REGISTERED COMPANY NUMBER: 2202260 (England and Wales)
REGISTERED CHARITY NUMBER: 327735
REPORT OF THE TRUSTEES AND
UNAUDITED FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31
ECEMBE
24
FOR
T.O.F.S.
Lemans
29 Arboretum Street
Nottingham
NG14JA

CONTENTS OF THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
Page
Report of the Trustees
Independenl Examinerfs Report
13
Statement of FinancAal Actiwt
14
Balance Sheet
15
Notes to the Financial Statements
17
Detailed Statement of Financial Activiti'es
23

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 DECEMBER 2024
The Truslees. who are also directors of the chartty for the purposes of the Companies Act 20C6, presenl their
report with the financial statements of the charrty for the year ended 31 December 2024. The Trustees have
adopted the provisions of the Statement of Recommended Practice (SORP) "Accounting and Reporting by
Chartlies. in preparing the annual report and financial sLitements of the chanty.
The financial statements have been prepared in accordance wilh the accounting policies set out in the
noles to the accounts and comply with the Chartty's goveming doGument. the Charities Act 2011, the
Companies Acl 2(￿, the Memorandum and ArtiC￿S of Association and Accounting and Reporting by
Charilies.. Statement of Recommended Practice applicable to charities preparing their accounts in
accordan￿ with the Financial Reporting Standard. applicable in the UK and Republic of Ireland published
in October 2019.
REFERENCE AND ADMINISTRATIVE DETAILS
Registered Company numbor
2202260 (England and Wales)
Regl8terod Charlty numb•r
327735
Rogistsred offi¢•
St George's Centre
91 Victoria Road
Netherfield
Nottingham
NG4 2NN
Tru8te08
Andrew Bailey
Duncan Jackson
John Pearce
Darrell Hill
Trace Loffman
Graham Slater
Clare Johns
Sue L8wis-Jones
Tamasine Swan
Katrina Tyler
Chair (frorn 9 May 2024)
Chair (until 9 May 2024, Vice-chair from 9 May 2024)
Vice Chair and Treasurer (resigned 18 April 2024>)
Treasurer (since 18 April 2024)
Secretary (resigned 18 April 2024)
Secretary (frThn 18 April 2024)
Chl•f Executlve Olllc•r
D￿ne Stephens
Independent Examlner
K Mealand FCCA
Lemans
29 Arboretum Street
Nottingham
NG14JA
8ank•rn
Caf Bank
25 Kings Hill Avenue
Kings Hill
West Malling
Kent
ME19 4JQ
Page 1

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31
STRUCTURE, GOVERNANCE AND MANAGEMENT
Objectives and aims
The principal objective of T.O.F.S. is to improve the lives of individuals (hereinafter referred to as 'TOF individuals.
or"TOFs°I suffering from tracheo-oesophageal fistula (TOF), ￿sophageal atresia (OA) and ￿sophageal and related
disorders including ihe VACTERL Association (hereinafter referred to as 'oesophageal disorders.), as well as the
families of such TOF individuals.
Oesophageal atresia and tracheo-oesophageal fistula {o￿oF) are rare congenital conditions of the oesophagus
(food pipe) an(Vor traGhea (airway) that affect newborn babies. Babies with OAITOF need to have intensive neo-
natal care prior to corrective surgery, nomially within days of birth. Some children have to undergo additional surgical
interventions later on in their lives. It is now recognised that life-long follow up is essential.
Constitution
T.O.F.S. is a charity which was founded in 1982 and established as a 'Company Limited By Guarantee and not
having a Share Capital, on October 20th 1987. T.O.F.S. is registered both at Companies House and with the Charty
Commission.
On May 14th 2016, T.O.F.S. held an Extraordinary General Meeting at which revised Articles of Association were
adopted, thus replacing in a single document the original {1987) Memorandum of Association and Articles of
Association.
This was done with the agreement of the Charity Commission and the revised Articles were l¢)dged in May 2016 with
both Ihe Charrty Commission and Companies House.
Organisational Structurn
The overall direction and management of T.O.F.S. is overseen by the Council of Managemenl ofwhich all Trustees
are fflembers, and who are also Directors of the Company. The Council is accountable and legally responsible for
the work of the organisation and for ensuring that all aspects of the management and work comply wrttt current
gislation. The Council is supported by four members of staff, headed by the CEO, and also by volunteers.
Goveman
The Council meets typically four times per year arKI as p8miitted by the Articles of Association
additionally
delegates some detail matters to several sub-commitlees (see also 'Committee Structure, paragraph below).
T.O.F.S. is bound by its Articles of Association to hold an AGM. In 2024, as noted above. this was held by
video¢onference. In addttion to the standard agenda rterns, including presentation of the annual accounts and tNstee
eleclions, the opportunity was laken to provide further explanation of T.O.F.S. activities by a series of presentations
on key topics (pastoral support. medical liaison, plans for Ihe currenl year and beyond) lo those members who
attended. This format was well received and will be retsined in 2025.
Policies and Documantation
Appropriate policies and procedures are in place to support the effective operation of T.O.F.S. These indude. but
are not limited to.. Governance,. Health & Safety., Risk Management.. Safeguarding,. Financi81 & Commercial
Management.. Personnel. Guidance & Training; IT & Data Protection; Communications.. Research & Collaboration,
Fund-raising.
Rlsk Management
The Trustees have a duty to identify and review the risks to which the charty is exposed and to ensure appropriate
controls are in place to provide reasonable assurance against fraud or error.
Page 2

T.O.F.S
REPORT OF THE TRUSTEES
R THE YEAR END
ECEMBER 2024
Risks are reviewed and mitigated by:
An organisational commitment to standards of good management and operational practice.
Estsblished policies, which commit to compliance wrth all relevant legisbalion and good practice.
Regular review of all polbcies and procedures.
Establishing adequate financial reser¥es.
Committeo Structur•
Since 2019. T.O.F.S. has operated with a revised set of sub-committees. each of which has written tem)s of reference
and authorty as delegated by the Trustees. and as pemitted by ihe Articles of Association {specifically paragraph5
110-112.) These sub-committees are fomially minuted. and thaired by either a Trustee or the CEO. Membership of
the sulFcommittees is drawn from Ihe Trustees, mefflbers of slaff and other 'family' members of the organisation. At
present, there are spe¢ifi¢ sub-committees for.. Finance: Stralegy & Planning.. Staff Management & Recruitment,.
Pastoral Support., Publications,. Conferences & Events; Medical Liaison & Collaboration.
Recrultment and Appolntmont of Trustees
T.O.F.S. welcomes eligible people who have an interest in helping the organisation achieve its objectives by
becoming a Truslee. Imilst TOFS members indude parents and grandparents of TOF children and Adulls bom with
OWOF. T.O.F.S welcomes potential trustees from all walks of lrfe.
The Art￿leS of Assoeiation state the e1￿ibl1ty of Trustees. which. In summary. stste that those eligible must..
Be over the age of 18.
Already be or become members of the organisation.
Not be undischarged bankrupts.
Not previousty have beèn removed frorn tTust8eship of a charity by a Court or the Charrty
Commissioners.
Not be under a disqualrfKatlon order under the Company Directors. Disqualthcation Act 1986.
Not be disqualffied by the Charities Act 1993 {S8Ction 72) from acting as a charty trustee.
Undertake lo fulfil thelr responsibililies and duties 88 a trustee of T.O.F.S. in good faith and in
accordance with the law and within the objectNes ol T.O.F.S.
Not have financial interests in confiiL* with those of T.0 F.S. leither In person or through famity or
business connections) except where formally noIrf￿d in a conlliot of interest slalement.
To ensure Trustees are fully competent. T.O.F.S. will:
ProvKle an UPt￿date Trustee Ind￿tIon Pad(.
Support induclion. in a manner lailored lo the experience of the individual, by the use of a 'buddy' system
whereby each new Trustee is guKled by an experienced Trustee or rec8ntly retired Trustee.
ProvKle access lo and. where appropriate, cover the costs of induction training.
Conduct de-briefing of retiring Trustees in order to review. and amend where necessary. the Induction
of new Trustees.
Provide a Job description for horK)rary officers
Page 3

