) Treasurer (since 18 April 2024) Secretary (resigned 18 April 2024) Secretary (frThn 18 April 2024) Chl•f Executlve Olllc•r Dne Stephens Independent Examlner K Mealand FCCA Lemans 29 Arboretum Street Nottingham NG14JA 8ank•rn Caf Bank 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ Page 1
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 STRUCTURE, GOVERNANCE AND MANAGEMENT Objectives and aims The principal objective of T.O.F.S. is to improve the lives of individuals (hereinafter referred to as 'TOF individuals. or"TOFs°I suffering from tracheo-oesophageal fistula (TOF), sophageal atresia (OA) and sophageal and related disorders including ihe VACTERL Association (hereinafter referred to as 'oesophageal disorders.), as well as the families of such TOF individuals. Oesophageal atresia and tracheo-oesophageal fistula {ooF) are rare congenital conditions of the oesophagus (food pipe) an(Vor traGhea (airway) that affect newborn babies. Babies with OAITOF need to have intensive neo- natal care prior to corrective surgery, nomially within days of birth. Some children have to undergo additional surgical interventions later on in their lives. It is now recognised that life-long follow up is essential. Constitution T.O.F.S. is a charity which was founded in 1982 and established as a 'Company Limited By Guarantee and not having a Share Capital, on October 20th 1987. T.O.F.S. is registered both at Companies House and with the Charty Commission. On May 14th 2016, T.O.F.S. held an Extraordinary General Meeting at which revised Articles of Association were adopted, thus replacing in a single document the original {1987) Memorandum of Association and Articles of Association. This was done with the agreement of the Charity Commission and the revised Articles were l¢)dged in May 2016 with both Ihe Charrty Commission and Companies House. Organisational Structurn The overall direction and management of T.O.F.S. is overseen by the Council of Managemenl ofwhich all Trustees are fflembers, and who are also Directors of the Company. The Council is accountable and legally responsible for the work of the organisation and for ensuring that all aspects of the management and work comply wrttt current gislation. The Council is supported by four members of staff, headed by the CEO, and also by volunteers. Goveman The Council meets typically four times per year arKI as p8miitted by the Articles of Association additionally delegates some detail matters to several sub-commitlees (see also 'Committee Structure, paragraph below). T.O.F.S. is bound by its Articles of Association to hold an AGM. In 2024, as noted above. this was held by video¢onference. In addttion to the standard agenda rterns, including presentation of the annual accounts and tNstee eleclions, the opportunity was laken to provide further explanation of T.O.F.S. activities by a series of presentations on key topics (pastoral support. medical liaison, plans for Ihe currenl year and beyond) lo those members who attended. This format was well received and will be retsined in 2025. Policies and Documantation Appropriate policies and procedures are in place to support the effective operation of T.O.F.S. These indude. but are not limited to.. Governance,. Health & Safety., Risk Management.. Safeguarding,. Financi81 & Commercial Management.. Personnel. Guidance & Training; IT & Data Protection; Communications.. Research & Collaboration, Fund-raising. Rlsk Management The Trustees have a duty to identify and review the risks to which the charty is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud or error. Page 2
T.O.F.S REPORT OF THE TRUSTEES R THE YEAR END ECEMBER 2024 Risks are reviewed and mitigated by: An organisational commitment to standards of good management and operational practice. Estsblished policies, which commit to compliance wrth all relevant legisbalion and good practice. Regular review of all polbcies and procedures. Establishing adequate financial reser¥es. Committeo Structur• Since 2019. T.O.F.S. has operated with a revised set of sub-committees. each of which has written tem)s of reference and authorty as delegated by the Trustees. and as pemitted by ihe Articles of Association {specifically paragraph5 110-112.) These sub-committees are fomially minuted. and thaired by either a Trustee or the CEO. Membership of the sulFcommittees is drawn from Ihe Trustees, mefflbers of slaff and other 'family' members of the organisation. At present, there are spe¢ifi¢ sub-committees for.. Finance: Stralegy & Planning.. Staff Management & Recruitment,. Pastoral Support., Publications,. Conferences & Events; Medical Liaison & Collaboration. Recrultment and Appolntmont of Trustees T.O.F.S. welcomes eligible people who have an interest in helping the organisation achieve its objectives by becoming a Truslee. Imilst TOFS members indude parents and grandparents of TOF children and Adulls bom with OWOF. T.O.F.S welcomes potential trustees from all walks of lrfe. The ArtleS of Assoeiation state the e1ibl1ty of Trustees. which. In summary. stste that those eligible must.. Be over the age of 18. Already be or become members of the organisation. Not be undischarged bankrupts. Not previousty have beèn removed frorn tTust8eship of a charity by a Court or the Charrty Commissioners. Not be under a disqualrfKatlon order under the Company Directors. Disqualthcation Act 1986. Not be disqualffied by the Charities Act 1993 {S8Ction 72) from acting as a charty trustee. Undertake lo fulfil thelr responsibililies and duties 88 a trustee of T.O.F.S. in good faith and in accordance with the law and within the objectNes ol T.O.F.S. Not have financial interests in confiiL* with those of T.0 F.S. leither In person or through famity or business connections) except where formally noIrfd in a conlliot of interest slalement. To ensure Trustees are fully competent. T.O.F.S. will: ProvKle an UPtdate Trustee IndtIon Pad(. Support induclion. in a manner lailored lo the experience of the individual, by the use of a 'buddy' system whereby each new Trustee is guKled by an experienced Trustee or rec8ntly retired Trustee. ProvKle access lo and. where appropriate, cover the costs of induction training. Conduct de-briefing of retiring Trustees in order to review. and amend where necessary. the Induction of new Trustees. Provide a Job description for horK)rary officers Page 3
