OpenCharities

Emily Heather Appeal Fund For Sandhoffs' Disease

Country
England & Wales
Charity number
287122
Status
Registered
Reporting
Up to date Last filed May 1, 2026. Filing history
Registered
Oct. 4, 2011
Legal form
Trust

Address

Address
91 Oakenshaw Road
Redditch
B98 7PN

Activities

Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

Objects: To Promote Or Assist In Promoting Research Into The Causes And Cure Of Sandhoff's Disease And To Disseminate The Useful Results Of Such Research. To Relieve Or Asssiist In Relieving All Persons Suffering From Sandhoff's Disease In Any Manner Which Now Or Hereafter May Be Deemed By Law To Be Charitable.

Classification

How
Makes Grants To Individuals
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Children/young People

Geography

Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
July 20, 2025 May 1, 2026On time £8 £0
July 20, 2024 May 15, 2025On time £36 £0
July 20, 2023 June 23, 202434 days late £8 £0
July 20, 2022 March 13, 2023On time £10 £0
July 20, 2021 March 17, 2022On time £5 £0
July 20, 2020 March 24, 2021 £12 £0

Trustees

Name Appointed
Dr David COX March 1, 1984
Mary Ruth Cox