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED
1 DECEMBER 2024
Staff Recruitment
There were no changes lo staff roles during 2024. The charty continues to be supported by administrator Jayne
Allitt and digrtal communications lead. Peter Browne, along with Sarah Winspear who joined in late 2023 as
membership, communication and events officer. The small staff team are led by CEO Diane Stephens. Three
employees work on a full-time basis remole (foi Ihe most part) and part-lime employee Jayne Allitt is office-based.
Strnteglc Direction
In 2024, T.O.F.S. continued with its three-pronged approach to its activities and the benefits delivered to ils
members, namely:
Near-term benefft.. information and pasloral support to members, both families and Adult TOFS.
Long-tenn benefft.. engagement with relevant healthcare professlonal bodies, cliniaans and researchers.
Sustainable operational 8ffectbveness.
Dellvery of objectjvu In 2024
Pastoral Support and Infommtlon •xchang0
Pastoral support and information exchange have traditionalty been the core adivities of T.O.F.S., and 2024 was no
exception. T.0 F.S. continued with a largely digital service model for information events lo allow access for as many
0A￿oF patients and their f8milies as possible. These were att8nded by 153 familiesladults over the year. (More
about Ihese online events in the 'evenls' section of this report.)
T.O.F.S organised a face-tCpfa¢e event in Warrin9ton in November for members to meet up in person and gain
information and support, along with hearing from OATfoF-knowledgeable health professionals. The event was
attended by 75 members.
In addition, there were seven local meet-ups organised by five local contad volunteers (TLCS) and three members
in their areas. South Wales. London. Stockport, Liverpool, and Australia. These were attended by 30 families in total.
T.O.F,S, continued to supply information and support both to new members and associates, (235 in 2024), and to
existing TOF parenlslcarers. adults bom with OArroF and heahh professionals through leaflets. brochures,
postcards and digital resources.
The T.O.F.S. website continues lo be vlsited on a fr8quenl basis, with visitors predominantly from the UK but also
from all over the wodd. The new look websrt8 had bean built in-house in 2022 and designed to be much more intuitive
and user-friendly for those seeking information about the consequences of being bom with oiifoF. 2024 saw
small increas8 in visitors lo the websile, wrth 41.593 visitors (40,278 in 2023).
N•w r••our¢•• for 2026
The Pastoral Support Sub-committee IPS slcl and the Adull TOF Working Group (ATWG) were closely involved in
developing and making new resources available throughout the year. Volunteers on these groups have been
personally impacted by OArroF and Ihls expen'enco shapes the resources Ihat are developed each year.
Members of the ATWG researched and contributed content for a new digital resour￿ relating specifically to post-
repair problems wrth lungs and airways. This Tesource offered valuable insights as well as practical lips to improve
respiratory hea￿h and quality of life for OAffOF patients. Content was endorsed by a professor of Cardiorespiratory
studies and a clinical specialist physiotherapist. This resource was viewed 1.081 limes in 2024 from lime of launch
by 346 individuals.
Page 4

