**Annual Financial Statements** Year Ending March 2025 


**Company Number: 1523794 Charity Number England & Wales: 281014 Scotland: SCO49897** 




**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Content Index** 


**03.** About the Williams Syndrome Foundation 

**05.** Trustees Annual Report 

**12.** Independent Examiner Report 

**13.** Statement of Financial Activities 

**14.** Balance Sheet 

**15.** Notes to the Financial Statements 

**22.** Legal and Administrative Information 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **About the Williams Syndrome Foundation** 

In 1976 Lady Cynthia Cooper began to research Infantile Hypercalcaemia (IHC) after her daughter Clare (then aged 14) had been diagnosed with the condition at eight weeks old and had since developed learning difficulties. Recognising that there was very little information or support available, Lady Cooper and her husband, General Sir George Cooper, decided to set up a charity to help other families in the same situation. 

In 1980 the Williams Syndrome Foundation was created, bringing families and healthcare professionals together. Forty-four years on, we have evolved to deliver an extensive range of information outlets supporting more than 1100 families across the UK. We are almost entirely funded by member fundraising and donations. 

**Our mission has never changed. We believe that every family coping with the care of a child or adult with Williams Syndrome should have the support and information they need.** 

We were the first charity in the world dedicated to helping those with Williams Syndrome and instigating research into the condition and are still the only charity doing so within the UK. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **How do we help?** 

- We fund and promote research of WS in order to create new and comprehensive guidelines and webinars and to keep our current library of WS specific publications updated. 

- We provide online, email, and telephone support for families, carers, practitioners, and professionals – supported by the expertise of our Professional Advisory Panel. 

- We have an excellent team of Event Coordinators – all family members of WS children – who offer support to our members and organise fun events for families, providing social opportunities for families to meet and share support. 

- We support an Educational Health & Care Plan (EHCP) assessment service to help families gain the framework of support needed for their child. 

- We provide respite opportunities for families through specialised care holidays for their adults with WS, as well as respite breaks for adolescents and parents at inclusive activity holiday sites. 

- We host an online Zoom Club for adults with WS to combat social isolation. 

- We host online parent support groups to connect parents of similar aged children with WS. 

- We keep families connected and informed through our website **www.williamssyndrome.org.uk** , media channels, monthly e-newsletters and twice-yearly magazines. 

- We host weekend family conventions every three years with informative presentations and workshops form WS experts. 

- We raise awareness of Williams Syndrome. 

- We celebrate the unique joys and achievements of our WSF community. 




**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Trustees Annual Report** 

The Trustees, who are also Directors of the Charity for the purposes of the Companies Act, submit their annual report and the audited financial statements for the year ended 31st March 2025. 

The Trustees confirm that the report and financial statements of the Charity comply with the current statutory requirements, the requirements of the company's governing document, and the provisions of "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019) (Charities SORP (FRS 102)). 

Legal and administrative information set out pages 3-4 forms part of this report. 


## **Charity Status** 

Williams Syndrome Foundation is a Charitable Company limited by guarantee. It was incorporated on 22 October 1980 and is governed by Articles of Association as adopted on 27 July 2023. 

## **Governance and Internal Control** 

The Charity is organised so that the Trustees meet regularly to manage its affairs. The Chief Executive manages the affairs of the Charity on a day-to-day basis with additional assistance as required. 

The Board as a whole appoints new Trustees, and one-third of the Trustees retire and are eligible for re-appointment, each year. New Trustees are normally parents or relatives of individuals with Williams Syndrome, or have a professional skill required by the Charity. The Trustees are inducted by briefings from the Chief Executive and the Chairman and relevantly skilled Trustee(s). 

## **Objectives and Activities** 

The objectives of the Charity are the provision of support, information and advice on all aspects of Williams Syndrome; supporting and generating research with practical applications that will further increase understanding of Williams Syndrome; to raise awareness of the condition to improve medical, social and educational support and care - for the direct benefit of those who have, or those who support and care for someone with Williams Syndrome - within the UK and elsewhere. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Trustees Annual Report** 

**The aims of the charity are:** 





## **SUPPORT:** 

All WS Individuals and carers in the UK will have access to the support they need to help address the challenges of the condition. 


