OpenCharities

Emily Heather Appeal Fund For Sandhoffs' Disease

Country
England & Wales
Charity number
287122
Status
Registered
Registered
Oct. 4, 2011
Legal form
Trust
Area of benefit
Not Defined

Address

Address
91 OAKENSHAW ROAD
REDDITCH
B98 7PN

Contact

Phone
01527457749
Email
[email protected]

Activities

Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

Objects: To Promote Or Assist In Promoting Research Into The Causes And Cure Of Sandhoff's Disease And To Disseminate The Useful Results Of Such Research. To Relieve Or Asssiist In Relieving All Persons Suffering From Sandhoff's Disease In Any Manner Which Now Or Hereafter May Be Deemed By Law To Be Charitable.

Classification

How
Makes Grants To Individuals
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Children/young People

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
July 20, 2024 £36
July 20, 2023 £8
July 20, 2022 £10
July 20, 2021 £5
July 20, 2020 £12

Trustees

Name Appointed
Dr David COX March 1, 1984
Mary Ruth Cox