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED
1 DECEMBER 2024
wtrth tremendous support from the OWOF 1￿MMunty. a successful T.O.F.S. Awareness week was held from 26
February to 3 March. to ￿1n(￿de with Rare Disease Day on 29 February. Members were asked to brirsg T.O.F.S.
and our free provision of digrtal twks lo the attents'on of heallh professionals. Many members raised the profile of
OAThOF by sharing their stories in regional and national press, and letters were sent lo MPS. flagging the need for
adequate care at time of transttion. Car window stickers were made available for members, along with brdnded bibs
and wristbands.
Singerlsongwrrter Tom Bright. who is himself an adult born with 0￿￿OF. joined the organisation as a celebrity
ambassador to help raise the profile of 0A￿oF. T.O.F.S. produced a video to promote the partnership and explain
the impact of the conditbon which had 625 vie￿S throughout the year.
Member and mM4wife Kate Yardley. {parenl of a baby bom with ONThOF) was commissioned to produce content for
a resource aimed to help new mums who wanted to breastfeed their OAThOF baby. The 'Expressed Breast Feeding.
resource was endorsed by the Neonatal Nursing A￿ociation and added to the websrte as part ofthe 2024 Awareness
week. It was subsequenty viewed 1.145 times during 2024 by 285 people.
A new video to promote the T O.F.S. Local Contsct ffLC) service for members was filmed and viewed 140 times
over the year. TLCS are a valued group of volunteers, all of whom are experienced TOF parents. Spread across the
UK, TLCS are available to listen. talk and offer support to new TOF parents. organise Ic￿1 informal get-togethers,
and take posters and leaflets into hospitals, espeually where TOF surgery takes place. Some TLCS have shown
further commrtment by giving talks on behalf of T.O.F.S. Our TLC for Scotland. Bruce Rennie, represents T.O.F.S
on the Expert Advisory Group of the Congenital Anomalies and Rare Diseases Registration and Infom)ation Service
for Scotland {CARDRISS.> Our TLC for Wales, Naomi Webbom, is a key member of the Pastoral Support
sublcornmittee and has continued to be involved in many support initiatives over 2024. She also represented TOFS
during Awareness week al the Rare Disease event at the Welsh Assembty.
wrth the help of our TLC volunteers, we launched new parent pa(*s for hospita15 to share with new parents. 62
packs were distribuied over the year to thirteen hospitals via their TLC.
In conjunction with support from the Brazilian Facebook group {GAAE- grupo de Apolo Atresia de Esofago) T.O.F.S.
facilitated the translation of some of its resources into Brazilian Portuguese lo share with parents in the Brazilian and
other Portuguese speaking communities. These resources were made available on the website and have been
downloaded 18 times since their launch.
We continued to promote the online dwJital library for healthcare professionals offering free access to downloadable
versions of our twks. along with other relevant publutions. This serv￿￿ was requested by 62 health professionals
across a range of disciplines. The majorty of these requests were from the UK (47). and the rest were from health
professionals working in various other ￿untrieS around the world.
All members re￿iVed three editions of the members, magazine, 'CheW. written and edited by the CEO and
volunteers on the Chew editorial board.
Our office staff {workin9 mainly reT￿tely) continued to support members via telephone and email with follow-up
support calls and emails made to new members who had gtven pennission fof the offio to do so.
Child-friendly posters were designed for children's wards at hospitals and schools explaining OAThOF in child-friendly
language, to help chIld￿n bom wrth OArroF to understand their condition and explain il to friends. These posters
have been downloaded 24 times Sin￿ they were added to the website.
Facebook
The T.O.F.S. Facebook group remains a cruual platform for supporting patients and frdmilies of Ihose born with
OAThOF. Many members are instrumental in offering the benefit of their eXperien￿S to new parents and the
Facebook group plays an increasingly supportrrfe and 'real-time' role in the exchange of parents, experiences wrth
their 0A￿OF bab￿S and children. The Facebook group gained 234 new members in 2024, bringing Trts tolal
membership to 5,112, with an average of 1.259 rnembers acb've each day.
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T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED
ECEMBER 2024
To better support our Adult TOF communty. we deoded several years ago lo endorse a Facebook group specifically
for Adu￿ and Teen TOFS. which was and still is. run by one of our members, and now adminislrated by one of our
Trustees and some of our Adull TOF working group members. This provides a very useful forum for our growing
number of Adutt TOF members, whereby they can share information and eXperien￿S on issues that continue to
affect them. In 2022, T.O.F.S. offiually linked this Adutt Group with the T.O.F.S. Facebook page making a visible
connection behyeen the charity and the Facebook Group. At 31 Decefflber 2024, the totsl membership of this group
stood at 893, wrth an average of 103 members adive each day.
Online evenis to support members
The series of online events giving members the opportunity lo hear from leading clinicians and healthcare
professionals and have their questions put to them. continued Zoom. There were five such events. hosted by
one or bolh of TOFS Chair Drew Bailey and Vice Chair Duncan Jackson, along with the CEO. Topics covered were
the Lost Twin Hypothesis. Chest Wall Oefonnrties, Lea￿ryng paediatric care and negotialing adult Servi￿5, Feeding
eXper￿n￿5 and oral aversion. We are very grateful to the expert speakers who gave their lime freely. In total these
were attended by 1CQ memters mainty from the UK. but also UK. Belgium, Germany, Sweden. Canada, New
Zealand, Ireland, Switzerfand. Kenya, Mauritius, Denmark. Australia. France and Ihe Netherlands. In addrtion, all
Ihe information sessions were recorded, edtted and subtiiled and subsequenuy added to the YouTube channel.
The informal online 'Cuppa & Chay meet-ups for adults ￿)ntinued and TOFS volunteers facilitated 10 of these virtual
meet-ups with 21 adults attending over the year.
TLC volunteers facilttated five 'Talk wrth TLCS, events during the year. These 'Talk wrth TLC, sessions offer members
the opportunty to engage wrth each other virtually, in disOJss￿n wrth their peers about various aspects ofthe OAThOF
condttion. Subjects covered included Stsrting Nursery, Pre-school & School.. Managing VACTERL anomalies; Teens
& Transition: and Reflux Management. In total, 32 families were supported by these events. An outcome from the
Starting Nursery tslk was the development of a 'Steps to cx)nsider when looking at childcare settings, resource which
was subsequently added to the websrte and dijwnloaded 29 times over 2024.
Two TLC volunteers aLso organised informal meet-ups online which supported fve families.
Volunteers
Volunteers continue to play an increasingly important role in the support that T.O.F.S. offers new parents, earers and
adults. We continue to benefft from the improved C{￿rdInation of our volunteers and the associated support activities,
and welcomed seven new volunteers, etther as TLCS. Fa¢etook moderators or on sub-committees or working
groups. We would not be the organisation we are wrthoul the valuable support from our volunteers, whether their
role is in advising members with DLAIPIP appI￿￿OnS. TLC support, writing for Chew, sending out birthday cards.
taking part in C￿MMittees. moderating Facetx)ok or helpin9 with fundraising.
There are Current￿ three T.O.F.S. Overseas Contacts (focs) one in Jordan, one in Canada and one in New Zealand.
All are active in offering support to TOF fafflilies wrthin their own country and they share T.O.F.S. knowledge when
applicable. This has been mutualty beneficial, resutting in translations of some T.O.F.S. leaflets into Arabic. (11 should
be noted that these Overseas Contscts do not in any legal sense represent T.O.F.S. in these countries; they are- as
the name implie5 - purely our o)ntscts in these ￿untries.)
'The TOF Book,. published in November 2016, continues lo sell, although understandabty not quite at the level of
prior years. Nonetheless, the￿ is evidence that a signifunt proportion of the new members who joined in the year
purchased the book. induding overseas members. The fully illustrated 'Soft F¢X￿ Recipe l)ook'. published in
December 2020, continued to provide a useful additK)n to our publicab"ons. We continued to make the facility for
both books to be purchased directty from ourselves via our webstle.
Page 6

