# EMILY HEATHER APPEAL FUND FOR SANDHOFFS' DISEASE

## Details

- **Country:** England & Wales
- **Charity number:** 287122
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Oct. 4, 2011
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=287122


## Contact

- **Address:** 91 OAKENSHAW ROAD, REDDITCH
- **Postcode:** B98 7PN
- **Phone:** 01527457749
- **Email:** kosiceax913@blueyonder.co.uk



## Activities

**Objects:** TO PROMOTE OR ASSIST IN PROMOTING RESEARCH INTO THE CAUSES AND CURE OF SANDHOFF'S DISEASE AND TO DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH. TO RELIEVE OR ASSSIIST IN RELIEVING ALL PERSONS SUFFERING FROM SANDHOFF'S DISEASE IN ANY MANNER WHICH NOW OR HEREAFTER MAY BE DEEMED BY LAW TO BE CHARITABLE.

**Activities:** Initially set up 30years ago in response to the death of my daughter from Sandhoff's disease we set out to try to help research efforts into this condition. Such is its rarity none is active at present to our knowledge.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| July 20, 2024 | £36 | £0 | — | — |
| July 20, 2023 | £8 | £0 | — | — |
| July 20, 2022 | £10 | £0 | — | — |
| July 20, 2021 | £5 | £0 | — | — |
| July 20, 2020 | £12 | £0 | — | — |



## Trustees

- Dr David COX — appointed March 1, 1984
- MARY RUTH COX