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 1 DECEMBER 2024 Staff Recruitment There were no changes lo staff roles during 2024. The charty continues to be supported by administrator Jayne Allitt and digrtal communications lead. Peter Browne, along with Sarah Winspear who joined in late 2023 as membership, communication and events officer. The small staff team are led by CEO Diane Stephens. Three employees work on a full-time basis remole (foi Ihe most part) and part-lime employee Jayne Allitt is office-based. Strnteglc Direction In 2024, T.O.F.S. continued with its three-pronged approach to its activities and the benefits delivered to ils members, namely: Near-term benefft.. information and pasloral support to members, both families and Adult TOFS. Long-tenn benefft.. engagement with relevant healthcare professlonal bodies, cliniaans and researchers. Sustainable operational 8ffectbveness. Dellvery of objectjvu In 2024 Pastoral Support and Infommtlon •xchang0 Pastoral support and information exchange have traditionalty been the core adivities of T.O.F.S., and 2024 was no exception. T.0 F.S. continued with a largely digital service model for information events lo allow access for as many 0AoF patients and their f8milies as possible. These were att8nded by 153 familiesladults over the year. (More about Ihese online events in the 'evenls' section of this report.) T.O.F.S organised a face-tCpfa¢e event in Warrin9ton in November for members to meet up in person and gain information and support, along with hearing from OATfoF-knowledgeable health professionals. The event was attended by 75 members. In addition, there were seven local meet-ups organised by five local contad volunteers (TLCS) and three members in their areas. South Wales. London. Stockport, Liverpool, and Australia. These were attended by 30 families in total. T.O.F,S, continued to supply information and support both to new members and associates, (235 in 2024), and to existing TOF parenlslcarers. adults bom with OArroF and heahh professionals through leaflets. brochures, postcards and digital resources. The T.O.F.S. website continues lo be vlsited on a fr8quenl basis, with visitors predominantly from the UK but also from all over the wodd. The new look websrt8 had bean built in-house in 2022 and designed to be much more intuitive and user-friendly for those seeking information about the consequences of being bom with oiifoF. 2024 saw small increas8 in visitors lo the websile, wrth 41.593 visitors (40,278 in 2023). N•w r••our¢•• for 2026 The Pastoral Support Sub-committee IPS slcl and the Adull TOF Working Group (ATWG) were closely involved in developing and making new resources available throughout the year. Volunteers on these groups have been personally impacted by OArroF and Ihls expen'enco shapes the resources Ihat are developed each year. Members of the ATWG researched and contributed content for a new digital resour relating specifically to post- repair problems wrth lungs and airways. This Tesource offered valuable insights as well as practical lips to improve respiratory heah and quality of life for OAffOF patients. Content was endorsed by a professor of Cardiorespiratory studies and a clinical specialist physiotherapist. This resource was viewed 1.081 limes in 2024 from lime of launch by 346 individuals. Page 4
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 1 DECEMBER 2024 wtrth tremendous support from the OWOF 1MMunty. a successful T.O.F.S. Awareness week was held from 26 February to 3 March. to 1n(de with Rare Disease Day on 29 February. Members were asked to brirsg T.O.F.S. and our free provision of digrtal twks lo the attents'on of heallh professionals. Many members raised the profile of OAThOF by sharing their stories in regional and national press, and letters were sent lo MPS. flagging the need for adequate care at time of transttion. Car window stickers were made available for members, along with brdnded bibs and wristbands. Singerlsongwrrter Tom Bright. who is himself an adult born with 0OF. joined the organisation as a celebrity ambassador to help raise the profile of 0AoF. T.O.F.S. produced a video to promote the partnership and explain the impact of the conditbon which had 625 vieS throughout the year. Member and mM4wife Kate Yardley. {parenl of a baby bom with ONThOF) was commissioned to produce content for a resource aimed to help new mums who wanted to breastfeed their OAThOF baby. The 'Expressed Breast Feeding. resource was endorsed by the Neonatal Nursing Aociation and added to the websrte as part ofthe 2024 Awareness week. It was subsequenty viewed 1.145 times during 2024 by 285 people. A new video to promote the T O.F.S. Local Contsct ffLC) service for members was filmed and viewed 140 times over the year. TLCS are a valued group of volunteers, all of whom are experienced TOF parents. Spread across the UK, TLCS are available to listen. talk and offer support to new TOF parents. organise Ic1 informal get-togethers, and take posters and leaflets into hospitals, espeually where TOF surgery takes place. Some TLCS have shown further commrtment by giving talks on behalf of T.O.F.S. Our TLC for Scotland. Bruce Rennie, represents T.O.F.S on the Expert Advisory Group of the Congenital Anomalies and Rare Diseases Registration and Infom)ation Service for Scotland {CARDRISS.> Our TLC for Wales, Naomi Webbom, is a key member of the Pastoral Support sublcornmittee and has continued to be involved in many support initiatives over 2024. She also represented TOFS during Awareness week al the Rare Disease event at the Welsh Assembty. wrth the help of our TLC volunteers, we launched new parent pa(*s for hospita15 to share with new parents. 62 packs were distribuied over the year to thirteen hospitals via their TLC. In conjunction with support from the Brazilian Facebook group {GAAE- grupo de Apolo Atresia de Esofago) T.O.F.S. facilitated the translation of some of its resources into Brazilian Portuguese lo share with parents in the Brazilian and other Portuguese speaking communities. These resources were made available on the website and have been downloaded 18 times since their launch. We continued to promote the online dwJital library for healthcare professionals offering free access to downloadable versions of our twks. along with other relevant publutions. This serv was requested by 62 health professionals across a range of disciplines. The majorty of these requests were from the UK (47). and the rest were from health professionals working in various other untrieS around the world. All members reiVed three editions of the members, magazine, 'CheW. written and edited by the CEO and volunteers on the Chew editorial board. Our office staff {workin9 mainly reTtely) continued to support members via telephone and email with follow-up support calls and emails made to new members who had gtven pennission fof the offio to do so. Child-friendly posters were designed for children's wards at hospitals and schools explaining OAThOF in child-friendly language, to help chIldn bom wrth OArroF to understand their condition and explain il to friends. These posters have been downloaded 24 times Sin they were added to the website. Facebook The T.O.F.S. Facebook group remains a cruual platform for supporting patients and frdmilies of Ihose born with OAThOF. Many members are instrumental in offering the benefit of their eXperienS to new parents and the Facebook group plays an increasingly supportrrfe and 'real-time' role in the exchange of parents, experiences wrth their 0AOF babS and children. The Facebook group gained 234 new members in 2024, bringing Trts tolal membership to 5,112, with an average of 1.259 rnembers acb've each day. Page 5