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 DECEMBER 2024
Merchandise
Introduced in 2023, T.O.F.S. branded merchandise continued lo be made available for members to buy from the
online shop. These items are supplied by a third party and T.O.F.S. does not seek material financial gains from this
addition but instead, meel demand by the community and raise the profile of OArroF.
Use of Inforniation Technology (IT)
The use of IT conlinues to be a powerful tool in support of our operations. Facebook remains a very significant means
by which members and non-members communicate on O￿OF matters, and we have increasingly used this fomi of
social media to augment wmmunication with our mefflbers. T.O.F.S. has made significant strides in leveraging
technology to enhance member benefits and streamline operations. Highlights indude..
Dedicated Digital Lead.. TOFS has appointed a dedicated Digital Lead to drive technology adoption within the
organisation. This stralegic move aims to maximise the advantages of digrtal solutions for our members.
Enhanced Website.. TOFS has invested in a new. faster website Ihat not only provides essenlial infomiation but also
includes an online shop. Members can now convenienlty order leaflets and books through the website. resulting in a
more efficient process for administrative staff.
Hybrid Working Model.. Embracing technology, TOFS has adopted a hybrid working model. This approach allows
flexibility and widens the lalent pool during recruitment. Employees can work both remotely and in-office, optimising
productivity for members.
Video Conferencing for Member Engagement.. TOFS utilises video conferencing systems to offer live Q&A sessions
with medical experts. Members can participate from anywhere, fostering knowledge sharing and support.
Additionally, virtual meetups provide a valuable channel for volunteers to connect direct with members who need
support.
Active Presence on Other Social Media Channels.. TOFS extends rts reach beyond Facebook. We maintain an active
presence on Instagram, Twitter, Threads, and even TikTok, engaging with our communty and sharing valuable
content.
Exploring Al: TOFS is currently testing and investigating the use of artif￿131 Intelligen￿ (Al) within its operations.
Whilst in the early stages. we anticipate that Al could enhance efficiency, improve deusion-making, and provide
personalised experiences for our members. We will closely monilor its impacl and adapi accordingly in the future.
TOFS Continues to evolve its technobgical landscape. ensuring thal our member5 receive the best possible support
and resources.
Altido Group Ltd of Chemenham remain our primary bespoke IT service provider and we hereby note our gratitude
for their provision of these services at a discounted or free of charge basis. (We note for reasons of transparency
that the late Dennis Harvey (who retired as a Trustee during 2022) was the father-in-law of the Aftido Managing
Director.)
Llat8on wlth the medlcal profe8slon and wlth the NHS
We continued in our commitment to disseminating informalion to practitioners from health, education and social care.
We continue lo be assisted by members in distributing posters to hospitals to display in their lo¢al neo-natal wards
to increase awareness of T.O.F.S. when new parents and carers most need help.
T.O.F.S. continues in its efforts to incr8ase its profile within the medical communty. Since 2016, we have had a
Medical Advisory Group. which is intended to provide us with a leading group of medical professionals acfOSS all
relevant disciplines, who can provide advice and guidan￿, and support our publications with medically approved
inpul. Ils Research sub-group continues to support and guide T.O.F.S.' engagement with research sludies.
The involvement of T.O.F.S. in research programmes into OA (Oesophageal Atresia) reflects the almost mandatory
requirement for relevant patient group support to be given to such projects and where relevant for 'the patient voice"
and patient perspective lo be buitt into the study's lerms of referen￿. In some inslances, this support is characterised
purely by endorsement of its relevance and priority io OA P*ients. In olhef cases, support may also involve some
funding contribution, whilst a research activity may be characterised by more active involvement andlor collaboration
with T.O.F.S.
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T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 DECEMBER 2024
Projects underway or completed andlor published in 2024 that T.O.F.S. is Current￿ supporting andlor endorsing
indude:
The GOSHIICH (Great Ormond Street Children's Hosprtavlnstitule of Child Health) tissue-engineering Pfoject
(this is investigating the use of stem cells to develop an oesophagus)..
A study inlo the feeding issues for patients up to the age of 12 months (which is the subject of a PhD degree).,
A major randomised controlled trial (Treating Oesophageal Atresia to prevent STricture, TOAST) to
investigate whether or not the general use of antacid medicines wtth all OA babies would be helpful:
A study Ioesophageal atresia CofE outcomes LOngTerm, OCELor) to devélop a lifelong relevant 'core
outcome set. for OA.
A study {CSOR - Children's Surgical Outcome Reporting) to compare the outcomes (notably parent-reported
outcomes) of babies bom with congenital malformations induding those bom with OA.
In Ihe latter three studies. T.O.F.S. has membership of Ihe study steering group. We also note thal since January
2021 T.O.F.S. Trustee Graham Slater has been a Patient & Public Voice partner to the NHS England Clinical
Reference Group on Specialised Surgery in Children.
TOFS representatives also attended the following UK medical conferences..
Expert imaging in Obstetrics and Gynaecology (EIOG). EIOG is a new initiative, aiming to disperse information
about OAtfoF to obstetric and paedialric medical professionals
British Thoracic Society Summer Meeting
Neonatal Nurses Assoaation and ANNP Annual Conference
Northern Ireland Neonatal Nurses Association Conference
Co-operdtion with other oryanlsations
During 2024, T.O.F.S. continued its engagement with other UK patient organisations to slart collaborative action
concerning care for adult patients suffering ongoing morbidity as a result of being born with congenital matformations
such as OA, andlor olhef rare conditions acquired in childhood. Efforts are ongoing, to jointly appfoach relevant
medical societies and policy-makers in the NHS to address the absence of specialist care - an issue of growing
oncem as the number of adult patients requiring such care increases each year. A jointly signed letter with seven
other UK patient groups was submitted to a number of institutions including the Royal Colleges, the NHS and the
Depl. of Health & Social Care. This letter has been acknowledged by its addressees and an initial meeting with
representatives of the NHS England Specialist Commissioning Team was held in December where the issues raised
were acknowledged. However, ongoing advocacy and engagement with the NHS will be required in order to make
effective progress.
We also increased our engagèment wrth organisations which support other conditions in the VACTERL spectrum
which OAThOF patients can also suffer from. We attended and presented at associated conferences such as that run
by Max's Trust and the VACTERL Association Family Event.
T.O.F.S. also continued to play a leading role in EAT (Esophageal ATresia Global Support Groups e.V,). This
organisation now has member associations in fourteen countries. EAT is a German-registered association. and its
involvement is much sought by various intemational medical working groups, especially those supported by EU
funding. As a result, via EAT, T.O.F.S. continues to be actively involved in European collaborative healthcare
programmes. with INOEA (Intemational Ne￿ork on Esophageal Atresia) and other relevant international initiatives.
Through our membership of E4T. T.O.F.S.:
is actively participating in the European Reference Network (ERN) known as ERNICA (ERN for Inheriled and
Congenital Anomalies) and ERN-eUROGEN. The latter reflects our increased efforts to support our VACTERL
patients which also included our active participation in the annual meeting of AIMAR, the Italian anorectal patients
support group. Particular projects indude the development of 'patient joumeys,; Qualty of Lifelmental health
studies and webinars- palienvparent-friendly versions of guidelines and consensus statements- and Transition &
Adutt Care.
Page 8

