2025-03-31-accounts

Annual Financial Statements Year Ending March 2025

Company Number: 1523794 Charity Number England & Wales: 281014 Scotland: SCO49897

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Content Index

03. About the Williams Syndrome Foundation

05. Trustees Annual Report

12. Independent Examiner Report

13. Statement of Financial Activities

14. Balance Sheet

15. Notes to the Financial Statements

22. Legal and Administrative Information

Williams Syndrome Foundation YEAR ENDED 31 March 2025

About the Williams Syndrome Foundation

In 1976 Lady Cynthia Cooper began to research Infantile Hypercalcaemia (IHC) after her daughter Clare (then aged 14) had been diagnosed with the condition at eight weeks old and had since developed learning difficulties. Recognising that there was very little information or support available, Lady Cooper and her husband, General Sir George Cooper, decided to set up a charity to help other families in the same situation.

In 1980 the Williams Syndrome Foundation was created, bringing families and healthcare professionals together. Forty-four years on, we have evolved to deliver an extensive range of information outlets supporting more than 1100 families across the UK. We are almost entirely funded by member fundraising and donations.

Our mission has never changed. We believe that every family coping with the care of a child or adult with Williams Syndrome should have the support and information they need.

We were the first charity in the world dedicated to helping those with Williams Syndrome and instigating research into the condition and are still the only charity doing so within the UK.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

How do we help?

• We fund and promote research of WS in order to create new and comprehensive guidelines and webinars and to keep our current library of WS specific publications updated.

• We provide online, email, and telephone support for families, carers, practitioners, and professionals – supported by the expertise of our Professional Advisory Panel.

• We have an excellent team of Event Coordinators – all family members of WS children – who offer support to our members and organise fun events for families, providing social opportunities for families to meet and share support.

• We support an Educational Health & Care Plan (EHCP) assessment service to help families gain the framework of support needed for their child.

• We provide respite opportunities for families through specialised care holidays for their adults with WS, as well as respite breaks for adolescents and parents at inclusive activity holiday sites.

• We host an online Zoom Club for adults with WS to combat social isolation.

• We host online parent support groups to connect parents of similar aged children with WS.

• We keep families connected and informed through our website www.williamssyndrome.org.uk , media channels, monthly e-newsletters and twice-yearly magazines.

• We host weekend family conventions every three years with informative presentations and workshops form WS experts.

• We raise awareness of Williams Syndrome.

• We celebrate the unique joys and achievements of our WSF community.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Trustees Annual Report

The Trustees, who are also Directors of the Charity for the purposes of the Companies Act, submit their annual report and the audited financial statements for the year ended 31st March 2025.

The Trustees confirm that the report and financial statements of the Charity comply with the current statutory requirements, the requirements of the company's governing document, and the provisions of "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019) (Charities SORP (FRS 102)).

Legal and administrative information set out pages 3-4 forms part of this report.

Charity Status

Williams Syndrome Foundation is a Charitable Company limited by guarantee. It was incorporated on 22 October 1980 and is governed by Articles of Association as adopted on 27 July 2023.

Governance and Internal Control

The Charity is organised so that the Trustees meet regularly to manage its affairs. The Chief Executive manages the affairs of the Charity on a day-to-day basis with additional assistance as required.

The Board as a whole appoints new Trustees, and one-third of the Trustees retire and are eligible for re-appointment, each year. New Trustees are normally parents or relatives of individuals with Williams Syndrome, or have a professional skill required by the Charity. The Trustees are inducted by briefings from the Chief Executive and the Chairman and relevantly skilled Trustee(s).

Objectives and Activities

The objectives of the Charity are the provision of support, information and advice on all aspects of Williams Syndrome; supporting and generating research with practical applications that will further increase understanding of Williams Syndrome; to raise awareness of the condition to improve medical, social and educational support and care - for the direct benefit of those who have, or those who support and care for someone with Williams Syndrome - within the UK and elsewhere.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Trustees Annual Report

The aims of the charity are:

SUPPORT:

All WS Individuals and carers in the UK will have access to the support they need to help address the challenges of the condition.

EVENTS:

The WSF will provide forums in which members and their families can access knowledge, share experiences and have fun confidently and safely.

RESEARCH:

Ensure the impact of WS on affected individuals, their families and communities is understood as fully as medical and social science enable it to be.

AWARENESS:

Create a broad awareness of WS in UK society.