**EVENTS:** 

The WSF will provide forums in which members and their families can access knowledge, share experiences and have fun confidently and safely. 


## **RESEARCH:** 

Ensure the impact of WS on affected individuals, their families and communities is understood as fully as medical and social science enable it to be. 

## **AWARENESS:** 

Create a broad awareness of WS in UK society. 

**COMMERCIAL SUSTAINABILITY:** Ensure that the WSF is a commercially sustainable organisation, with processes that are robust, efficient, auditable and compliant with relevant legal and ethical requirements. 

## **MANAGEMENT:** 

The WSF will continue to be run by dedicated Trustees and employ motivated staff with the necessary skills to perform their duties to best effect. 

## **Public Benefit** 

The Trustees have considered the Charity Commission's guidance on public benefit. Williams Syndrome is a rare disorder, first identified in 1961. The charity’s educational and research activities are considered to be for the benefit of all who have been diagnosed with the condition and those that love, care for and educate them, and thus for public benefit. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Trustees Annual Report** 

## Review of the Year 

WSF staff continue to work with families of individuals of all ages, from infants to those of relative old age, parents, carers, police, hospitals and GP surgeries, multidisciplinary practitioners, educational establishments, housing associations, and supported accommodation providers to support people with WS in all areas of their lives. 


## **1. Support** 

We have: 

   - welcomed **134** new members, bringing our membership total to **2385** . produced **two** member magazines (36 and 40 pages) and **12** monthly e-newsletters. produced a **20** page, Welcome to the WSF booklet for new members. held **16** online family support groups. 

   - held **96** We Support Friendship Zoom sessions with adults with WS. 

   - held and recorded the following webinars: 

- Foundations for numeracy 

- Physiotherapy 

   - facilitated a small group clinic session for members focusing on Speech and Language development. 

   - supported **13** adults and **10** adolescents / young adults with supported holidays and **32** parents with respite. 

   - booked **184** families into Butlin’s for our 2025 National Convention in Skegness. 

   - answered **3700** queries including **400** telephone queries to our support lines. 

   - continued to be active members of the Genetic Alliance community and have advocated for our community with the Department of Health & Social Care in relation to the Down Syndrome Act Guidelines. 

   - continued to fund EHCP assessments with Professor Jo at her Child Development and Learning Difficulties Lab, UCL. 

   - created and manage a member closed Facebook group. 

   - added a new webpage for new members as well as one highlighting the research projects we support and improved our awareness and fundraising pages. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Trustees Annual Report** 

## **2. Events** 

We have: 

held **25** regional events and recruited **4** new regional coordinators. 

held a regional Roadshow in Bristol and Regional Roadshow / Mini Convention in Scotland. 


## **3. Research** 

We have facilitated the following research studies: 

   - WiSdom Census Study 

   - Association between Motor Abilities, Cognitive Language and Social Skills in Early Child Development 

   - Emotional Development and Parenting 

   - Mathematical Inclusion for Neurodiversity 

   - Perceptual Capacity in Adults with WS 

   - Motor Skills Learning, Physical Activity and Mental Health in ASD, DS and WS 

- and funded: 

Mathematical Development in Williams Syndrome 


## **4. Awareness** 

We have: 

- appointed two new patrons – Mat Baynton and Clare Perkins, to help increase the profile of WS. 

- attended the Royal College of Paediatrics and Child Health Annual Conference to raise awareness of WS. attended the Positive Choices Convention for student Learning Disability Nurses to raise awareness of WS. created and shared a month-long awareness campaign during May and have grown our presence on Instagram. been active members of FEWS (Federation of Williams Syndrome in Europe) 

- continued to provide WSF Xmas cards and merchandise to raise awareness. 