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 DECEMBER 2024
contributed to the development of the programme for the INOEA conference lo be held in 2025,. the resull of this
actNty was to ensure active partiapatson of EAT representatives {induding three from TOFS) as presenters or
moderators in most conference sessions.
contributed to EATS engagernent with EURORDIS (the European Rare Diseases 'umbrella' organisalion for rare
disease patient support groups), in parts'cular with regard to the EURORDIS Mental Heatth intliative and the
EURORDIS support to patient representattves in the ERNS (European Referen￿ Netwofks).
represented EAT (in conjundion with colleagues from other EAT Mernber AssocialK)ns) at medical conferences
notably..
the ESPGHAN (The European Sryiety for Paediatric Gastroenterology Hepatology and Nutrition) conference
the EUPSA (The European Paediatric Surgeons Association. of which T.O.F.S. medical patron Prof. Paolo de
Coppi is currently President) conferenc*
European Respiratory Congress. Our attendance al this cx)ngress reflects our increased focus on respiratory
morbidty which to some degree affects the rnajorty of 0A￿oF patients. TOFS Volunteer Dr Caroline Love
attended in her role as a patient advocate for EATtfoFS representing the European Lung Foundation., a short
video about TOFS was played at the patient support group day.
Finalty. it is noted that on May 1 st, 2024, Dr Caroline Love trM)k over as the Chair of the T.O.F.S. Medical Liaison,
Research & Collaboration Su￿cl)mMIttee.
Expenditure. Funding? Financlal Management and Govemance
Expendityro
Totsl expenditure inueased in 2024. from the £171,700 of 2023 to £193,716. The Trustees had planned for 2024
expenditure to be increased with a nurnber of projects planned for the year.
The TNstees concluded some time ago that the most effective way to wnprove support to members and the general
communty impacted by O￿OF was by having staff in place to generate better information. make Ihat more
accessible. and generally co-ordinate actrvty better. Staff costs in all amounted to some 700A of total expenditure in
2024, and the administration element of this remains low. Indeed. we are now conducting a high proportion of our
deo-editing, information-preparatK)n and layoul in-house and have reduced extemal cash expenditure
commensuratety.
During the year. we held one conference for members, as explained elsewhere in Ihis report. The charity also
Continued to offer its members a series of online Question-and-Answer events with medical experts. The 8Xtemal
Cash cost of these events was just over £3.2C(l and invofved significant staff effort.
The Chanty adopted virtual meetings rn 2020 and- for most of the staff, most of the time - remole working from home
via Teams. There does not yet appear to be strong reason to revert to traditional face to face meetings. It is likely
thal we will Gontinue to use these cost-effective oplions to a greal exlent. However. the charty retains rts one office
as an operating base, from whith two staff members work. We have searthed without success for a materially
cheaper altemative office.
Much of the time spent by T.O.F.S. on engagement with healthcare professionals, their associations and their
initiatives is undertaken by volunteers. including some of the Trustees. The volume. impact and importance of this
work is far greater than might be inferred from the relalively sums which the charity has spent on it.
As noted elsewhere in this report. T.O.F.S. att8nded several UK medical society events in person, with a couple of
small exhibition stands. The cost of attending such events ¢an be material. though travel and subsisten¢e is typically
the greatest element. H(Mever, expendrture in this category was similar to that of 2023.
The cost of magazines and publications was similar to 2023. despite the charty changing supplier.
Page 9

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 DECEMBER 2024
Some years ago. the Trustees decided to designate £20.OC(i in all to pay for sponsorship of relevant medical research
and activities of similar long term 'scientific' benefft lo the O￿oF community over several years. The Trustees
decided to Iransfer another £20.000 from general funds to this designated research fund in 2021.
We had expected to pay the last tranche of support for the OCELOT project in 2023, but we were not asked to do
so. This was paid in 2024.
Income
The charity has no ongoing committed income such as grants. etc. The public sector makes no contribution to our
work other than Gifi Aid on donations from UK-based individuals.
Around half of the charity's income arises because of fundraising undertaken by our members and the wider
community impacted by OA. Most of the remainder arises because a member has directly donated il in one way or
another or most typically encouraged others lo do so. This high degree of engagement with members and the OA
community is vital to T.O.F.S. and thè Trustees are very grateful for it.
In 2024, underlying income reached a record level of £183.323. For reference, undertying income has varied between
£111,337 and £142,268 (excluding the exceptional Martin and Pretious legacies and the Forresler Trusl donalion)
over the previous five years. Total income in 2024 induded a grant of £23.248 from St8wart Investors in Edinburgh
which has been ring fenced for updated editions of The TOF Book. We are grateful to TOF parent, Greg Johnston
for putting TOFS forward.
The value of donations and grants from companies, clubs and societies such as Rotary clubs, sports clubs,
Freemasons, lodoes and local faith groups grew significantly in 2024, even excluding the Slewart Investors
exceptional donation. In almost every case, such corporatelclub donations arise because a member has nominated
T.O.F.S. to their employerlclublsociety.
Our two largest corporate donations in 2024 {8xcluding the Stewart Investors grant) Came from organisation$ that
had already donated to T.O.F.S in 2022 and 2023. Blackhawk Netsyork group of companies donated over £12.CM)O
as part of their CSFUbenefits programme. We are grateful to TOF parent Jo Fleet-chapman for her nomination. For
the second year running, we were chosen as a beneficiary from the MGL Golf Day which is organised by Mandy and
Keith Larner. Their donation of £10,000 brings the total donations from this event to £30,OChJ. The Trustees are
very graleful lo the family for deciding lo donate once again some of the nel proceeds of their annual charity Golf
Day to the charity.
Other significant corporate donations In 2024 include £3,000 from Fusion 21 and a grant from Blackbaud for
£4,918.50, to fund a new resource for parents lo help with breasrfeeding their O￿OF babies.
T.O.F.S. asks members to make a donation in respect oftheir membership, and many do $0. especially upon lolning
A significant number make regular monthly donations, and for this, we are very grateful.
The London Marathon remains the18rgest fundraising event for T.O.F.S.. and In 2024 we had seven people who
raised almost £19.¢XJO. The leading fundraiser was Gavin Mountford who raised £4,277. including Gift Aid.
The Great North Run has been a fixture on the T.O.F.S. calendar for some time. In 2024, our five entrants raised an
excellent combined total of over £6,000 including Gift Aid. which is a record fundraising amount for this event.
For a third year. T.O.F.S. had places in the Ride London-Essex 100 cycle ride. Our cyclists raised an excellent
Combined total of over £15.000 (including Gift Aid). Sadly, the organisers have made 8 decision not lo run this event
n 2025.
Some of our younger members took part with their mums andlor dads in our third annual Teddy Toddle, which raised
almost £4,500. 2024 saw the first TOFS-organised Big Splash Swimathon which raised over £5,000.
The Trustees are most grateful to the people who put so much effort into training for and completing all of the above
events, and into raising a great deal of money for the charity.
Page 10