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED ECEMBER 2024 To better support our Adult TOF communty. we deoded several years ago lo endorse a Facebook group specifically for Adu and Teen TOFS. which was and still is. run by one of our members, and now adminislrated by one of our Trustees and some of our Adull TOF working group members. This provides a very useful forum for our growing number of Adutt TOF members, whereby they can share information and eXperienS on issues that continue to affect them. In 2022, T.O.F.S. offiually linked this Adutt Group with the T.O.F.S. Facebook page making a visible connection behyeen the charity and the Facebook Group. At 31 Decefflber 2024, the totsl membership of this group stood at 893, wrth an average of 103 members adive each day. Online evenis to support members The series of online events giving members the opportunity lo hear from leading clinicians and healthcare professionals and have their questions put to them. continued Zoom. There were five such events. hosted by one or bolh of TOFS Chair Drew Bailey and Vice Chair Duncan Jackson, along with the CEO. Topics covered were the Lost Twin Hypothesis. Chest Wall Oefonnrties, Learyng paediatric care and negotialing adult Servi5, Feeding eXpern5 and oral aversion. We are very grateful to the expert speakers who gave their lime freely. In total these were attended by 1CQ memters mainty from the UK. but also UK. Belgium, Germany, Sweden. Canada, New Zealand, Ireland, Switzerfand. Kenya, Mauritius, Denmark. Australia. France and Ihe Netherlands. In addrtion, all Ihe information sessions were recorded, edtted and subtiiled and subsequenuy added to the YouTube channel. The informal online 'Cuppa & Chay meet-ups for adults )ntinued and TOFS volunteers facilitated 10 of these virtual meet-ups with 21 adults attending over the year. TLC volunteers facilttated five 'Talk wrth TLCS, events during the year. These 'Talk wrth TLC, sessions offer members the opportunty to engage wrth each other virtually, in disOJssn wrth their peers about various aspects ofthe OAThOF condttion. Subjects covered included Stsrting Nursery, Pre-school & School.. Managing VACTERL anomalies; Teens & Transition: and Reflux Management. In total, 32 families were supported by these events. An outcome from the Starting Nursery tslk was the development of a 'Steps to cx)nsider when looking at childcare settings, resource which was subsequently added to the websrte and dijwnloaded 29 times over 2024. Two TLC volunteers aLso organised informal meet-ups online which supported fve families. Volunteers Volunteers continue to play an increasingly important role in the support that T.O.F.S. offers new parents, earers and adults. We continue to benefft from the improved C{rdInation of our volunteers and the associated support activities, and welcomed seven new volunteers, etther as TLCS. Fa¢etook moderators or on sub-committees or working groups. We would not be the organisation we are wrthoul the valuable support from our volunteers, whether their role is in advising members with DLAIPIP appIOnS. TLC support, writing for Chew, sending out birthday cards. taking part in CMMittees. moderating Facetx)ok or helpin9 with fundraising. There are Current three T.O.F.S. Overseas Contacts (focs) one in Jordan, one in Canada and one in New Zealand. All are active in offering support to TOF fafflilies wrthin their own country and they share T.O.F.S. knowledge when applicable. This has been mutualty beneficial, resutting in translations of some T.O.F.S. leaflets into Arabic. (11 should be noted that these Overseas Contscts do not in any legal sense represent T.O.F.S. in these countries; they are- as the name implie5 - purely our o)ntscts in these untries.) 'The TOF Book,. published in November 2016, continues lo sell, although understandabty not quite at the level of prior years. Nonetheless, the is evidence that a signifunt proportion of the new members who joined in the year purchased the book. induding overseas members. The fully illustrated 'Soft F¢X Recipe l)ook'. published in December 2020, continued to provide a useful additK)n to our publicab"ons. We continued to make the facility for both books to be purchased directty from ourselves via our webstle. Page 6
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2024 Merchandise Introduced in 2023, T.O.F.S. branded merchandise continued lo be made available for members to buy from the online shop. These items are supplied by a third party and T.O.F.S. does not seek material financial gains from this addition but instead, meel demand by the community and raise the profile of OArroF. Use of Inforniation Technology (IT) The use of IT conlinues to be a powerful tool in support of our operations. Facebook remains a very significant means by which members and non-members communicate on OOF matters, and we have increasingly used this fomi of social media to augment wmmunication with our mefflbers. T.O.F.S. has made significant strides in leveraging technology to enhance member benefits and streamline operations. Highlights indude.. Dedicated Digital Lead.. TOFS has appointed a dedicated Digital Lead to drive technology adoption within the organisation. This stralegic move aims to maximise the advantages of digrtal solutions for our members. Enhanced Website.. TOFS has invested in a new. faster website Ihat not only provides essenlial infomiation but also includes an online shop. Members can now convenienlty order leaflets and books through the website. resulting in a more efficient process for administrative staff. Hybrid Working Model.. Embracing technology, TOFS has adopted a hybrid working model. This approach allows flexibility and widens the lalent pool during recruitment. Employees can work both remotely and in-office, optimising productivity for members. Video Conferencing for Member Engagement.. TOFS utilises video conferencing systems to offer live Q&A sessions with medical experts. Members can participate from anywhere, fostering knowledge sharing and support. Additionally, virtual meetups provide a valuable channel for volunteers to connect direct with members who need support. Active Presence on Other Social Media Channels.. TOFS extends rts reach beyond Facebook. We maintain an active presence on Instagram, Twitter, Threads, and even TikTok, engaging with our communty and sharing valuable content. Exploring Al: TOFS is currently testing and investigating the use of artif131 Intelligen (Al) within its operations. Whilst in the early stages. we anticipate that Al could enhance efficiency, improve deusion-making, and provide personalised experiences for our members. We will closely monilor its impacl and adapi accordingly in the future. TOFS Continues to evolve its technobgical landscape. ensuring thal