- produced a leaflet for fundraisers to support awareness / fundraising events. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Trustees Annual Report** 


## **5. Commercial Sustainability** 

We were: 

active partners with Talbot Underwriters as their Charity of the Year for 2024, gaining **£30k** in fundraising. 

- awarded **£10k** by Lloyd’s of London in recognition of Sarah Waylen (Talbot Underwriters) and her incredible fundraising for the WSF. 

awarded **£15k** from Baily Thomas toward our 2025 national weekend conventions costs. 

We are extremely grateful to Talbot, Lloyds and Baily Thomas for their support. 

We are extremely fortunate that the majority of our income continues to be raised by our membership through donations and fundraising activity – they have our continued gratitude. 

We continue to review and reduce our office costs and have undertaken a review of our investment providers. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Trustees Annual Report** 

## **6. Management** 

We recorded another clean independent examination and wish to thank our small staff team of 5 part-time employees (1.86 FTE) for all that they have achieved during this financial year. 

## **Financial position** 

The Statement of Financial Activities shows a net increase in resources for the year of £10,226 (2024: increase £88,626) after taking into account the loss in the value of the charity's investments during the year as a result of the market performance, which was £128. Unrestricted reserves stand at £451,479 at the year end. 

Before taking into account the decrease in the value of investments, income exceeded expenditure by £10,355 (2024: income exceeded expenditure by £63,473). 

## **Reserves policy** 

The charity aims to maintain reserves sufficient to cover a minimum of one year's expenses, plus the current year's expenses. The Trustees believe that this is in the best interests of the Charity. 

Most of the employees of WSF have either children or siblings with Williams Syndrome and it is considered vital to ensure that there are sufficient reserves to guarantee continuity of their employment. It is also vital to ensure the key activities and ongoing support can be assured for WS Families. 

The charity’s unrestricted reserves as of 31 March 2025 are £451,479. Of this amount £423,949 is represented by fixed asset investments which are invested to raise funds for the charities ongoing benefit, these can be converted to cash within 3 months. This, along with free reserves of £27,531 is adequate to support the planned Medical Research, Regional Activities and the day-to-day expenses of the Charity for the next Financial Year as well as our next triennial convention which is planned for July 2025 with an expected cost of £150,000. 

The Trustees consider that the financial position of the Charity is stable and satisfactory. 

## **Investment policy and objectives** 

The charity operates a low-risk attitude towards investment whilst looking for reasonable returns in a challenging economic climate. 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Statement of directors' and trustees' responsibilities** 

The Directors are responsible for preparing financial statements in accordance with applicable law and regulations. 

Company law requires the Directors to prepare financial statements for each financial year. Under that law the Directors have elected to prepare financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under company law the Directors must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. 

In preparing these financial statements, the Directors are required to: 

- select suitable accounting policies and then apply them consistently; observe the methods and principles in the Charities SORP; make judgments and estimates that are reasonable and prudent; 

- state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements; and prepare the financial statements on the going concern basis unless it is inappropriate to presume that the company will continue in business. 

The Directors are responsible for keeping adequate accounting records sufficient to show and explain the company’s transactions and that disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. 

This report has been prepared in accordance with the provisions applicable to companies subject to the small companies regime in Part 15 of the Companies Act 2006. 

Approved by the Trustees and signed on its behalf by: 