T.O.F.S
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 DECEMBER 2024
More traditional fundraising activrty, organised by members themselves. raised jusl over £45.(h￿. The Trustees are
especially grateful to members who organise and undertake so many smalkstsle events and raise so much for
T.O.F.S. We continue to offer them support with fundraising packs, rtems such as T.O.F.S. branded running vests
and a fundraising guide with hints and tips. In 2024 we developed a new fundraising postcard.
Fundraisers of note include Ross Jeavons, (the best*ver London Marathon fundraiser), who ran a 100k
Ultramarathon in 2024 raising £8.240. Our largest individual fundraiser was DavKJ Loughran. whose fundraising
challenge for T.O.F.S. during 2024 Awareness week raised £13.210.
The chanty continues to take part in 'Your Charty Lotterf, which is run by a licensed third-party operator, with
approximatety 160 people playing on a weekly basis to benefft T.O.F.S.
Income from the Sale of the two books published by T.O.F.S. has remained at a useful level. The charity's online
shop has been expanded to offer the books wtlh relatively little administrative load, and aLso to allow members to
easily order the many free-of-tharge leafiets. badges, et
Lastly. we note e-cards - TOFS offered mernbers the chance to send one of a range of selected TOFS electronic
Christmas Cards- and to donate to TOFS. The amount raised during IMnteT 2024-2025 rose to approximately £950
and we are hopeful of further growth in fLrture.
Flnanclal Management
The Trustees have delegated most of Ihe charty's financial management lo the Treasurer, who works wrth a Financial
Sub-committee (FSC). The FSC had hekl rts nomal half-yearty meetings in 2024, to review expendrlure and
incomes. to monitor progress against budgets and to re(*mmend budgets for ratifjcation by the whole Counol of
Management of T.O.F.S.
On a day-to4ay basis, the charty uses a o)mmercial bookkeeping system and produces monthty internal updates.
The Treasurer and FSC r)ormally produce rerK)rts for the Trustees several times per year, typically quarterly. The
FurKlraising Working Group meets much more frequentty than the FSC and reports to the FSC.
Financlal Review and ReseNe8 policy
Like other charrties, T.O.F.S. Tequires reserves in order to operate in the short tem7 and to satisfy legal obligations in
the event of the end of funding, a major reduC￿n of funding or a delay in further fvnding becoming available. In the
event of having to close the tharity. the reserves would enable proper notice to be given to the beneficiaries and slaff
and for all legally due payments to be made to staff, volunteers arKI the organisations with which we do business. In
view of the great uncertainties arising from the COVID-19 pandemic. in 2020 the Trustees raised the minimum level
of reserves to an amount sufficient to cover all nomal operating expenses for a full year. The reserves policy has not
been thanged since. At the end of 2024, T.O.F.S. has s￿n[fIcant1Y more in reserves than our policy demands,
however the apparent eX￿s$ is very likely to reduce as rt is expected that expendtlure will exceed Ihe income that
can reasonably be anticipated for the next ￿uPle of yea[5.
Investment policy and objectives:
T.O.F.S. continues to hold cu￿ent bank arxounts with Lk)yds Bank Ltd and CAF Bank Ltd la part of the Charities Aid
Foundation.) For a￿ptIng payments and donations rt also has accounts with PayPal. Facebook, Just Giving.
Peoples. Fundraising. BOPP and Givestar. TOFS also has an account wilh 'ln memoriam. donations website Much
Loved.
The cu￿ent.1nveSIrnenf policy was adopted in February 2018. This enables (but does not commit) T.O.F.S. to invest
up to approximatety half of its apparently excess reserrfes in risky assets - in pursuit of a meaningful retum
via
vehicles such as charity-specific diversified p(M)led investment funds with reputable finan￿al instrtutions. However,
in view of the uncertainnroubling investment horizon. the Trustees decided upon the recommendation of the FSC to
continue to hold all reserves as cash in FSCS-protected savings accounts. For the whole of 2024, T.O.F.S. has had
savings accounts wtth Cambridge and Counties Bank. Mansfield Building Society. Hampshire Trust Bank, Redwood
Bank and Virgin Money.
Page11

T.O.F.S
REPORT OF THE TRUSTEES
R THE YEAR ENDED 31 DECEMBER 2024
This report has been prepared in accordance with the special provisions of Part 15 of the Companies Ad 20C
relating to small companies.
Approved by order of the Counc41 on 23 March 2025 and s￿ned on rts behalf by..
Andrew lan Ba1￿Y (Chair)
Page 12

INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF T.O.F.S.
I report to the Charity Trustees on my examination of the accounts of the company. for the year ended 31 December
2024 $8t out on pages 14 10 22.
Responslbllltles and basis of report
As the Charity Trustees of the company, (and also its directors for the purposes of company law) you are responsible
for Ihe prep•r8tion of the accounts in accordance with the requirements of the Companies Act 2006 {'the 2006 Act,).
Having satisfied myself that the accounts of Ihe company are not required to be audrted under Part 18 of the 2006
Act and are eligible for independent examination, I report in respect of my examination of your company's accounts
as carried out undor section 145 of the Charities Act 2011 {'the 2011 Ad,). In carrying out my examination I have
followed the Directions given by the Charty Commission under section 145(5){b) of the 2011 Ad.
Independent examlnorfs 8tatemgnt
I have completed my examination. I confirm that no matters have come to my attention in connection with Ihe
examination giving me cause to believe that in any materral respect..
1. Accounting records were not kepi in respect of the company as required by section 386 of the 20(
Act.. or
2. The accounts do not accord with those records., or
3. The accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than
any requirement that the accounts give a 'true and fair view, which is not a matter considered as part of
an independent examination.. or
4. The accounts have not been prepared in accordance with the methods and principles of the Statement
of Recommended Practice for accounting and reporting by charities [appliGable to charities preparing
their accounts in aC￿rdance wilh the Financial Reporting Standard applicable in the UK and Republic
of Ireland IFRS 102)]
I have no concerns and have come across no other matters in ¢onne¢tion with the examinations to which attention
should be drawn In thls report, in order to 8nable a proper und8rstanding of the accounts to be reached.
K Mealand FCCA
Lemans
29 Arboretum Streel
Noltingham
NG14JA
21 N/l
2025
Page 13

T.O.F.S.
STATEMENT OF FINANCIAL ACTIVITIES
INCORPORATING AN INCOME AND EXPENDITURE ACC
FOR THE YEAR ENDED 31 DECEMBER 2024
Yoar
Year
Ended
Ended
31.12.24 31.12.23
Total
Total
funds
funds
Unrestricted funds
General Designated
fund
funds
Notes
INCOME AND ENDOWMENTS FROM:
Donations and legacTres
Other trading actNlties
Investments
197.020
15,281
10,235
197,020 125,617
15,281
14,846
10,235
9.302
Total incom• and •ndowments
222.536
222.536 149.765
EXPENDITURE ON".
Raising funds
Charitable a¢trvities
Other
5.684
1.811
185,C66 167,080
2,809
181.￿ 4.(MJO
Total expenditure
189,716
193,716 171,700
NET INCOMEI{EXPENDITURE)
32,820 {4.(KK))
28,820 (21,935)
Transfers between fund8
(23.248) 23.248
Net movement in funds
9,572 19,248
28,820 (21.935)
Reconciliation of fvnds
TOTAL FUNDS BROUGHT FORWARD
270.813 14,726
285,539 307,474
TOTAL FUNDS CARRIED FORWARD
280,38S 33,974
314,359 285.539
The notes form part of these financial statements
Page 14

T.O.F.S.- COMPANY NUMBER 2202260
BALANCE SHEET
AT 31 DECEMBER 2024
Year
Year
Ended
Ended
31.12.24 31.12.23
Unrnstricted funds
Genernl l)esignated
fund
funds
Total
funds
Total
funds
FIXED ASSETS
Tangible assets
Investments
12
14
CURRENT ASSETS
St¢xk
Debtors- amounts falling due wrthin one year
Investments
Cash al bank
5,104
10,594
263,801
10.498
5,104
6,980
10,594 13.555
263.801 238.167
44.472 33.492
13
14
33.974
289.997
33,974
323,971 292,194
CREDITORS
Amounts falling due wrthin one year
15
9.612
9.612
6,655
NET CURRENT ASSETS
280,385
33,974
314,359 285.539
TOTAL ASSETS LESS CURRENT
LIABILITIES
280.385
33.974
314,359 285.539
NET ASSETS
280.385
33,974
314.359 285,539
FUNDS
General fvnd
Designated funds
16
280.385 270,813
33.974 14.726
TOTAL FUNDS
314.359 285.539
The notes fonn part of these financial statements
Page 15