our member5 receive the best possible support and resources. Altido Group Ltd of Chemenham remain our primary bespoke IT service provider and we hereby note our gratitude for their provision of these services at a discounted or free of charge basis. (We note for reasons of transparency that the late Dennis Harvey (who retired as a Trustee during 2022) was the father-in-law of the Aftido Managing Director.) Llat8on wlth the medlcal profe8slon and wlth the NHS We continued in our commitment to disseminating informalion to practitioners from health, education and social care. We continue lo be assisted by members in distributing posters to hospitals to display in their lo¢al neo-natal wards to increase awareness of T.O.F.S. when new parents and carers most need help. T.O.F.S. continues in its efforts to incr8ase its profile within the medical communty. Since 2016, we have had a Medical Advisory Group. which is intended to provide us with a leading group of medical professionals acfOSS all relevant disciplines, who can provide advice and guidan, and support our publications with medically approved inpul. Ils Research sub-group continues to support and guide T.O.F.S.' engagement with research sludies. The involvement of T.O.F.S. in research programmes into OA (Oesophageal Atresia) reflects the almost mandatory requirement for relevant patient group support to be given to such projects and where relevant for 'the patient voice" and patient perspective lo be buitt into the study's lerms of referen. In some inslances, this support is characterised purely by endorsement of its relevance and priority io OA P*ients. In olhef cases, support may also involve some funding contribution, whilst a research activity may be characterised by more active involvement andlor collaboration with T.O.F.S. Page 7
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2024 Projects underway or completed andlor published in 2024 that T.O.F.S. is Current supporting andlor endorsing indude: The GOSHIICH (Great Ormond Street Children's Hosprtavlnstitule of Child Health) tissue-engineering Pfoject (this is investigating the use of stem cells to develop an oesophagus).. A study inlo the feeding issues for patients up to the age of 12 months (which is the subject of a PhD degree)., A major randomised controlled trial (Treating Oesophageal Atresia to prevent STricture, TOAST) to investigate whether or not the general use of antacid medicines wtth all OA babies would be helpful: A study Ioesophageal atresia CofE outcomes LOngTerm, OCELor) to devélop a lifelong relevant 'core outcome set. for OA. A study {CSOR - Children's Surgical Outcome Reporting) to compare the outcomes (notably parent-reported outcomes) of babies bom with congenital malformations induding those bom with OA. In Ihe latter three studies. T.O.F.S. has membership of Ihe study steering group. We also note thal since January 2021 T.O.F.S. Trustee Graham Slater has been a Patient & Public Voice partner to the NHS England Clinical Reference Group on Specialised Surgery in Children. TOFS representatives also attended the following UK medical conferences.. Expert imaging in Obstetrics and Gynaecology (EIOG). EIOG is a new initiative, aiming to disperse information about OAtfoF to obstetric and paedialric medical professionals British Thoracic Society Summer Meeting Neonatal Nurses Assoaation and ANNP Annual Conference Northern Ireland Neonatal Nurses Association Conference Co-operdtion with other oryanlsations During 2024, T.O.F.S. continued its engagement with other UK patient organisations to slart collaborative action concerning care for adult patients suffering ongoing morbidity as a result of being born with congenital matformations such as OA, andlor olhef rare conditions acquired in childhood. Efforts are ongoing, to jointly appfoach relevant medical societies and policy-makers in the NHS to address the absence of specialist care - an issue of growing oncem as the number of adult patients requiring such care increases each year. A jointly signed letter with seven other UK patient groups was submitted to a number of institutions including the Royal Colleges, the NHS and the Depl. of Health & Social Care. This letter has been acknowledged by its addressees and an initial meeting with representatives of the NHS England Specialist Commissioning Team was held in December where the issues raised were acknowledged. However, ongoing advocacy and engagement with the NHS will be required in order to make effective progress. We also increased our engagèment wrth organisations which support other conditions in the VACTERL spectrum which OAThOF patients can also suffer from. We attended and presented at associated conferences such as that run by Max's Trust and the VACTERL Association Family Event. T.O.F.S. also continued to play a leading role in EAT (Esophageal ATresia Global Support Groups e.V,). This organisation now has member associations in fourteen countries. EAT is a German-registered association. and its involvement is much sought by various intemational medical working groups, especially those supported by EU funding. As a result, via EAT, T.O.F.S. continues to be actively involved in European collaborative healthcare programmes. with INOEA (Intemational Neork on Esophageal Atresia) and other relevant international initiatives. Through our membership of E4T. T.O.F.S.: is actively participating in the European Reference Network (ERN) known as ERNICA (ERN for Inheriled and Congenital Anomalies) and ERN-eUROGEN. The latter reflects our increased efforts to support our VACTERL patients which also included our active participation in the annual meeting of AIMAR, the Italian anorectal patients support group. Particular projects indude the development of 'patient joumeys,; Qualty of Lifelmental health studies and webinars- palienvparent-friendly versions of guidelines and consensus statements- and Transition & Adutt Care. Page 8