COMMERCIAL SUSTAINABILITY: Ensure that the WSF is a commercially sustainable organisation, with processes that are robust, efficient, auditable and compliant with relevant legal and ethical requirements.

MANAGEMENT:

The WSF will continue to be run by dedicated Trustees and employ motivated staff with the necessary skills to perform their duties to best effect.

Public Benefit

The Trustees have considered the Charity Commission's guidance on public benefit. Williams Syndrome is a rare disorder, first identified in 1961. The charity’s educational and research activities are considered to be for the benefit of all who have been diagnosed with the condition and those that love, care for and educate them, and thus for public benefit.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Trustees Annual Report

Review of the Year

WSF staff continue to work with families of individuals of all ages, from infants to those of relative old age, parents, carers, police, hospitals and GP surgeries, multidisciplinary practitioners, educational establishments, housing associations, and supported accommodation providers to support people with WS in all areas of their lives.

1. Support

We have:

• welcomed 134 new members, bringing our membership total to 2385 . produced two member magazines (36 and 40 pages) and 12 monthly e-newsletters. produced a 20 page, Welcome to the WSF booklet for new members. held 16 online family support groups.

• held 96 We Support Friendship Zoom sessions with adults with WS.

• held and recorded the following webinars:

• Foundations for numeracy

• Physiotherapy

• facilitated a small group clinic session for members focusing on Speech and Language development.

• supported 13 adults and 10 adolescents / young adults with supported holidays and 32 parents with respite.

• booked 184 families into Butlin’s for our 2025 National Convention in Skegness.

• answered 3700 queries including 400 telephone queries to our support lines.

• continued to be active members of the Genetic Alliance community and have advocated for our community with the Department of Health & Social Care in relation to the Down Syndrome Act Guidelines.

• continued to fund EHCP assessments with Professor Jo at her Child Development and Learning Difficulties Lab, UCL.

• created and manage a member closed Facebook group.

• added a new webpage for new members as well as one highlighting the research projects we support and improved our awareness and fundraising pages.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Trustees Annual Report

2. Events

We have:

held 25 regional events and recruited 4 new regional coordinators.

held a regional Roadshow in Bristol and Regional Roadshow / Mini Convention in Scotland.

3. Research

We have facilitated the following research studies:

• WiSdom Census Study

• Association between Motor Abilities, Cognitive Language and Social Skills in Early Child Development

• Emotional Development and Parenting

• Mathematical Inclusion for Neurodiversity

• Perceptual Capacity in Adults with WS

• Motor Skills Learning, Physical Activity and Mental Health in ASD, DS and WS

• and funded:

Mathematical Development in Williams Syndrome

4. Awareness

We have:

• appointed two new patrons – Mat Baynton and Clare Perkins, to help increase the profile of WS.

• attended the Royal College of Paediatrics and Child Health Annual Conference to raise awareness of WS. attended the Positive Choices Convention for student Learning Disability Nurses to raise awareness of WS. created and shared a month-long awareness campaign during May and have grown our presence on Instagram. been active members of FEWS (Federation of Williams Syndrome in Europe)

• continued to provide WSF Xmas cards and merchandise to raise awareness.

• produced a leaflet for fundraisers to support awareness / fundraising events.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Trustees Annual Report

5. Commercial Sustainability

We were:

active partners with Talbot Underwriters as their Charity of the Year for 2024, gaining £30k in fundraising.

• awarded £10k by Lloyd’s of London in recognition of Sarah Waylen (Talbot Underwriters) and her incredible fundraising for the WSF.

awarded £15k from Baily Thomas toward our 2025 national weekend conventions costs.

We are extremely grateful to Talbot, Lloyds and Baily Thomas for their support.

We are extremely fortunate that the majority of our income continues to be raised by our membership through donations and fundraising activity – they have our continued gratitude.

We continue to review and reduce our office costs and have undertaken a review of our investment providers.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Trustees Annual Report

6. Management

We recorded another clean independent examination and wish to thank our small staff team of 5 part-time employees (1.86 FTE) for all that they have achieved during this financial year.

Financial position

The Statement of Financial Activities shows a net increase in resources for the year of £10,226 (2024: increase £88,626) after taking into account the loss in the value of the charity's investments during the year as a result of the market performance, which was £128. Unrestricted reserves stand at £451,479 at the year end.

Before taking into account the decrease in the value of investments, income exceeded expenditure by £10,355 (2024: income exceeded expenditure by £63,473).