…………………………………. P R Lawrie Chairman of the Trustee Board 

Date: 21 /08/2025 




WILLIAMS SYNDROME FOUNDATION
INDEPENDENT EXAMINER'S REPORT
FOR THE YEAR ENDED 31 MARCH 2025
I report on the acLOUnts of William5 Syndrome Foundation for the year ended 31
March 2025 which are set out on pages 10 to 18.
R￿P•¢I1￿ r••pon•ibllltio1 of trust￿* •nd ox•mln•r
The Charity's Trustees are responsible for the preparation of the acccyjnts. The Charity's
Twstee5 consider that an audit is not required for this ￿ar lundef section 144121 of the
Charits'es Act 2011 (The Act) bul that an independent examination Is needed.
11 15 my rosponsibility lo:
Examlne the a(xx)unl$ under seclion 145 of the Charities Act,
To fc41ow the procédures laid down in the General Direclions glven by thè Charty
Commiwoners (under sects'cffl 14515Xbl of the Charit￿S Act. and
To state whelher particular matters have come to rny attention.
Bull ol Indgpondont oxJmlner'* SiJtemont
My examinabon wa5 carried out In accordance ￿th the GèMral Dtreellons gTr￿n by the
Charlty Commlssioners. An examinab'on includes a re￿8W of Ihe acc(xJnling records kept
by the Charity and a comparison of Ihe accounts presented with those records. It also
dudes ¢onsKlerab'ons of any unusual ilerns or disclosures in the accounts, and soeking
explanalKJn5 froffl you as Iru51ees concerniThJ any SLKh matters. The procedures
undertaken do not provid6 all the evideKe that V￿)uld be raguired In an audit and
ccnsequenlly I do nol express an audil opinion on the Mow given by the ￿OUnt8.
Ind•p•nd•nt oxamlnor's •tat•m•nt
In the course of my examinatson. no matenal mattor8 have come to my altentson
me cause to believe that in. any material respect..
the 8cccMJnting rècxxds vnr8 riot kept In accordanc* vAth Sectlon 130 of Ihe
Charrties Act: or
the accounts did rK>t aixud ?￿th the accounllng recordB.' C
th8 accounts did rK*t comply vAlh the aprAlcabl8 requirements concemlrvJ the
lo￿ and conlenl ol accounts set oul in the Charits'es (Accounls and
Reports) Regulations 2008 other than any requirement that the acLounls gfve a
true aThJ fair, which is rK)t a matter consldered as part of an independènt
examlnation.
I have CK)me across no other matters in ttnnectson wlth the examinatson lo which allenlion
uld be drawn in this rep)rt in order to enable a proper under51andir4J of the accounts
to be reached.
D￿d CourUer FMA4T A4TQB lor and on behaff ot.
Communty360
Winsley 5 House, High StreeL Cokthester, Essex
Date
02109r2025

WILLIAMS SYNDROME FOUNDATION
STATEMENT OF FINANCIAL ACTIVITIES (INCLUDING INCOME AND
EXPENDITURE ACCOUNT)
FOR THE YEAR ENDED 31 MARCH 2025
Unr•strlct•d R•strkt•d
Fund
Fund
2025
Total
2024
Total
Incomlng r*￿￿r￿¥
Donalw8
Chari18ble ac￿'VIte
Other Irading 8cU'vibes
Investmenls
162.691
12.048
6.112
11.985
192.836
15.000
177.691
12.048
6.112
11.985
207.836
189,069
12,427
6,974
11,413
219,883
T¢>tsl Incomlng mour¢••
1S.000
R••ourc•• •xp•nd•d
Raising funds
Charitable aclvit•8
22,080
175,401
197.481
22,080
175,401
197,481
18,850
137,560
156,410
Total r••ourc•• •X￿nd•d
Not Incomlnglloutgeln91 r••*wrc••
b•lor• translèrn
N•t g•In￿lI0¥￿•j M In￿•1m¢nts
14.64SI
16.000
10.365
63,473
12
1128
11281
25.153
N•t mov•m•nt In fun
14.7741
1S.000
10.226
88,626
Tot•1 fvnd• brought forwwd
456.253
456.253
367,627
Tctsl fund• urrl•d fo*w•rd
451.479
1S.000
466.479
456,253

LLIAMS SYNtXlOME FCWNDATION
BALANCE SHEET
AS AT 31 MARCH 2025
2026
2024
Flx•d •s••ts
Tar9ible assets
11
382,782
38194•
378.724
377.867
Totsl fflx•d M••ts
i)
102.808
131.911
90.180
morn th•n on• y••i
148.4581
(18.048>
N•t euvv•nl M••l•
78.596
4e8.479
458.253
Th• fund• ol th• ch•rMy
451.479
15.C
4W4n
456.253
Tot•1 lunth
4M.253
477 01 th• A(120(X.
ollt* ZOL￿.
li

WILLIAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
1. Accountlng pollcl•s
L•g41 stst
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Wales. Th• address ofthe rogist•r&l offi(x IB North House. 198 HvJh Str••t, K•nt,
TN9 IBE.
B••l• of ¢h• pr•p•r•don ol Iho •cc¢wfits
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by Chantss.. Statery*nt M R•ctsTh￿d&d practs￿ applica14e to chartbes PT•parir¥ tholr
unls In 4cc¥Xdan￿ Financial R•po￿.￿9 Standard 4Wic•bl• In th• UK and
R•wblic of lrnLand IFRS 1021 l•ff•cOw 1 January 2019F Icharths SORP IFRS 102)). th•
Financial R•FKJrtsw Standard •pplubl• in the UK and Rowblic ol IreW IFRS 102)
I￿ C(xnpani•8 Aci 2fy)6.
Th• finandal S￿￿rr￿nts do nol *￿Ude a cash Statsm￿l bttause th• ch*, as a •m•l
r¢FK¥tng onbty. is ox*￿1 from tho requ*¢twI to w•p•r• •uth • *tal•nxnt FinwKaal
R•w>rting Standard I 'Cash flow $tatorrnnts'.
kncomlng r••ouf¢••
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the rnnl rn•a*weAI Mlthly. donatkjns thls l• uwalty on [rA￿p1.
Incorne from fA)nfff•n￿8 ll rwni••d in th• ￿￿xI Ihfr ￿nIOr•n(* Is hold. HolKlay I￿)
li r•cognI￿d lh• h￿￿•Y ty du• lo tak• pla￿. &**8Cnpt1￿ Ir*ts)m& is rwlmd
Ihe lo rt r•l•tss. Incgxno rec•1¥￿1 n advwKX IB tr•al￿1 aB d￿•T[￿l ino)m•.
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lak• FAac•.
R•wulc￿ •xp•nd•d
Expendi￿￿• N rocc4wised %*then a wegont l•gal or conslnjth've exists al Ihe balance sh&frl
dale as a re5uIi of a past evenl. il is probabl8 that a transler of economK benefrts wll be requirod to
selue Ihe o￿lgat￿n. Ihe can be measure•J or eslNnat8d rn14bly. EX￿ndIt￿o is sh)¥
industr¥• of VAT.
EXF￿d￿rn. 18 th•rpJ on ￿ xuu•l8 ba8M. ts •locatsd bet￿..
Exp￿d￿rn on raismg hJnd8 InchJ¢J88 ￿$1$ as8odated with attrath.ng d(M4bon8. tho ￿81 of
rchases resale inve5tmnt rronag•ment 1885.
Expendthre on charrtable activllios ¥KhJd8s expeThJthr• pro¥T4Kffi of gub¥idi¥•d
lY)I￿a￿. ￿￿￿*81 aThJ re8w¢h f8&$ and educa￿al *ivitso8.

LLIAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
The charty makes research grants on the recoryynendats)n of rts Professional *4fvisory Pa￿.
These grant5 are Cl￿sIdered port￿rnance rdated and so are recogni58d onty lo the exlent that the
prcpct has be￿ (*Jmpltt•d. Wh•r¥ m•terial. grants 8UtIKKisod t￿t y8t p8M1 be¢•use they am
i￿ndant cffl future research proiecls bemg undertaken. are shown as finarKial commitm&nts.
JI Costs am alhmtèd tetsv••n expenditur• &tivitie5 on a basil d•sw•d to retlect use of
re8wrce. Cc6ts relabng to a parb'ojlar actNity are allo&ited (&'rec¥y. Supwt costs inthde the
ctntral fw)ckn"on$ have bo•n 4lb)catsd to ath"vrti•s M • b#is ol lin• SF*nl on th0￿ •clryrfl••.
(knamance costs Incl￿d• Ihoga c4)Bts incwrnd by lh• chwity in ma•b"no ts con8tsIut￿￿1
Btatulcry rtyuirernents.
Flx•d
Tangible fixed Mt•l¥ ar• *t•t*J al ¢￿t lem d•w•caknn. Oew•c4•tson i• wo¥￿d 4t rat
calcLAat&d to wrrte off tho cost offfix•d a8s•ts,1•18 th•r •8lmat•d rn•h'sabl• valw, 0￿r th•r
•xpect•d useful kve8, a8 fdlcvts..
Offto •qui>monl
33% on cost
riro IM y•8f IM Iru81••8 4f••d lo (*ang8 th• d•prnClatK￿ r818 frfym 25% to 3YA ¢o$t 48
Ihis b8tter rellects the assets uBeful •COn￿ th1•. As thi's is a d￿Tra• w) 08timat• Ihis chaw• has
been made pKospxts"vely.
Investments ar• r•c¥yiwJ ￿n￿lty al ￿$L •th•q￿nty al th•* fair vak* at th• b•l¥nc•
oet date, using tha quoled market prKe. ChwvJes in hir val￿7 aT• Inthdod w) the Slatsm￿l
finan¢bd actsvrt￿ undbr ￿￿1{10￿￿) on fft¥•$tmwts.
Fln•ncl•l Instrum•nts
Thts ¢h•nty onty has finanwl Irffjtrum•nls ol 8 k1￿ that a8 bawc ffinaf*caal Ir*lnmert8.
Short4effli debtors arwj creditors are meawjred at getdement value. kny Iosges from inwainnont
w• rncogni8•d •nd 8xp•ndlturn.
Fund •ccounllng
Unfe8tn"ct•d fund8 we avallth al IM disu•lK#I ol the tru8*¢8 n luthorarK• 9￿￿•1
obpctNes of the chty.
Reslrid&J funds are to be used for spedThc pu￿￿the￿ a8 l*d by th• th)nor. ExpeTh*lure wtiich
meets the crrterba is al(Kated to the fvnd.
2. Incom• from dDn•tlonB
20215
2024
th)nat￿
Grft Ahj
165.155
12.536
177.691
In the ￿na￿la1 year to 31 Mwch 2025, £15,0￿ was reca•¥ed as a donation for restricted purpose.
174.817
14.252
189.069

WILUAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
Incom• from Charltsbl• actl¥ttl•B
Total
2026
T¢￿￿1
2024
HolKlay kKome
2.￿0
9,448
12,048
2.400
10.027
12,427
Incom• from tr•dlry *ctMt••
Totsl
2026
Tot•1
2024
lTh))me fr(th of f*wistmaB ￿[d￿U￿￿1(allon1
6.112
112
6.974
6,974
& Incom• from InvMtm•nts
Tol•1
2025
Tot•1
2024
Li8t•d hive8tsn•nts
Bank del￿1
10.689
10.388
1.027
11,985
6. Exp•nd￿r• on r•l•lnq lund•
Tot•1
202S
T(*•l
2024
C￿1 of sal•8 of christmas Card￿￿bI￿atsO
Inv•strtK*nl wtfolio managemtnl foes
Staff
7.971
4.502
7.699
1,￿8
22,080
3.982
4.138
7.630
3.102
18,850
cxJ$ts (not• 91
7. R••owc•• •xp•nd•d
2025
2020
2D20
2025
Dhct Colts 8t*ff Co•ts 8upport C￿tr Total
2024
Tat•l
H￿idaY cojts
aThJ re8•arch fees
Publicat￿n$ and conforenc•
30.060
28.189
2.895
2,328
2.014
15,2
572
572
3.816
2.099
32.￿1
.776
21.991
10,767
37.104
13.444
14.493
4.088
bers events & lamly
supp)rt
Admin supwrt
24.064
18,015
4,388
46.467
44.081
26,717
73,022
5,724
17.171
32,440
176,401
24.350
137,660
85208
Expenditure on tha￿￿18 xbvibe5 in Ihe ccryarative pDrKxl irKaMknJ TeyAithJ eX[￿J•tUre of
£0 IX124. £2,750)

WILLIAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
Support co•ts
Tol•l
2025
Tot•1
2024
Staff Cc4ts
InJur•nc•
Renl
Bank
Printw. arml $tathonwy
Fe08 and subxripti(m
Paydl lees
Olf￿& expen•••
Travd exp6ns•8
DeW•Cial￿ ol okn equipm￿
Gov•m•nc• co•ts:
Trustee5' expens••
Prolv8$1￿al lee8
ExaThur￿9. ￿m￿era￿'0n
26.717
1.486
576
24.35)
$52
710
3,516
651
912
3.261
1.044
524
6.343
2.310
1,703
1.143
420
5(KJ
48.796
Allout•d •• follw•:
Expendi￿re on rai%ry lund8
Exp•ndityr• on chwtsbl• ￿*i¥ll•S
3,102
38,482
41,$8S
43.888
45.796
g. St•ff co•1¥
Total
2025
Tot•1
2024
Staff costs dunng ts yew •• foll￿..
Wages and salari•#
Penyion costs
74.392
6.329
80,721
61.028
4.408
66,436
The •vw8gv n￿b￿ of pwd rmp10￿¥ duriry y••rw•¥ 512024. 5).
No rmmber ol 8laff •am•d over £60.OW for the fnanckn￿ {2024". NII.
Key manwent p•r•ON￿l •r• lo be th• tru8tfj￿ and Ihe Clwef Executy￿. Totsl
rwnun&ralK)n of key wrsomol. i￿luding empkny•r¥' na11(￿•1 nwranc• and p•nii
¢￿trI1￿$. wab £33,58912024. ￿9.7841.

WILLIAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
10. N•t Incom•
Total
2025
Tol•l
2024
Thkn 18 st•t•d •ft•r ch•rylng:
DeweciatK>n
Indepondant examwrn. r￿un•T41￿>n
333
833
11. T*rvJlbl• Flx•d a81•ts
Equlpm•nt
C￿t
Al 1 Awl 2024
Addibons
Dwposal#
Al 31 March 2025
2.178
1.679
499
D•pr•cl•tlon
At 1 Apnl 2024
Ctw frjr t￿ y•¥
DL8posals
At 31 March 2025
1,245
333
1.245
333
Net book Val￿ at 31 March 2025
166
Net tKxJlt valup at 31 March 2024
933
12. Flx•d •M•t• ImiMlm•nts
ToL•l
2025
Tot•1
2024
Inveslmenls..
Mark•t ¥•lu• *t 1 Apll 2024
Addbons at cost
D￿%￿81$ al valu•
ch￿ dumg the year
Market Va￿ at 31 M¥ch 2025
Cash held for ￿Ve51m￿nI pur￿￿08
372.728
98.077
189.836)
1202
379.766
3.017
382.783
339.463
82.333
(74.662)
25.594
372.728
376.724

WILLIAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
13. D•b¢orn
Tot•1
2025
Tot•1
2024
29 380
14. Cv•thtor•: mM>unl• f•lllng du• wlthln on• y•
Tot•1
202S
Tot•1
2024
677
671
6.259
9.112
48 456 16.048
Accruals
D•fvrr•d Incom•:
Ir￿lme delerred from the wevious ye
Reloa￿1 to Ihe slalernenl ol fi￿r￿jaI ackn1••
An'wry during tho ¢urT•nt y•ar
On I￿￿lay7
Conlor•nc•
on •ubs¢wption inco
9,112
10.IM>
19,1121 110.09))
2.1(K>
31,376
7.012
.112
41089
Defffired inccrfne relates lo affl￿￿15 rtteived in advan￿ for thB holmlay duo kn lake
Summ•r 2025 and also $ut¢criplKM Inc￿￿* r•c•v•d in •Jvwc•.
15. Cwfjng•nt Uablllty
The charrty is ccrfnmitknd to lurlher Me(lical Rasearch grants lotall'ry £NI12024'. £Nil}.
Thes0 am not recc8ni*éd 45 l￿bilit*S 8$ thèy we to porfomanc• rdaled ¢cnJit￿X
al Ihg balance shwt dato hal not bmn f￿r￿lad.
16. F￿dI
Ex￿ndlI￿r•
•nd gaOn•l
C•rrl•d
(lo•BMI Tr￿#1•￿ f¢)rw•rd
Bvought
fmyard
Incom•
Unr•stricl•d fvn
Restricted lund5
456.253
192,
15,C
456.253 207.￿
197.610)
451.479
15.CDJ
466.479
197.610

WILLIAMS SYNDROME FOUNDATION
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2025
Prlor y••r
Exp•ndltur•
and galn•l
Cirrl•d
11018•8) Trnn8f•rn lofward
Bl￿tht
forward kncom•
Unrnstrid&l funds
Restrid•Y lundj
367,627
219.883
1131,2571
456.253
367 627 219 883
131257
18. An•ly•l• ol n•1 •u•t• b•tw••n fvnd•
Totri
R￿trIC¢•d Unmtrlcl•d fvnd¥
fund•
fund•
Total
fvnds
2024
Fixr•J assets
Not curr•nt ass*s
382,949
68.530
451479
382,949
83.530
466 479
371.657
78.5
15.0(K)

**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Legal and Administrative Information** 

**Charity Registration No.** 

**Company Registration No.** 

281014 (England & Wales); SC049897 (Scotland) 1523794 

**Patrons:** 

Mr Peter Davison, Ms Elizabeth Morton, Mr Tim Cooper, Mr Mathew Baynton & Ms Clare Perkins 

**Trustees and Directors:** 

M J Burrows P R Lawrie (Chairman) J R Folliss (Treasurer) L Fisk N D T Martin (resigned 10/7/24) P Taylor S J Spencer B Vasey M J Wolfman D R Robinson 

**Secretary:** E H Martin **Chief Executive:** E H Martin **Registered Office:** Winsley’s House, High Street, Colchester, CO1 1UG **Professional Advisory Panel:** Professor J Atkinson PhD Professor P Howlin MSc PhD CPsychol FBPsS Dr R Johnson BM MRCP Dr K Metcalfe MBBCh FRCP MD Dr R Padidela MRCPCH MD DNB Professor D Riby PhD Dr E Sidebotham MBChB (Hons) FRCS MD Dr J Van Herwegen PhD Ms A Hart BSc MSc (OT) Mrs O Sutton Ms M Ambrosio BSc MASLTIP MRCSLT HCPC Professor E Farran PhD Dr F Tynan Mr B Leach RNMH MNurs Ms Heledd Wyn Solicitor Ms K Mjadzelics Ms J Whale Mr Jonathan Stevens Mrs Eliza Sharron Mr P R Lawrie Mrs E H Martin BSc Ms Ashley Shepherd MCSP 



**Williams Syndrome Foundation YEAR ENDED 31 March 2025** 

## **Legal and Administrative Information** 

**Bankers:** 

CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling Kent ME19 4JQ 

**Independent Examiners:** 

Community 360 Winsley’s House High Street Colchester CO1 1UG 

**Investment Committee:** 

P R Lawrie J R Folliss E H Martin D R Robinson 

**Investment Advisors:** 

Brewin Dolphin 12 Smithfield London EC1A 9LA 



Williams Syndrome Foundation, Box 103, Charter House, Lord Montgomery Way, Portsmouth, PO1 2SN. 


Tel: 0208 5671374 

Email: enquiries@williams-syndrome.org.uk www.williams-syndrome.org.uk