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2024 contributed to the development of the programme for the INOEA conference lo be held in 2025,. the resull of this actNty was to ensure active partiapatson of EAT representatives {induding three from TOFS) as presenters or moderators in most conference sessions. contributed to EATS engagernent with EURORDIS (the European Rare Diseases 'umbrella' organisalion for rare disease patient support groups), in parts'cular with regard to the EURORDIS Mental Heatth intliative and the EURORDIS support to patient representattves in the ERNS (European Referen Netwofks). represented EAT (in conjundion with colleagues from other EAT Mernber AssocialK)ns) at medical conferences notably.. the ESPGHAN (The European Sryiety for Paediatric Gastroenterology Hepatology and Nutrition) conference the EUPSA (The European Paediatric Surgeons Association. of which T.O.F.S. medical patron Prof. Paolo de Coppi is currently President) conferenc* European Respiratory Congress. Our attendance al this cx)ngress reflects our increased focus on respiratory morbidty which to some degree affects the rnajorty of 0AoF patients. TOFS Volunteer Dr Caroline Love attended in her role as a patient advocate for EATtfoFS representing the European Lung Foundation., a short video about TOFS was played at the patient support group day. Finalty. it is noted that on May 1 st, 2024, Dr Caroline Love trM)k over as the Chair of the T.O.F.S. Medical Liaison, Research & Collaboration Sucl)mMIttee. Expenditure. Funding? Financlal Management and Govemance Expendityro Totsl expenditure inueased in 2024. from the £171,700 of 2023 to £193,716. The Trustees had planned for 2024 expenditure to be increased with a nurnber of projects planned for the year. The TNstees concluded some time ago that the most effective way to wnprove support to members and the general communty impacted by OOF was by having staff in place to generate better information. make Ihat more accessible. and generally co-ordinate actrvty better. Staff costs in all amounted to some 700A of total expenditure in 2024, and the administration element of this remains low. Indeed. we are now conducting a high proportion of our deo-editing, information-preparatK)n and layoul in-house and have reduced extemal cash expenditure commensuratety. During the year. we held one conference for members, as explained elsewhere in Ihis report. The charity also Continued to offer its members a series of online Question-and-Answer events with medical experts. The 8Xtemal Cash cost of these events was just over £3.2C(l and invofved significant staff effort. The Chanty adopted virtual meetings rn 2020 and- for most of the staff, most of the time - remole working from home via Teams. There does not yet appear to be strong reason to revert to traditional face to face meetings. It is likely thal we will Gontinue to use these cost-effective oplions to a greal exlent. However. the charty retains rts one office as an operating base, from whith two staff members work. We have searthed without success for a materially cheaper altemative office. Much of the time spent by T.O.F.S. on engagement with healthcare professionals, their associations and their initiatives is undertaken by volunteers. including some of the Trustees. The volume. impact and importance of this work is far greater than might be inferred from the relalively sums which the charity has spent on it. As noted elsewhere in this report. T.O.F.S. att8nded several UK medical society events in person, with a couple of small exhibition stands. The cost of attending such events ¢an be material. though travel and subsisten¢e is typically the greatest element. H(Mever, expendrture in this category was similar to that of 2023. The cost of magazines and publications was similar to 2023. despite the charty changing supplier. Page 9
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2024 Some years ago. the Trustees decided to designate £20.OC(i in all to pay for sponsorship of relevant medical research and activities of similar long term 'scientific' benefft lo the OoF community over several years. The Trustees decided to Iransfer another £20.000 from general funds to this designated research fund in 2021. We had expected to pay the last tranche of support for the OCELOT project in 2023, but we were not asked to do so. This was paid in 2024. Income The charity has no ongoing committed income such as grants. etc. The public sector makes no contribution to our work other than Gifi Aid on donations from UK-based individuals. Around half of the charity's income arises because of fundraising undertaken by our members and the wider community impacted by OA. Most of the remainder arises because a member has directly donated il in one way or another or most typically encouraged others lo do so. This high degree of engagement with members and the OA community is vital to T.O.F.S. and thè Trustees are very grateful for it. In 2024, underlying income reached a record level of £183.323. For reference, undertying income has varied between £111,337 and £142,268 (excluding the exceptional Martin and Pretious legacies and the Forresler Trusl donalion) over the previous five years. Total income in 2024 induded a grant of £23.248 from St8wart Investors in Edinburgh which has been ring fenced for updated editions of The TOF Book. We are grateful to TOF parent, Greg Johnston for putting TOFS forward. The value of donations and grants from companies, clubs and societies such as Rotary clubs, sports clubs, Freemasons, lodoes and local faith groups grew significantly in 2024, even excluding the Slewart Investors exceptional donation. In almost every case, such corporatelclub donations arise because a member has nominated T.O.F.S. to their employerlclublsociety. Our two largest corporate donations in 2024 {8xcluding the Stewart Investors grant) Came from organisation$ that had already donated to T.O.F.S in 2022 and 2023. Blackhawk Netsyork group of companies donated over £12.CM)O as part of their CSFUbenefits programme. We are grateful to TOF parent Jo Fleet-chapman for her nomination. For the second year running, we were chosen as a beneficiary from the MGL Golf Day which is organised by Mandy and Keith Larner. Their donation of £10,000 brings the total donations from this event to £30,OChJ. The Trustees are very graleful lo the family for deciding lo donate once again some of the nel proceeds of their annual charity Golf Day to the charity. Other significant corporate donations In 2024 include £3,000 from Fusion 21 and a grant from Blackbaud for £4,918.50, to fund a new resource for parents lo help with breasrfeeding their OOF babies. T.O.F.S. asks members to make a donation in respect oftheir membership, and many do $0. especially upon lolning A significant number make regular monthly donations, and for this, we are very grateful. The London Marathon remains the18rgest fundraising event for T.O.F.S.. and In 2024 we had seven people who raised almost £19.¢XJO. The leading fundraiser was Gavin Mountford who raised £4,277. including Gift Aid. The Great North Run has been a fixture on the T.O.F.S. calendar for some time. In 2024, our five entrants raised an excellent combined total of over £6,000 including Gift Aid. which is a record fundraising amount for this event. For a third year. T.O.F.S. had places in the Ride London-Essex 100 cycle ride. Our cyclists raised an excellent Combined total of over £15.000 (including Gift Aid). Sadly, the organisers have made 8 decision not lo run this event n 2025. Some of our younger members took part with their mums andlor dads in our third annual Teddy Toddle, which raised almost £4,500. 2024 saw the first TOFS-organised Big Splash Swimathon which raised over £5,000. The Trustees are most grateful to the people who put so much effort into training for and completing all of the above events, and into raising a great deal of money for the charity. Page 10