Reserves policy

The charity aims to maintain reserves sufficient to cover a minimum of one year's expenses, plus the current year's expenses. The Trustees believe that this is in the best interests of the Charity.

Most of the employees of WSF have either children or siblings with Williams Syndrome and it is considered vital to ensure that there are sufficient reserves to guarantee continuity of their employment. It is also vital to ensure the key activities and ongoing support can be assured for WS Families.

The charity’s unrestricted reserves as of 31 March 2025 are £451,479. Of this amount £423,949 is represented by fixed asset investments which are invested to raise funds for the charities ongoing benefit, these can be converted to cash within 3 months. This, along with free reserves of £27,531 is adequate to support the planned Medical Research, Regional Activities and the day-to-day expenses of the Charity for the next Financial Year as well as our next triennial convention which is planned for July 2025 with an expected cost of £150,000.

The Trustees consider that the financial position of the Charity is stable and satisfactory.

Investment policy and objectives

The charity operates a low-risk attitude towards investment whilst looking for reasonable returns in a challenging economic climate.

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Statement of directors' and trustees' responsibilities

The Directors are responsible for preparing financial statements in accordance with applicable law and regulations.

Company law requires the Directors to prepare financial statements for each financial year. Under that law the Directors have elected to prepare financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under company law the Directors must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period.

In preparing these financial statements, the Directors are required to:

• select suitable accounting policies and then apply them consistently; observe the methods and principles in the Charities SORP; make judgments and estimates that are reasonable and prudent;

• state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements; and prepare the financial statements on the going concern basis unless it is inappropriate to presume that the company will continue in business.

The Directors are responsible for keeping adequate accounting records sufficient to show and explain the company’s transactions and that disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

This report has been prepared in accordance with the provisions applicable to companies subject to the small companies regime in Part 15 of the Companies Act 2006.

Approved by the Trustees and signed on its behalf by:

…………………………………. P R Lawrie Chairman of the Trustee Board

Date: 21 /08/2025

WILLIAMS SYNDROME FOUNDATION INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 31 MARCH 2025 I report on the acLOUnts of William5 Syndrome Foundation for the year ended 31 March 2025 which are set out on pages 10 to 18. R￿P•¢I1￿ r••pon•ibllltio1 of trust￿ •nd ox•mln•r The Charity's Trustees are responsible for the preparation of the acccyjnts. The Charity's Twstee5 consider that an audit is not required for this ￿ar lundef section 144121 of the Charits'es Act 2011 (The Act) bul that an independent examination Is needed. 11 15 my rosponsibility lo: Examlne the a(xx)unl$ under seclion 145 of the Charities Act, To fc41ow the procédures laid down in the General Direclions glven by thè Charty Commiwoners (under sects'cffl 14515Xbl of the Charit￿S Act. and To state whelher particular matters have come to rny attention. Bull ol Indgpondont oxJmlner' SiJtemont My examinabon wa5 carried out In accordance ￿th the GèMral Dtreellons gTr￿n by the Charlty Commlssioners. An examinab'on includes a re￿8W of Ihe acc(xJnling records kept by the Charity and a comparison of Ihe accounts presented with those records. It also dudes ¢onsKlerab'ons of any unusual ilerns or disclosures in the accounts, and soeking explanalKJn5 froffl you as Iru51ees concerniThJ any SLKh matters. The procedures undertaken do not provid6 all the evideKe that V￿)uld be raguired In an audit and ccnsequenlly I do nol express an audil opinion on the Mow given by the ￿OUnt8. Ind•p•nd•nt oxamlnor's •tat•m•nt In the course of my examinatson. no matenal mattor8 have come to my altentson me cause to believe that in. any material respect.. the 8cccMJnting rècxxds vnr8 riot kept In accordanc vAth Sectlon 130 of Ihe Charrties Act: or the accounts did rK>t aixud ?￿th the accounllng recordB.' C th8 accounts did rKt comply vAlh the aprAlcabl8 requirements concemlrvJ the lo￿ and conlenl ol accounts set oul in the Charits'es (Accounls and Reports) Regulations 2008 other than any requirement that the acLounls gfve a true aThJ fair, which is rK)t a matter consldered as part of an independènt examlnation. I have CK)me across no other matters in ttnnectson wlth the examinatson lo which allenlion uld be drawn in this rep)rt in order to enable a proper under51andir4J of the accounts to be reached. D￿d CourUer FMA4T A4TQB lor and on behaff ot. Communty360 Winsley 5 House, High StreeL Cokthester, Essex Date 02109r2025