T.O.F.S.- COMPANY NUMBER 2202260
BALANCE SHEET- CONTINUED
AT
1 DECEMBER 2024
The charitable company is entitled to exemption from audit under Seckn 477 of the Companies Act 20C6 for the
year ended 31 December 2023.
The trustees have not required the itharrtable company to obtain an audit of its financial statements for the year
ended 31 December 2023 in accordance wrth Section 476 of the Companies Act 2￿￿.
The trustees acknowledge their responsibilities for
(a)
ensuring that the tharitable company keeps aC￿)Unting rec4yds that LX)mpty with Section 386 of the
Companies Act 2¢)06 and
preparing financial slatements whth give a Irue and fair view of the state of affairs ofthe Charitab￿ company
as at the end of each finanoal period and of its surplus or defiat for each financial period in accordance with
the requirements of Section 394 and Se(lion 395 and which otherwise comply with the requirements of the
Companies Act 2006 relating to finanaal ststements, so far as applicable to the charitable company.
The financial statements have been prepared in accordan￿ with the provisions applicable to charitable companies
subject to th8 small companies. regime.
(b)
The financial statements were approved by the Council of Management on 23 March 2025 and were signed on its
behalf by:
A Bailey (Chair) - Trustee
D Hill (Treasurer) - Trustee
G Slater (Company Secretary) - Trustee
The notes fomi part of these financial statements
Page 16

T.O.F.S.
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
ACCOUNTING POLICIES
Basis of preparing the financial statements and assessment of going concem
TOFS is a private charitable company limrted by guarantee incorporated in England within the UK. In the event
of the charity being wound up, the liabilty in respect of the guarantee is limfted lo £1 per member of the charity.
The address of the registered office is gI￿n in the charity infom)ation on page 1 of these financial statements.
The nature of the charty's operations and principal actNtties are slated on page 2 of these financial statements.
The charity constitutes a public benefil entty as defined by FRS102. The financial stalemenls have been
Pfepared in accordance with Accounling and Reporting by Chartties: Statement of Recommended Practice
applicable to chartties preparing their accounls in accordance with the Financial Reporting Slandard applicable
in the UK and Republic of Ireland issued in October 2019. the Financial Reporting Standard applicable in the
United Kingdom and RepublK of Ireland {FRS102). the Charities Acl 2011, the Companies Act 21x6 and UK
Generalty Accepted Practice.
The financial statements a￿ prepared on a going GOn￿M basis under the historical cost convention. The
finan￿al statements are p￿sented in steding which is the functional currency of the charty and rounded to the
nearest £. The signtfi¢ant accounting policies appl￿1 in the preparation of these financial statements are set out
below. These policies have been consistendy applied to all years presented unless otherwise stated.
Income
Volunlary income is receNed by way of donation and gffls and is included in full in the Statement of Financial
Activities when received. The value of serrfices provided by volunteers has not been induded.
Expenditure
Expendrture is accounted for on an a[￿ual$ basis and has been dassffied under headings that aggregate all
cost related to the category. Wthere costs cannot be directty attributed to particular headings, they have been
allocated to aclivities on a basis consistent wrth the use of resources.
Tangible Fixed Assets
Depreciation is provided at the following annual rale to write off each asset over its estimated usefijl life..
offi￿ equipment
33% on (x)st
From January 2012, the Trustees decided to write off the cost of Off￿ equipment in full in the year of purchase
Stocks
Stock is valued at the lower of oost and estimated selling price.
Currènt asset investments
The charity holds cash on deposit for investment purposes. in order to obtain a better rate of retum, thereby
increasing their income enabling them to meet their objects.
Taxation
The charity is exempt from wration tax on its charitable activilies.
Debtors and Creditor8
Debtors and Credrtors receivable and payable within one year are recorded at transaction price.
Cash at Bank
The charity holds sufficient funds in order to meet its short-temi cash ￿MMitMentS as they fall due.
Fund accounting
Unrestricled funds can be used in accordan￿ wtih the charitable objectr¥ES at the disc￿110￿ of the trustees.
Restricted funds can onty be used for particular restricted purposes wtthin the objects ofthe charty. Restrictions
arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the ffinancial statements.
Page 17

T.O.F.S.
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
2. DONATIONS AND LEGACIES
2024
Donations:
Charitable Trusts, Clubs and Corporations
Individuals
In Memoria
Members and Frbends
London MarathonlGreat North RU￿eddY ToddlelRKle London 1001
Big Splash
Other
2023
67,452
5,592
2.534
45,049
32.508
2,632
8,801
28,463
44.600
31,793
29.717
23,496
197,020
125,617
Other donations and grfts indude donations made by members in respect of their membership.
Members and Friends donations are made as a result of events run by them to raise funds for TOFS.
London Marathon. Great North Run. Teddy Toddle. Ride London and BKJ Splash are special cases of fundraising
by members for TOFS.
3. INCOME FROM OTHER TRADING ACTIVITIES
2024
2023
Sale of TOFS goods
TOFS fundraisers and raffles
TOAST project
5.552
6,129
6,027
8.819
15.281
14.846
4. INVESTMENT INCOME
Interest receivable
10,235
9,302
10,235
9,302
S. COSTS OF RAISING FUNDS
Opening stock
Purchases
Closing sttxk
6.980
1,158
{5,104}
769
(6,980)
3,034
(2.16n
Just Giving subscription
London Marathon l Great North Runl RKle London
331
2.319
216
3,762
1.811
Page 18

T.O.F.S.
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
CHARITABLE ACTIVITIES
2024
2023
Pastoral support and infomation exchange..
Newsletters
Event costs
Telecommunications
Printing. postage, stationery. fundraising ￿sts
and publicity
Support costs
12,915
3.253
7,771
2,859
1,860
9.276
112,260
8.331
109,700
(note 8)
139,308
Medical liaison. researth and wperalion..
Projects - Medics to INOEA l Medical and Hospital Liatson
Research costs
Awareness week and olher
Support costs
Projects European Colla￿rat￿ l EAT
130,521
2.635
3.100
3,414
35,450
259
70
32,770
619
45,758
36.559
185.CE6
167,080
7. OTHER COSTS
2024
2023
Accountancy and professional fees
2.809
8. SUPPORT COSTS
Pastornl
IAedical
support &
Ilaison
infommtion research and
exchange
Coaoperdtion
2024
TOTAL
2023
TOTAL
Wages
Finance
Information Technology
Office accommodation
Travel and sundry
103.708
129
2,249
4,301
1.873
32.750
41
710
1,358
591
136,458
170
2.959
5.659
127,427
120
8,682
5,456
785
112.260
35.450
147.710
142,470
Support costs tr￿ve been all(Kated to the activities based on time spent.
9. NET INCOMING RESOURCES
2024
2023
Net resources are stated after tharging."
Independent examinerfs fees
Payroll Administration
2,028
535
1.914
571
Page 19