T.O.F.S REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2024 More traditional fundraising activrty, organised by members themselves. raised jusl over £45.(h. The Trustees are especially grateful to members who organise and undertake so many smalkstsle events and raise so much for T.O.F.S. We continue to offer them support with fundraising packs, rtems such as T.O.F.S. branded running vests and a fundraising guide with hints and tips. In 2024 we developed a new fundraising postcard. Fundraisers of note include Ross Jeavons, (the bestver London Marathon fundraiser), who ran a 100k Ultramarathon in 2024 raising £8.240. Our largest individual fundraiser was DavKJ Loughran. whose fundraising challenge for T.O.F.S. during 2024 Awareness week raised £13.210. The chanty continues to take part in 'Your Charty Lotterf, which is run by a licensed third-party operator, with approximatety 160 people playing on a weekly basis to benefft T.O.F.S. Income from the Sale of the two books published by T.O.F.S. has remained at a useful level. The charity's online shop has been expanded to offer the books wtlh relatively little administrative load, and aLso to allow members to easily order the many free-of-tharge leafiets. badges, et Lastly. we note e-cards - TOFS offered mernbers the chance to send one of a range of selected TOFS electronic Christmas Cards- and to donate to TOFS. The amount raised during IMnteT 2024-2025 rose to approximately £950 and we are hopeful of further growth in fLrture. Flnanclal Management The Trustees have delegated most of Ihe charty's financial management lo the Treasurer, who works wrth a Financial Sub-committee (FSC). The FSC had hekl rts nomal half-yearty meetings in 2024, to review expendrlure and incomes. to monitor progress against budgets and to re(mmend budgets for ratifjcation by the whole Counol of Management of T.O.F.S. On a day-to4ay basis, the charty uses a o)mmercial bookkeeping system and produces monthty internal updates. The Treasurer and FSC r)ormally produce rerK)rts for the Trustees several times per year, typically quarterly. The FurKlraising Working Group meets much more frequentty than the FSC and reports to the FSC. Financlal Review and ReseNe8 policy Like other charrties, T.O.F.S. Tequires reserves in order to operate in the short tem7 and to satisfy legal obligations in the event of the end of funding, a major reduCn of funding or a delay in further fvnding becoming available. In the event of having to close the tharity. the reserves would enable proper notice to be given to the beneficiaries and slaff and for all legally due payments to be made to staff, volunteers arKI the organisations with which we do business. In view of the great uncertainties arising from the COVID-19 pandemic. in 2020 the Trustees raised the minimum level of reserves to an amount sufficient to cover all nomal operating expenses for a full year. The reserves policy has not been thanged since. At the end of 2024, T.O.F.S. has sn[fIcant1Y more in reserves than our policy demands, however the apparent eXs$ is very likely to reduce as rt is expected that expendtlure will exceed Ihe income that can reasonably be anticipated for the next uPle of yea[5. Investment policy and objectives: T.O.F.S. continues to hold cuent bank arxounts with Lk)yds Bank Ltd and CAF Bank Ltd la part of the Charities Aid Foundation.) For aptIng payments and donations rt also has accounts with PayPal. Facebook, Just Giving. Peoples. Fundraising. BOPP and Givestar. TOFS also has an account wilh 'ln memoriam. donations website Much Loved. The cuent.1nveSIrnenf policy was adopted in February 2018. This enables (but does not commit) T.O.F.S. to invest up to approximatety half of its apparently excess reserrfes in risky assets - in pursuit of a meaningful retum via vehicles such as charity-specific diversified p(M)led investment funds with reputable finanal instrtutions. However, in view of the uncertainnroubling investment horizon. the Trustees decided upon the recommendation of the FSC to continue to hold all reserves as cash in FSCS-protected savings accounts. For the whole of 2024, T.O.F.S. has had savings accounts wtth Cambridge and Counties Bank. Mansfield Building Society. Hampshire Trust Bank, Redwood Bank and Virgin Money. Page11
T.O.F.S REPORT OF THE TRUSTEES R THE YEAR ENDED 31 DECEMBER 2024 This report has been prepared in accordance with the special provisions of Part 15 of the Companies Ad 20C relating to small companies. Approved by order of the Counc41 on 23 March 2025 and sned on rts behalf by.. Andrew lan Ba1Y (Chair) Page 12
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF T.O.F.S. I report to the Charity Trustees on my examination of the accounts of the company. for the year ended 31 December 2024 $8t out on pages 14 10 22. Responslbllltles and basis of report As the Charity Trustees of the company, (and also its directors for the purposes of company law) you are responsible for Ihe prep•r8tion of the accounts in accordance with the requirements of the Companies Act 2006 {'the 2006 Act,). Having satisfied myself that the accounts of Ihe company are not required to be audrted under Part 18 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your company's accounts as carried out undor section 145 of the Charities Act 2011 {'the 2011 Ad,). In carrying out my examination I have followed the Directions given by the Charty Commission under section 145(5){b) of the 2011 Ad. Independent examlnorfs 8tatemgnt I have completed my examination. I confirm that no matters have come to my attention in connection with Ihe examination giving me cause to believe that in any materral respect.. 1. Accounting records were not kepi in respect of the company as required by section 386 of the 20( Act.. or 2. The accounts do not accord with those records., or 3. The accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair view, which is not a matter considered as part of an independent examination.. or 4. The accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [appliGable to charities preparing their accounts in aCrdance wilh the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 102)] I have no concerns and have come across no other matters in ¢onne¢tion with the examinations to which attention should be drawn In thls report, in order to 8nable a proper und8rstanding of the accounts to be reached. K Mealand FCCA Lemans 29 Arboretum Streel Noltingham NG14JA 21 N/l 2025 Page 13
T.O.F.S. STATEMENT OF FINANCIAL ACTIVITIES INCORPORATING AN INCOME AND EXPENDITURE ACC FOR THE YEAR ENDED 31 DECEMBER 2024 Yoar Year Ended Ended 31.12.24 31.12.23 Total Total funds funds Unrestricted funds General Designated fund funds Notes INCOME AND ENDOWMENTS FROM: Donations and legacTres Other trading actNlties Investments 197.020 15,281 10,235 197,020 125,617 15,281 14,846 10,235 9.302 Total incom• and •ndowments 222.536 222.536 149.765 EXPENDITURE ON". Raising funds Charitable a¢trvities Other 5.684 1.811 185,C66 167,080 2,809 181. 4.(MJO Total expenditure 189,716 193,716 171,700 NET INCOMEI{EXPENDITURE) 32,820 {4.(KK)) 28,820 (21,935) Transfers between fund8 (23.248) 23.248 Net movement in funds 9,572 19,248 28,820 (21.935) Reconciliation of fvnds TOTAL FUNDS BROUGHT FORWARD 270.813 14,726 285,539 307,474 TOTAL FUNDS CARRIED FORWARD 280,38S 33,974 314,359 285.539 The notes form part of these financial statements Page 14