WILLIAMS SYNDROME FOUNDATION STATEMENT OF FINANCIAL ACTIVITIES (INCLUDING INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 31 MARCH 2025 Unr•strlct•d R•strkt•d Fund Fund 2025 Total 2024 Total Incomlng r￿￿r￿¥ Donalw8 Chari18ble ac￿'VIte Other Irading 8cU'vibes Investmenls 162.691 12.048 6.112 11.985 192.836 15.000 177.691 12.048 6.112 11.985 207.836 189,069 12,427 6,974 11,413 219,883 T¢>tsl Incomlng mour¢•• 1S.000 R••ourc•• •xp•nd•d Raising funds Charitable aclvit•8 22,080 175,401 197.481 22,080 175,401 197,481 18,850 137,560 156,410 Total r••ourc•• •X￿nd•d Not Incomlnglloutgeln91 r••wrc•• b•lor• translèrn N•t g•In￿lI0¥￿•j M In￿•1m¢nts 14.64SI 16.000 10.365 63,473 12 1128 11281 25.153 N•t mov•m•nt In fun 14.7741 1S.000 10.226 88,626 Tot•1 fvnd• brought forwwd 456.253 456.253 367,627 Tctsl fund• urrl•d fo*w•rd 451.479 1S.000 466.479 456,253

LLIAMS SYNtXlOME FCWNDATION BALANCE SHEET AS AT 31 MARCH 2025 2026 2024 Flx•d •s••ts Tar9ible assets 11 382,782 38194• 378.724 377.867 Totsl fflx•d M••ts i) 102.808 131.911 90.180 morn th•n on• y••i 148.4581 (18.048> N•t euvv•nl M••l• 78.596 4e8.479 458.253 Th• fund• ol th• ch•rMy 451.479 15.C 4W4n 456.253 Tot•1 lunth 4M.253 477 01 th• A(120(X. ollt* ZOL￿. li

WILLIAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 1. Accountlng pollcl•s L•g41 stst Wiltsams Syndrome FoUnda1c￿ 18 • ch•rlLth cOm￿nY Ilnl•d by yrnnt•• IrthryxaithJ n England Wales. Th• address ofthe rogist•r&l offi(x IB North House. 198 HvJh Str••t, K•nt, TN9 IBE. B••l• of ¢h• pr•p•r•don ol Iho •cc¢wfits The linaw81 sts1o￿nts havo b••n pr•par8d in acts)rdan￿ Ac£Thmlng Repry1kn9 by Chantss.. Staterynt M R•ctsTh￿d&d practs￿ applica14e to chartbes PT•parir¥ tholr unls In 4cc¥Xdan￿ Financial R•po￿.￿9 Standard 4Wic•bl• In th• UK and R•wblic of lrnLand IFRS 1021 l•ff•cOw 1 January 2019F Icharths SORP IFRS 102)). th• Financial R•FKJrtsw Standard •pplubl• in the UK and Rowblic ol IreW IFRS 102) I￿ C(xnpani•8 Aci 2fy)6. Th• finandal S￿￿rr￿nts do nol ￿Ude a cash Statsm￿l bttause th• ch, as a •m•l r¢FK¥tng onbty. is ox￿1 from tho requ¢twI to w•p•r• •uth • tal•nxnt FinwKaal R•w>rting Standard I 'Cash flow $tatorrnnts'. kncomlng r••ouf¢•• Incxme from th￿all￿$ ty r•cow1￿ th• ch•rty 1$ )thl•d lo lh• fund•. th• I•￿p¢ * wobabl• the rnnl rn•aweAI Mlthly. donatkjns thls l• uwalty on [rA￿p1. Incorne from fA)nfff•n￿8 ll rwni••d in th• ￿￿xI Ihfr ￿nIOr•n( Is hold. HolKlay I￿) li r•cognI￿d lh• h￿￿•Y ty du• lo tak• pla￿. &8Cnpt1￿ Irts)m& is rwlmd Ihe lo rt r•l•tss. Incgxno rec•1¥￿1 n advwKX IB tr•al￿1 aB d￿•T[￿l ino)m•. IncyJrn• Irom other trlirvJ rac￿￿se￿I reKeivabl• ￿ tho bath irf the I￿)d￿l￿g lak• FAac•. R•wulc￿ •xp•nd•d Expendi￿￿• N rocc4wised %then a wegont l•gal or conslnjth've exists al Ihe balance sh&frl dale as a re5uIi of a past evenl. il is probabl8 that a transler of economK benefrts wll be requirod to selue Ihe o￿lgat￿n. Ihe can be measure•J or eslNnat8d rn14bly. EX￿ndIt￿o is sh)¥ industr¥• of VAT. EXF￿d￿rn. 18 th•rpJ on ￿ xuu•l8 ba8M. ts •locatsd bet￿.. Exp￿d￿rn on raismg hJnd8 InchJ¢J88 ￿$1$ as8odated with attrath.ng d(M4bon8. tho ￿81 of rchases resale inve5tmnt rronag•ment 1885. Expendthre on charrtable activllios ¥KhJd8s expeThJthr• pro¥T4Kffi of gub¥idi¥•d lY)I￿a￿. ￿￿￿81 aThJ re8w¢h f8&$ and educa￿al ivitso8.

LLIAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 The charty makes research grants on the recoryynendats)n of rts Professional 4fvisory Pa￿. These grant5 are Cl￿sIdered port￿rnance rdated and so are recogni58d onty lo the exlent that the prcpct has be￿ (Jmpltt•d. Wh•r¥ m•terial. grants 8UtIKKisod t￿t y8t p8M1 be¢•use they am i￿ndant cffl future research proiecls bemg undertaken. are shown as finarKial commitm&nts. JI Costs am alhmtèd tetsv••n expenditur• &tivitie5 on a basil d•sw•d to retlect use of re8wrce. Cc6ts relabng to a parb'ojlar actNity are allo&ited (&'rec¥y. Supwt costs inthde the ctntral fw)ckn"on$ have bo•n 4lb)catsd to ath"vrti•s M • b#is ol lin• SFnl on th0￿ •clryrfl••. (knamance costs Incl￿d• Ihoga c4)Bts incwrnd by lh• chwity in ma•b"no ts con8tsIut￿￿1 Btatulcry rtyuirernents. Flx•d Tangible fixed Mt•l¥ ar• t•tJ al ¢￿t lem d•w•caknn. Oew•c4•tson i• wo¥￿d 4t rat calcLAat&d to wrrte off tho cost offfix•d a8s•ts,1•18 th•r •8lmat•d rn•h'sabl• valw, 0￿r th•r •xpect•d useful kve8, a8 fdlcvts.. Offto •qui>monl 33% on cost riro IM y•8f IM Iru81••8 4f••d lo (ang8 th• d•prnClatK￿ r818 frfym 25% to 3YA ¢o$t 48 Ihis b8tter rellects the assets uBeful •COn￿ th1•. As thi's is a d￿Tra• w) 08timat• Ihis chaw• has been made pKospxts"vely. Investments ar• r•c¥yiwJ ￿n￿lty al ￿$L •th•q￿nty al th• fair vak at th• b•l¥nc• oet date, using tha quoled market prKe. ChwvJes in hir val￿7 aT• Inthdod w) the Slatsm￿l finan¢bd actsvrt￿ undbr ￿￿1{10￿￿) on fft¥•$tmwts. Fln•ncl•l Instrum•nts Thts ¢h•nty onty has finanwl Irffjtrum•nls ol 8 k1￿ that a8 bawc ffinafcaal Irlnmert8. Short4effli debtors arwj creditors are meawjred at getdement value. kny Iosges from inwainnont w• rncogni8•d •nd 8xp•ndlturn. Fund •ccounllng Unfe8tn"ct•d fund8 we avallth al IM disu•lK#I ol the tru8¢8 n luthorarK• 9￿￿•1 obpctNes of the chty. Reslrid&J funds are to be used for spedThc pu￿￿the￿ a8 ld by th• th)nor. ExpeTh*lure wtiich meets the crrterba is al(Kated to the fvnd. 2. Incom• from dDn•tlonB 20215 2024 th)nat￿ Grft Ahj 165.155 12.536 177.691 In the ￿na￿la1 year to 31 Mwch 2025, £15,0￿ was reca•¥ed as a donation for restricted purpose. 174.817 14.252 189.069

WILUAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 Incom• from Charltsbl• actl¥ttl•B Total 2026 T¢￿￿1 2024 HolKlay kKome 2.￿0 9,448 12,048 2.400 10.027 12,427 Incom• from tr•dlry ctMt•• Totsl 2026 Tot•1 2024 lTh))me fr(th of fwistmaB ￿[d￿U￿￿1(allon1 6.112 112 6.974 6,974 & Incom• from InvMtm•nts Tol•1 2025 Tot•1 2024 Li8t•d hive8tsn•nts Bank del￿1 10.689 10.388 1.027 11,985 6. Exp•nd￿r• on r•l•lnq lund• Tot•1 202S T(•l 2024 C￿1 of sal•8 of christmas Card￿￿bI￿atsO Inv•strtKnl wtfolio managemtnl foes Staff 7.971 4.502 7.699 1,￿8 22,080 3.982 4.138 7.630 3.102 18,850 cxJ$ts (not• 91 7. R••owc•• •xp•nd•d 2025 2020 2D20 2025 Dhct Colts 8t*ff Co•ts 8upport C￿tr Total 2024 Tat•l H￿idaY cojts aThJ re8•arch fees Publicat￿n$ and conforenc• 30.060 28.189 2.895 2,328 2.014 15,2 572 572 3.816 2.099 32.￿1 .776 21.991 10,767 37.104 13.444 14.493 4.088 bers events & lamly supp)rt Admin supwrt 24.064 18,015 4,388 46.467 44.081 26,717 73,022 5,724 17.171 32,440 176,401 24.350 137,660 85208 Expenditure on tha￿￿18 xbvibe5 in Ihe ccryarative pDrKxl irKaMknJ TeyAithJ eX[￿J•tUre of £0 IX124. £2,750)

WILLIAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 Support co•ts Tol•l 2025 Tot•1 2024 Staff Cc4ts InJur•nc• Renl Bank Printw. arml $tathonwy Fe08 and subxripti(m Paydl lees Olf￿& expen••• Travd exp6ns•8 DeW•Cial￿ ol okn equipm￿ Gov•m•nc• co•ts: Trustee5' expens•• Prolv8$1￿al lee8 ExaThur￿9. ￿m￿era￿'0n 26.717 1.486 576 24.35) $52 710 3,516 651 912 3.261 1.044 524 6.343 2.310 1,703 1.143 420 5(KJ 48.796 Allout•d •• follw•: Expendi￿re on rai%ry lund8 Exp•ndityr• on chwtsbl• ￿*i¥ll•S 3,102 38,482 41,$8S 43.888 45.796 g. St•ff co•1¥ Total 2025 Tot•1 2024 Staff costs dunng ts yew •• foll￿.. Wages and salari•# Penyion costs 74.392 6.329 80,721 61.028 4.408 66,436 The •vw8gv n￿b￿ of pwd rmp10￿¥ duriry y••rw•¥ 512024. 5). No rmmber ol 8laff •am•d over £60.OW for the fnanckn￿ {2024". NII. Key manwent p•r•ON￿l •r• lo be th• tru8tfj￿ and Ihe Clwef Executy￿. Totsl rwnun&ralK)n of key wrsomol. i￿luding empkny•r¥' na11(￿•1 nwranc• and p•nii ¢￿trI1￿$. wab £33,58912024. ￿9.7841.

WILLIAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 10. N•t Incom• Total 2025 Tol•l 2024 Thkn 18 st•t•d •ft•r ch•rylng: DeweciatK>n Indepondant examwrn. r￿un•T41￿>n 333 833 11. TrvJlbl• Flx•d a81•ts Equlpm•nt C￿t Al 1 Awl 2024 Addibons Dwposal# Al 31 March 2025 2.178 1.679 499 D•pr•cl•tlon At 1 Apnl 2024 Ctw frjr t￿ y•¥ DL8posals At 31 March 2025 1,245 333 1.245 333 Net book Val￿ at 31 March 2025 166 Net tKxJlt valup at 31 March 2024 933 12. Flx•d •M•t• ImiMlm•nts ToL•l 2025 Tot•1 2024 Inveslmenls.. Mark•t ¥•lu• t 1 Apll 2024 Addbons at cost D￿%￿81$ al valu• ch￿ dumg the year Market Va￿ at 31 M¥ch 2025 Cash held for ￿Ve51m￿nI pur￿￿08 372.728 98.077 189.836) 1202 379.766 3.017 382.783 339.463 82.333 (74.662) 25.594 372.728 376.724

WILLIAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 13. D•b¢orn Tot•1 2025 Tot•1 2024 29 380 14. Cv•thtor•: mM>unl• f•lllng du• wlthln on• y• Tot•1 202S Tot•1 2024 677 671 6.259 9.112 48 456 16.048 Accruals D•fvrr•d Incom•: Ir￿lme delerred from the wevious ye Reloa￿1 to Ihe slalernenl ol fi￿r￿jaI ackn1•• An'wry during tho ¢urT•nt y•ar On I￿￿lay7 Conlor•nc• on •ubs¢wption inco 9,112 10.IM> 19,1121 110.09)) 2.1(K> 31,376 7.012 .112 41089 Defffired inccrfne relates lo affl￿￿15 rtteived in advan￿ for thB holmlay duo kn lake Summ•r 2025 and also $ut¢criplKM Inc￿￿ r•c•v•d in •Jvwc•. 15. Cwfjng•nt Uablllty The charrty is ccrfnmitknd to lurlher Me(lical Rasearch grants lotall'ry £NI12024'. £Nil}. Thes0 am not recc8niéd 45 l￿bilit*S 8$ thèy we to porfomanc• rdaled ¢cnJit￿X al Ihg balance shwt dato hal not bmn f￿r￿lad. 16. F￿dI Ex￿ndlI￿r• •nd gaOn•l C•rrl•d (lo•BMI Tr￿#1•￿ f¢)rw•rd Bvought fmyard Incom• Unr•stricl•d fvn Restricted lund5 456.253 192, 15,C 456.253 207.￿ 197.610) 451.479 15.CDJ 466.479 197.610

WILLIAMS SYNDROME FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2025 Prlor y••r Exp•ndltur• and galn•l Cirrl•d 11018•8) Trnn8f•rn lofward Bl￿tht forward kncom• Unrnstrid&l funds Restrid•Y lundj 367,627 219.883 1131,2571 456.253 367 627 219 883 131257 18. An•ly•l• ol n•1 •u•t• b•tw••n fvnd• Totri R￿trIC¢•d Unmtrlcl•d fvnd¥ fund• fund• Total fvnds 2024 Fixr•J assets Not curr•nt ass*s 382,949 68.530 451479 382,949 83.530 466 479 371.657 78.5 15.0(K)

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Legal and Administrative Information

Charity Registration No.

Company Registration No.

281014 (England & Wales); SC049897 (Scotland) 1523794

Patrons:

Mr Peter Davison, Ms Elizabeth Morton, Mr Tim Cooper, Mr Mathew Baynton & Ms Clare Perkins

Trustees and Directors:

M J Burrows P R Lawrie (Chairman) J R Folliss (Treasurer) L Fisk N D T Martin (resigned 10/7/24) P Taylor S J Spencer B Vasey M J Wolfman D R Robinson

Secretary: E H Martin Chief Executive: E H Martin Registered Office: Winsley’s House, High Street, Colchester, CO1 1UG Professional Advisory Panel: Professor J Atkinson PhD Professor P Howlin MSc PhD CPsychol FBPsS Dr R Johnson BM MRCP Dr K Metcalfe MBBCh FRCP MD Dr R Padidela MRCPCH MD DNB Professor D Riby PhD Dr E Sidebotham MBChB (Hons) FRCS MD Dr J Van Herwegen PhD Ms A Hart BSc MSc (OT) Mrs O Sutton Ms M Ambrosio BSc MASLTIP MRCSLT HCPC Professor E Farran PhD Dr F Tynan Mr B Leach RNMH MNurs Ms Heledd Wyn Solicitor Ms K Mjadzelics Ms J Whale Mr Jonathan Stevens Mrs Eliza Sharron Mr P R Lawrie Mrs E H Martin BSc Ms Ashley Shepherd MCSP

Williams Syndrome Foundation YEAR ENDED 31 March 2025

Legal and Administrative Information

Bankers:

CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ

Independent Examiners:

Community 360 Winsley’s House High Street Colchester CO1 1UG

Investment Committee:

P R Lawrie J R Folliss E H Martin D R Robinson

Investment Advisors:

Brewin Dolphin 12 Smithfield London EC1A 9LA

Williams Syndrome Foundation, Box 103, Charter House, Lord Montgomery Way, Portsmouth, PO1 2SN.

Tel: [phone]

Email: [e-mail] www.williams-syndrome.org.uk