T.O.F.S.
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
10. TRUSTEES, REMUNERATION AND BENEFITS
There were no trustees. remuneralion or other beneffts for the year ended 31 De￿rnber 2024 nor for the year
ended 31 De￿rnber 2023.
Trustee$, Expenses
Five {2023 - 6) of trustees received reimtrtjrsed expenses in the period of £2,515 (202& £4,129). The
expense reimbursements were dominated by the cost £1,504 (2023 £2,081) of a new printer, apple watch and
travel.
11. STAFF COSTS
The average number of full time equivafent emF4oyees during the Peric￿ was 4 (2023- 3.59)
No employee rec8ived total employee beneffts of more than £60.0W.
The total staff costs and employee beneffts were as follows:
31.12.24
1.12.23
Wages and Salarbes
Social Securtty Costs
Pension Costs
119.687
6,443
10,328
115.266
5,088
7.073
136,458
127,427
12. TANGIBLE FIXED ASSETS
Office
COST
At 1 January 2024
AdditionsllDisposals)
At 31 December 2024
DEPRECIATION
At 1 January 2024
Charge for the year
At 31 De￿mber 2024
NET BOOK VALUE
At 31 Decernber 2024
Al 31 tkcember 2023
Page 20

T.O.F.S.
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
13. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2024
2023
Prepayments and other debtors
Gift Aid
8,723
1,871
11,541
2,014
10.594
13.555
2024
2023
14. CASH HELD FOR INVESTMENTS
Current asset investments
Fixed asset inveslments
263.801
238,167
263,801
238,187
15. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Accounlancy
Social Security & other taxes
Accruals
2,028
2,617
4,967
1,914
2,831
1,910
9,612
6,655
16. MOVEMENT IN FUNDS
1.1.24
Net Movement
In fund8
Transfers
twèen funds
1.12.24
Unre8trf¢ted fund8
General Fund
Designated Fund - Medical research
The Tof Book
270,813
14,728
32,820
(4,CQO)
(23,248)
280.385
10.726
23,248
23.248
TOTAL FUNDS
285,539
28.820
314,359
Net movement in funds, included in the above are as follows..
Incoming
resources
Rèsources
expended
Gains and Movement
losse8
In fund$
Unrestricted funds
General Fund
Desi9nated Fund - Medical research
Projects and resources
222,536
189,716
4.000
32,820
(4,000)
TOTAL FUNDS
222.538
193,716
28,820
Page 21

T.O.F.S.
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2024
16. MOVEMENT IN FUNDS CONTINUED....
At 1.1.23
Net Movement
in funds
Transfers
between funds
At 31.12.2
Unrestricted funds
General Fund
Designated Fund - Medical research
Projects & resources
292,748
14.726
(21,935)
270.813
14.726
TOTAL FUNDS
307,474
(21.935)
285,539
Net movement in funds, included in the above are as follows:
Incomlng
resources
Resources
expended
Gains and Movement
losses
in funds
Unrestricted funds
General Fund
149.765
171.7(K)
(21.935)
Designated Funds - Medical research
Projects and resources
TOTAL FUNDS
149,765
171.700
(21.935)
The research designated fund was created in 2013. The Trustees added to this in 2014. A total of £40,000 of
reserves has n¢JW been designated to support relevant medical research Wofk. over several years. In 2019 the
Trustees created an additional designated fund for 'Projects and Addrtional Resources"
to cover principally
additional slaff costs over the subsequent couple of years. The trustees closed this latter fund during 2022. In
2024. the donation of£23,248 received from Stewart Investors was designated for future editions oflhe Tof Book.
17. RELATED PARTY TRANSACTIONS.
During the year, TOFS has bought IT services amounting lo £3￿(2023 - £1,228) from A￿ld0 (fomerty CRM
Labs). The managing director of this fimi is the son-in-law of the lale Dennis Harvey, who served as a Trustee
until March 2022.
18. PENSION CONTRIBUTIONS
The chariiy operates a defined contributs'on scheme. The a55ets are managed independently of the charity and
contributions are charged to the Statement of Financial Activtties in Ihe period they are made. The charge for
the year was £10,328 {2023- £7.073).
Page 22

T.O.F.S.
DETAILED STATEMENT OF FINANCIAL ACTIVITIES
INCLUDING INCOME AND EXPENDITURE ACCOUN
FOR THE YEAR ENDED 31 DECEMBER 2024
Year Ended
31.12.2024
Year Ended
31.12.2023
Donatlons
Charitable Twsts, Clubs and
Corporations
Individuals
In Memoria
Members and Friends
London Marathon, Great North Run.
Teddy Toddle. Ride London 1 ￿ and
Big Splash
Other
67,452
5,592
2,534
45.049
32,508
2,632
8.801
28,463
44.6(K)
31,793
29.717
23.496
197.020
125,617
Other income
Sale of TOFS Goods
Interest
TOFS Fundraisers and raffles
TOAST project
5.552
10.235
6,129
6,027
9.302
8.819
25.516
24,148
Totsl Income
149,765
Cost of TOFS Goods Sold
Opening stock
Purchases
Closing stod
1.158
(5.104)
769
(6,980)
3.034
(2.167)
Just Giving subsLYiPtion
331
216
London Marathon l Great North Run l RKle London
2.319
3,762
1.811
Fundrdlsing. Publicity & Coaopernllon
Newsletters
Printing, postsge. ststionery,
fvndraising costs & publicty
Cooperation wrth other organisation
Liaison with the medical profession
12.915
7,771
9,276
259
6.049
8,331
619
3,170
28,499
19.891
Central costs
Wages. social se£￿ty & pension costs
Accountancy
Telecommunications
136,458
127,427
2,809
1,860
141,028
This page does not form part of the statutory financial ststements
Page 23
132,096

T.O.F.S.
DETAILED STATEMENT OF FINANCIAL ACTIVITIES
INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 31 DECEMBER 2024
Year Ended
31.12.2024
Year Ended
31.12.2023
Other Oporatlng costs
Event expense
Travel and meeling
Rent and Insurance
Research, Recruitment and Sundry
Compuler costs
Bank charges
Bad Debts
3,253
1.737
5.659
4,727
2,959
170
2,859
81
5.456
704
8,682
120
18,505
17,902
Tolal Expondltur•
193,716
171,700
NET INCOMEI(EXPENDITURE)
28,820
(21,935)
Funds bfought forward
285,539
307,474
Funds carried forward
314,359
285.539
This page does not form part of the statutory financial statements
Page 24