T.O.F.S.- COMPANY NUMBER 2202260 BALANCE SHEET AT 31 DECEMBER 2024 Year Year Ended Ended 31.12.24 31.12.23 Unrnstricted funds Genernl l)esignated fund funds Total funds Total funds FIXED ASSETS Tangible assets Investments 12 14 CURRENT ASSETS St¢xk Debtors- amounts falling due wrthin one year Investments Cash al bank 5,104 10,594 263,801 10.498 5,104 6,980 10,594 13.555 263.801 238.167 44.472 33.492 13 14 33.974 289.997 33,974 323,971 292,194 CREDITORS Amounts falling due wrthin one year 15 9.612 9.612 6,655 NET CURRENT ASSETS 280,385 33,974 314,359 285.539 TOTAL ASSETS LESS CURRENT LIABILITIES 280.385 33.974 314,359 285.539 NET ASSETS 280.385 33,974 314.359 285,539 FUNDS General fvnd Designated funds 16 280.385 270,813 33.974 14.726 TOTAL FUNDS 314.359 285.539 The notes fonn part of these financial statements Page 15
T.O.F.S.- COMPANY NUMBER 2202260 BALANCE SHEET- CONTINUED AT 1 DECEMBER 2024 The charitable company is entitled to exemption from audit under Seckn 477 of the Companies Act 20C6 for the year ended 31 December 2023. The trustees have not required the itharrtable company to obtain an audit of its financial statements for the year ended 31 December 2023 in accordance wrth Section 476 of the Companies Act 2. The trustees acknowledge their responsibilities for (a) ensuring that the tharitable company keeps aC)Unting rec4yds that LX)mpty with Section 386 of the Companies Act 2¢)06 and preparing financial slatements whth give a Irue and fair view of the state of affairs ofthe Charitab company as at the end of each finanoal period and of its surplus or defiat for each financial period in accordance with the requirements of Section 394 and Se(lion 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to finanaal ststements, so far as applicable to the charitable company. The financial statements have been prepared in accordan with the provisions applicable to charitable companies subject to th8 small companies. regime. (b) The financial statements were approved by the Council of Management on 23 March 2025 and were signed on its behalf by: A Bailey (Chair) - Trustee D Hill (Treasurer) - Trustee G Slater (Company Secretary) - Trustee The notes fomi part of these financial statements Page 16
T.O.F.S. NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 ACCOUNTING POLICIES Basis of preparing the financial statements and assessment of going concem TOFS is a private charitable company limrted by guarantee incorporated in England within the UK. In the event of the charity being wound up, the liabilty in respect of the guarantee is limfted lo £1 per member of the charity. The address of the registered office is gIn in the charity infom)ation on page 1 of these financial statements. The nature of the charty's operations and principal actNtties are slated on page 2 of these financial statements. The charity constitutes a public benefil entty as defined by FRS102. The financial stalemenls have been Pfepared in accordance with Accounling and Reporting by Chartties: Statement of Recommended Practice applicable to chartties preparing their accounls in accordance with the Financial Reporting Slandard applicable in the UK and Republic of Ireland issued in October 2019. the Financial Reporting Standard applicable in the United Kingdom and RepublK of Ireland {FRS102). the Charities Acl 2011, the Companies Act 21x6 and UK Generalty Accepted Practice. The financial statements a prepared on a going GOnM basis under the historical cost convention. The finanal statements are psented in steding which is the functional currency of the charty and rounded to the nearest £. The signtfi¢ant accounting policies appl1 in the preparation of these financial statements are set out below. These policies have been consistendy applied to all years presented unless otherwise stated. Income Volunlary income is receNed by way of donation and gffls and is included in full in the Statement of Financial Activities when received. The value of serrfices provided by volunteers has not been induded. Expenditure Expendrture is accounted for on an a[ual$ basis and has been dassffied under headings that aggregate all cost related to the category. Wthere costs cannot be directty attributed to particular headings, they have been allocated to aclivities on a basis consistent wrth the use of resources. Tangible Fixed Assets Depreciation is provided at the following annual rale to write off each asset over its estimated usefijl life.. offi equipment 33% on (x)st From January 2012, the Trustees decided to write off the cost of Off equipment in full in the year of purchase Stocks Stock is valued at the lower of oost and estimated selling price. Currènt asset investments The charity holds cash on deposit for investment purposes. in order to obtain a better rate of retum, thereby increasing their income enabling them to meet their objects. Taxation The charity is exempt from wration tax on its charitable activilies. Debtors and Creditor8 Debtors and Credrtors receivable and payable within one year are recorded at transaction price. Cash at Bank The charity holds sufficient funds in order to meet its short-temi cash MMitMentS as they fall due. Fund accounting Unrestricled funds can be used in accordan wtih the charitable objectr¥ES at the disc110 of the trustees. Restricted funds can onty be used for particular restricted purposes wtthin the objects ofthe charty. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes. Further explanation of the nature and purpose of each fund is included in the notes to the ffinancial statements. Page 17
T.O.F.S. NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 2. DONATIONS AND LEGACIES 2024 Donations: Charitable Trusts, Clubs and Corporations Individuals In Memoria Members and Frbends London MarathonlGreat North RUeddY ToddlelRKle London 1001 Big Splash Other 2023 67,452 5,592 2.534 45,049 32.508 2,632 8,801 28,463 44.600 31,793 29.717 23,496 197,020 125,617 Other donations and grfts indude donations made by members in respect of their membership. Members and Friends donations are made as a result of events run by them to raise funds for TOFS. London Marathon. Great North Run. Teddy Toddle. Ride London and BKJ Splash are special cases of fundraising by members for TOFS. 3. INCOME FROM OTHER TRADING ACTIVITIES 2024 2023 Sale of TOFS goods TOFS fundraisers and raffles TOAST project 5.552 6,129 6,027 8.819 15.281 14.846 4. INVESTMENT INCOME Interest receivable 10,235 9,302 10,235 9,302 S. COSTS OF RAISING FUNDS Opening stock Purchases Closing sttxk 6.980 1,158 {5,104} 769 (6,980) 3,034 (2.16n Just Giving subscription London Marathon l Great North Runl RKle London 331 2.319 216 3,762 1.811 Page 18
T.O.F.S. NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 CHARITABLE ACTIVITIES 2024 2023 Pastoral support and infomation exchange.. Newsletters Event costs Telecommunications Printing. postage, stationery. fundraising sts and publicity Support costs 12,915 3.253 7,771 2,859 1,860 9.276 112,260 8.331 109,700 (note 8) 139,308 Medical liaison. researth and wperalion.. Projects - Medics to INOEA l Medical and Hospital Liatson Research costs Awareness week and olher Support costs Projects European Collarat l EAT 130,521 2.635 3.100 3,414 35,450 259 70 32,770 619 45,758 36.559 185.CE6 167,080 7. OTHER COSTS 2024 2023 Accountancy and professional fees 2.809 8. SUPPORT COSTS Pastornl IAedical support & Ilaison infommtion research and exchange Coaoperdtion 2024 TOTAL 2023 TOTAL Wages Finance Information Technology Office accommodation Travel and sundry 103.708 129 2,249 4,301 1.873 32.750 41 710 1,358 591 136,458 170 2.959 5.659 127,427 120 8,682 5,456 785 112.260 35.450 147.710 142,470 Support costs trve been all(Kated to the activities based on time spent. 9. NET INCOMING RESOURCES 2024 2023 Net resources are stated after tharging." Independent examinerfs fees Payroll Administration 2,028 535 1.914 571 Page 19
T.O.F.S. NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 10. TRUSTEES, REMUNERATION AND BENEFITS There were no trustees. remuneralion or other beneffts for the year ended 31 Dernber 2024 nor for the year ended 31 Dernber 2023. Trustee$, Expenses Five {2023 - 6) of trustees received reimtrtjrsed expenses in the period of £2,515 (202& £4,129). The expense reimbursements were dominated by the cost £1,504 (2023 £2,081) of a new printer, apple watch and travel. 11. STAFF COSTS The average number of full time equivafent emF4oyees during the Peric was 4 (2023- 3.59) No employee rec8ived total employee beneffts of more than £60.0W. The total staff costs and employee beneffts were as follows: 31.12.24 1.12.23 Wages and Salarbes Social Securtty Costs Pension Costs 119.687 6,443 10,328 115.266 5,088 7.073 136,458 127,427 12. TANGIBLE FIXED ASSETS Office COST At 1 January 2024 AdditionsllDisposals) At 31 December 2024 DEPRECIATION At 1 January 2024 Charge for the year At 31 Dember 2024 NET BOOK VALUE At 31 Decernber 2024 Al 31 tkcember 2023 Page 20
T.O.F.S. NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 13. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 Prepayments and other debtors Gift Aid 8,723 1,871 11,541 2,014 10.594 13.555 2024 2023 14. CASH HELD FOR INVESTMENTS Current asset investments Fixed asset inveslments 263.801 238,167 263,801 238,187 15. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR Accounlancy Social Security & other taxes Accruals 2,028 2,617 4,967 1,914 2,831 1,910 9,612 6,655 16. MOVEMENT IN FUNDS 1.1.24 Net Movement In fund8 Transfers twèen funds 1.12.24 Unre8trf¢ted fund8 General Fund Designated Fund - Medical research The Tof Book 270,813 14,728 32,820 (4,CQO) (23,248) 280.385 10.726 23,248 23.248 TOTAL FUNDS 285,539 28.820 314,359 Net movement in funds, included in the above are as follows.. Incoming resources Rèsources expended Gains and Movement losse8 In fund$ Unrestricted funds General Fund Desi9nated Fund - Medical research Projects and resources 222,536 189,716 4.000 32,820 (4,000) TOTAL FUNDS 222.538 193,716 28,820 Page 21
T.O.F.S. NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2024 16. MOVEMENT IN FUNDS CONTINUED.... At 1.1.23 Net Movement in funds Transfers between funds At 31.12.2 Unrestricted funds General Fund Designated Fund - Medical research Projects & resources 292,748 14.726 (21,935) 270.813 14.726 TOTAL FUNDS 307,474 (21.935) 285,539 Net movement in funds, included in the above are as follows: Incomlng resources Resources expended Gains and Movement losses in funds Unrestricted funds General Fund 149.765 171.7(K) (21.935) Designated Funds - Medical research Projects and resources TOTAL FUNDS 149,765 171.700 (21.935) The research designated fund was created in 2013. The Trustees added to this in 2014. A total of £40,000 of reserves has n¢JW been designated to support relevant medical research Wofk. over several years. In 2019 the Trustees created an additional designated fund for 'Projects and Addrtional Resources" to cover principally additional slaff costs over the subsequent couple of years. The trustees closed this latter fund during 2022. In 2024. the donation of£23,248 received from Stewart Investors was designated for future editions oflhe Tof Book. 17. RELATED PARTY TRANSACTIONS. During the year, TOFS has bought IT services amounting lo £3(2023 - £1,228) from Ald0 (fomerty CRM Labs). The managing director of this fimi is the son-in-law of the lale Dennis Harvey, who served as a Trustee until March 2022. 18. PENSION CONTRIBUTIONS The chariiy operates a defined contributs'on scheme. The a55ets are managed independently of the charity and contributions are charged to the Statement of Financial Activtties in Ihe period they are made. The charge for the year was £10,328 {2023- £7.073). Page 22
T.O.F.S. DETAILED STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUN FOR THE YEAR ENDED 31 DECEMBER 2024 Year Ended 31.12.2024 Year Ended 31.12.2023 Donatlons Charitable Twsts, Clubs and Corporations Individuals In Memoria Members and Friends London Marathon, Great North Run. Teddy Toddle. Ride London 1 and Big Splash Other 67,452 5,592 2,534 45.049 32,508 2,632 8.801 28,463 44.6(K) 31,793 29.717 23.496 197.020 125,617 Other income Sale of TOFS Goods Interest TOFS Fundraisers and raffles TOAST project 5.552 10.235 6,129 6,027 9.302 8.819 25.516 24,148 Totsl Income 149,765 Cost of TOFS Goods Sold Opening stock Purchases Closing stod 1.158 (5.104) 769 (6,980) 3.034 (2.167) Just Giving subsLYiPtion 331 216 London Marathon l Great North Run l RKle London 2.319 3,762 1.811 Fundrdlsing. Publicity & Coaopernllon Newsletters Printing, postsge. ststionery, fvndraising costs & publicty Cooperation wrth other organisation Liaison with the medical profession 12.915 7,771 9,276 259 6.049 8,331 619 3,170 28,499 19.891 Central costs Wages. social se£ty & pension costs Accountancy Telecommunications 136,458 127,427 2,809 1,860 141,028 This page does not form part of the statutory financial ststements Page 23 132,096
T.O.F.S. DETAILED STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 DECEMBER 2024 Year Ended 31.12.2024 Year Ended 31.12.2023 Other Oporatlng costs Event expense Travel and meeling Rent and Insurance Research, Recruitment and Sundry Compuler costs Bank charges Bad Debts 3,253 1.737 5.659 4,727 2,959 170 2,859 81 5.456 704 8,682 120 18,505 17,902 Tolal Expondltur• 193,716 171,700 NET INCOMEI(EXPENDITURE) 28,820 (21,935) Funds bfought forward 285,539 307,474 Funds carried forward 314,359 285.539 This page does not form part of the statutory financial statements Page 24